Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 Hi , I am new to the group and we are just starting to research the best place to take our son Max. He is 10 months old with a brain injury. Can you share any ideas on how you went about your fundraisers? I plan to do a newsletter/flyer to friends and family and talk to our church. Any input is appreciated. Rockrohr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 >Hi , >I am new to the group and we are just starting to research the best place to >take our son Max. He is 10 months old with a brain injury. Can you share any >ideas on how you went about your fundraisers? I plan to do a >newsletter/flyer to friends and family and talk to our church. Any input is >appreciated. > Rockrohr > > , Which state are you in? Is Max a Medicaid recipient? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened. " [Luke 11:10] Freels 2948 Windfield Circle Tucker, GA 30084-6714 770/491-6776 (phone and fax) 707/220-7224 (efax, sends fax as email attachment) mailto:dfreels@... http://www.freelanceforum.org/df Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 , The first question is where do you live? There are several great clinics across the US. Ed Nemeth At 02:28 PM 2/10/2003 -0500, you wrote: >Hi , >I am new to the group and we are just starting to research the best place to >take our son Max. He is 10 months old with a brain injury. Can you share any >ideas on how you went about your fundraisers? I plan to do a >newsletter/flyer to friends and family and talk to our church. Any input is >appreciated. > Rockrohr > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 Hi Ed, We are in Indiana. I have been told to look into U. of Mich., U. of Chicago, and Prev. Med Group in Ohio. We are willing to go anywhere but the closer the better considering we will have to make several trips. But we do want to find the best place for Max. Any input would help, we are anxious to get started. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 We are in Indiana and are currently in the medicaid process. Where can I find out if Indiana is allowing medicaid to cover HBOT? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 Hey my name is if you find out anything please pass it my way I am in Indiana also ..And am also searching Thanks ...Oxyjen@... Re: [MedicaidforHDOT] Update!! Hi Ed, We are in Indiana. I have been told to look into U. of Mich., U. of Chicago, and Prev. Med Group in Ohio. We are willing to go anywhere but the closer the better considering we will have to make several trips. But we do want to find the best place for Max. Any input would help, we are anxious to get started. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 , I am a parent of a severely CP girl () who has done well with HBOT. My suggestion is to go to the absolute best HBOT center you can get to and start your journey there. Then, focus on repeat treatments in the local and accessible (and less expensive) centers. There are a number of things you will learn by going to the best center. First, getting a very experienced Dr. to evaluate and access your child. Getting good SPECT scans that can be used to fight for reimbursement and to track progress. Learning the best safety practices, nutritional support, physical therapies... (and half of your education will be from other parents in the waiting rooms.) Also, just learning more about the HBOT and what it is doing, and what it isn't for your child. From the midwest, you can easily get to Dr. Neubauer in Lauderdale by the sea, as well as Dr. Harch in New Orleans. I doubt U of C has anything. I graduated from Northwestern's B-school and have been trying to get them to look at HBOT, but the research groups prefer drug and surgical therapies. I live in California and we currently travel to Santa for HBOTs (1 hour flight away) which has become re-known in its own right for its children's care. It gets kids from all over the country and patients from all over the world as well. But, we started 's HBOT with Dr. Neubauer, in Florida. I still have fond memories of and I alone in Florida for those months! But, Florida was also good for us because my parents were only two hours away so we visited them every weekend. I hope this helps. But, again, I strongly recommend going to the absolutely best clinic you can get to in starting these therapies. Every journey starts with a single step. But, if your compass is off when you start, you are less likely to reach your chosen destination. Please let me know if I can help you with anything else. Warm Regards, Ed Nemeth At 12:15 PM 2/11/2003 -0500, you wrote: >Hi Ed, >We are in Indiana. I have been told to look into U. of Mich., U. of Chicago, >and Prev. Med Group in Ohio. We are willing to go anywhere but the closer >the better considering we will have to make several trips. But we do want to >find the best place for Max. Any input would help, we are anxious to get >started. >Thank you, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 , When you find out about Indiana Medicaid, please let us know the standing. As you are aware of from this website, Federal Medicaid laws prohibit states from avoiding reimbursement for physician prescribed treatments that can ameliorate a child's condition (a generous position). Thus, the state must pay if you have a physician's prescription. Ed Nemeth At 12:21 PM 2/11/2003 -0500, you wrote: >We are in Indiana and are currently in the medicaid process. Where can I >find out if Indiana is allowing medicaid to cover HBOT? >Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2003 Report Share Posted February 12, 2003 Hi Ed, Thank you for the advice, it was exactly what I was looking for. Someone to give me a starting point. This is a little overwhelming and a lot to absorb. I now plan to focus on Neubauer and Harch and go from there and also need to work on fundraisers. Thank you, I will keep you posted Rockrohr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 I have an interesting post if you'd like to read it. It is about the duration, 02 levels and dosage. My three daughters were treated by Dr Harch in 1994. You will love him. http://www.hbot4u.com/homlisting.html Sincerely and CHT's Re: [MedicaidforHDOT] Update!! > Hi Ed, > Thank you for the advice, it was exactly what I was looking for. Someone to > give me a starting point. This is a little overwhelming and a lot to absorb. > I now plan to focus on Neubauer and Harch and go from there and also need to > work on fundraisers. > Thank you, I will keep you posted > Rockrohr > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Meline, I am currently working to build a HBO Center in KY. We project the opening date to be late March/April. We would love for you to visit our we site at www.kyhyperbarics.com. If you have any questions e-mail me. We want to do mostly C.P. kids. M. Rickard > > From: Ed Nemeth <nemeth@...> > Date: 2003/02/11 Tue PM 03:38:41 EST > medicaid > Subject: Re: [MedicaidforHDOT] Update!! > > Visit http://myjobisathome.com/mrick/option4.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Meline, I am currently working to build a HBO Center in KY. We project the opening date to be late March/April. We would love for you to visit our we site at www.kyhyperbarics.com. If you have any questions e-mail me. We want to do mostly C.P. kids. M. Rickard, R.N. > > From: Ed Nemeth <nemeth@...> > Date: 2003/02/11 Tue PM 03:38:41 EST > medicaid > Subject: Re: [MedicaidforHDOT] Update!! > > Visit http://myjobisathome.com/mrick/option4.php Visit http://myjobisathome.com/mrick/option4.php Quote Link to comment Share on other sites More sharing options...
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