Re: oops, I meant to include my symptoms

[Guest guest]

these are the SAME symptoms that i have had for 14 months.as do thousands of other women...the implants ruined my LIFE......teresa

[Guest guest]

I find it interesting that when I post something on here I don't get

very many responses and especially when I am telling everyone how

much better I am getting. Why am I feeling ignored here?

Maybe that is why when people get better they don't come here

anymore. I am still having issues but I am doing so much better but I

really feel like what is the point of coming here if no one is going

to respond to my positive posts at all.

Oh well, maybe I am just PMS ing at this point. still seems there is

a lack of positive posts on here and when we get them they get

ignored.

In @y..., MissBoop0827@a... wrote:

> these are the SAME symptoms that i have had for 14 months.as do

thousands of

> other women...the implants ruined my LIFE......teresa

[Guest guest]

I'm still here, I've been here with Patty since she started the board.

I'm explanted over a year now and not getting much better yet. I don't respond much because I've been so sick lately but I do still read most of the mail I get from the board. I've attached a word document of my story, this is the letter that I submitted to the FDA if anyone is interested.

Shirley

[Guest guest]

,

Did you look at your post operative report to make sure that all the capsule

was removed, that a total capsulectomy was done?

If you haven't gotten a copy for your files, you may want to get one.

It sounds like you are taking all the right supplements, and then some! I

know how expensive it all it. I spent over $1000 my first year after

explant just on supplements.

It sounds like you have some type of chronic infection....that mycoplasma

theory????

Or chronic candidiasis? Heavy metal toxicity? Parasites? Low body temp

that allows for persistent activation of viruses?

Each one of these areas can be addressed. Let's hope we can find the

answers!

Patty

----- Original Message -----

From: <summer234562001@...>

< >

Sent: Tuesday, March 06, 2001 9:58 AM

Subject: oops, I meant to include my symptoms

> Hi again

> My symptoms are: before explantation: chronic fatigue, hair

> dullness and loss, skin eruptions on face which are raised red

> vesicles, dry eyelids, burning throughout my body along with

> excruciating pain, swollen joints, mostly ankles, brain

> fog,uncoordination (clumsy) body, memory loss,burning eyes nose mouth

> chest, depression, panic attacks, rapid pulse, for no apparent

> reason.GI and bowel disturbances. Oh my, I'm sure there are more

> symptoms, I am forgetting. Oh yes, Sleep disturbances.

>

> ok After explantation: without antibiotics ALL THE ABOVE

> With antibiotics: sometimes pain in feet at the end of the day,

> still suffer sleep disturbances, GI disturbances, I have a

> prescription for Diflucan, two weeks worth, I took all but two pills,

> which I am saving for the end of the Keflex round, ......also taking

> Acidophillus, Milk Thistle, Inositol,CoQ10, Dhea, Vit C,A, E, Flax

> oil, Aloe Vera Gel, Transer Factors, Potassium,

> Magnesium,Calcium,Glucosamine and Chondroitan, Grape Seed

> extract,Vitamin and mineral supplement twice a day,Fish oils, all

> SOOO expensive. Any advice will be appreciated. BTW......... I did

> have ANA tested Before explantation along with rheumatoid factor,

> through a blood test from my family doctor both proved Normal....

> but lymph was up. Total capsulectomy says the PS.....hmmmmm...

> interesting....... since he didn't think it was necessary to remove

> the capsule until I showed him Dr Feng's site on why it was so

> necessary with auto immune symptoms, to remove the capsule. Does it

> sound like I dont trust him? Yep. And so true! Oh my, I

> hate being this way. Thanks for your time all.

>

>

>

[Guest guest]

Hi ,

I don't think anyone wants to ignore you. I just think we are all

interesting in reading the posts, and don't always have the time or the

motivation to respond right away. I always feel like I am behind on my

e-mail!

I am glad you are doing so well. Whatever issues you are dealing with, I

am sure you are going to have the upper hand on them, because you have that

mind to conquer it. Positive thinking is definitely the way to go. Just

don't get bummed when the bad days happen....and hopefully they will get

fewer and farther between.

Patty

----- Original Message -----

From: <carina063@...>

< >

Sent: Wednesday, March 07, 2001 2:31 PM

Subject: Re: oops, I meant to include my symptoms

>

> I find it interesting that when I post something on here I don't get

> very many responses and especially when I am telling everyone how

> much better I am getting. Why am I feeling ignored here?

>

> Maybe that is why when people get better they don't come here

> anymore. I am still having issues but I am doing so much better but I

> really feel like what is the point of coming here if no one is going

> to respond to my positive posts at all.

>

> Oh well, maybe I am just PMS ing at this point. still seems there is

> a lack of positive posts on here and when we get them they get

> ignored.

>

>

>