RE: HBOT's effects on Dystonia

[Guest guest]

Hi, my name is Joanne Brindley.

Briefly, I have a progressive neurological disorder called: Dystonia.

One day while receiving HBO for wound healing, I discovered I was able to

move my leg in a way I had not been able to for many years, inside the

chamber.

One thing led to another and I eventually started receiving HBO in

Louisiana (I live in Massachusetts). HBO at the right depth and length

of time has controlled my symptoms as no other treatment has. After 1

1/2 years, most of my symptoms are still at bay, even with reduction of

medication. The ones which have " snuck back " , subside after subsequent

dives. " Break outs " involving new locations, also subside after HBO.

As far as we know, there is only one other person with Dystonia who has

received HBOT.

My reason for writing are 2 fold. First, are you aware of anyone else

with Dystonia and/ or anyone involved in research involving HBO? Second,

Medicare covered the first round of treatment " accidentally " . They

refuse to cover my additional treatments, predominately because it is not

an approved treatment for Dystonia. I am currently awaiting a date for

an Administrative Law Judge Hearing and was wondering if you may have

information and/ or suggestions.

Any information you may be able to provide will be greatly appreciated.

If I can provide additional information, please feel free to contact me

at: auntie_j@...

Thank you very, very much! =) Joanne L. Brindley

________________________________________________________________

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[Guest guest]

I am currently awaiting a date for

>an Administrative Law Judge Hearing and was wondering if you may have

>information and/ or suggestions.

>

>Any information you may be able to provide will be greatly appreciated.

>If I can provide additional information, please feel free to contact me

>at: auntie_j@...

Joanne,

First, get an attorney. In our case before the ALJ it was critical that

evidence was entered into the official record. There are rules of evidence

that must be adhered to and most lay people are just not familiar with

those rules.

Although the evidence in our case was ignored twice by Georgia Medicaid and

then a third time by the ALJ, nonetheless having evidence as part of the

official record was invaluable once our case was appealed.

Second, for some time now the American public and the United States

Congress have been wrestling with whether or not Medicare should have a

prescription drug benefit.

Right now Medicare has no prescription drug benefit.

Since Medicare has no prescription drug benefit, then Medicare (and its

administrative arm HCFA/CMS) cannot be a legitimate authority on

prescriptions.

Since Medicare/HCFA/CMS has no legitimate authority on prescription

medications (from lack of knowledge from lack of experience), then how can

Medicare/HCFA/CMS legitimately govern the use of the most medically

necessary drug on earth: Oxygen?

Shouldn't this circumstance impeach the governing authority of

Medicare/HCFA/CMS as medical decision makers as to the appropriate use of

hyperbaric oxygen therapy?

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Delight yourself in the LORD and he will give you the desires of your heart. "

[Psalm 37:4]

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770/491-6776 (phone and fax)

509/275-1618 (efax, sends fax as email attachment)

mailto:dfreels@...

http://www.freelanceforum.org/content/portfolio.asp?ID=195

[Guest guest]

Hi, my name is Joanne Brindley.

Briefly, I have a progressive neurological disorder called: Dystonia.

One day while receiving HBO for wound healing, I discovered I was able to

move my leg in a way I had not been able to for many years, inside the

chamber.

One thing led to another and I eventually started receiving HBO in

Louisiana (I live in Massachusetts). HBO at the right depth and length

of time has controlled my symptoms as no other treatment has. After 1

1/2 years, most of my symptoms are still at bay, even with reduction of

medication. The ones which have " snuck back " , subside after subsequent

dives. " Break outs " involving new locations, also subside after HBO.

As far as we know, there is only one other person with Dystonia who has

received HBOT.

My reason for writing are 2 fold. First, are you aware of anyone else

with Dystonia and/ or anyone involved in research involving HBO? Second,

Medicare covered the first round of treatment " accidentally " . They

refuse to cover my additional treatments, predominately because it is not

an approved treatment for Dystonia. I am currently awaiting a date for

an Administrative Law Judge Hearing and was wondering if you may have

information and/ or suggestions.

Any information you may be able to provide will be greatly appreciated.

If I can provide additional information, please feel free to contact me

at: auntie_j@...

Thank you very, very much! =) Joanne L. Brindley

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

[Guest guest]

I am currently awaiting a date for

>an Administrative Law Judge Hearing and was wondering if you may have

>information and/ or suggestions.

>

>Any information you may be able to provide will be greatly appreciated.

>If I can provide additional information, please feel free to contact me

>at: auntie_j@...

Joanne,

First, get an attorney. In our case before the ALJ it was critical that

evidence was entered into the official record. There are rules of evidence

that must be adhered to and most lay people are just not familiar with

those rules.

Although the evidence in our case was ignored twice by Georgia Medicaid and

then a third time by the ALJ, nonetheless having evidence as part of the

official record was invaluable once our case was appealed.

Second, for some time now the American public and the United States

Congress have been wrestling with whether or not Medicare should have a

prescription drug benefit.

Right now Medicare has no prescription drug benefit.

Since Medicare has no prescription drug benefit, then Medicare (and its

administrative arm HCFA/CMS) cannot be a legitimate authority on

prescriptions.

Since Medicare/HCFA/CMS has no legitimate authority on prescription

medications (from lack of knowledge from lack of experience), then how can

Medicare/HCFA/CMS legitimately govern the use of the most medically

necessary drug on earth: Oxygen?

Shouldn't this circumstance impeach the governing authority of

Medicare/HCFA/CMS as medical decision makers as to the appropriate use of

hyperbaric oxygen therapy?

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Delight yourself in the LORD and he will give you the desires of your heart. "

[Psalm 37:4]

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

770/491-6776 (phone and fax)

509/275-1618 (efax, sends fax as email attachment)

mailto:dfreels@...

http://www.freelanceforum.org/content/portfolio.asp?ID=195