Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Hi gang, gave us quite a scare yesterday.Rustyroomers have gotten an earful so I will try and give a condenced version.(Yeah right,lol). woke up yesterday crying that his head hurt,gave Motrin and he slept until 8:00.He woke up fine but within two hours it was back.Gave more Motrin and he was fine until after lunch.Gave Tylenol and he fell asleep,within the hour he woke up crying about his head and he had a fever.I am starting to panic trying to find out about MAS.All I can find is that it starts with uncontrolable fever,sleepines,and lethergy.I call the rheumy who told me to take him to the ER that it needs to be checked but she didnt think it was JRA related.We get to the ER and while admitting he starts throwing up.As soon as we got in the room he fell asleep.I had noticed that morning that he had facial swelling so I assumed mayby an allergy/sinus thing so got his Clarinex filled.We had to wake him when the DR.came in and keep him awake.s face was definatelly puffy and now his nose had yellow and green goo in it.Dr. thinks between the MTX and pred it was covering up the symptoms of a sinus infection until it got severe.He got put on a heavy antibiotic for 5 days.The poor kid slept for over 17 hours straight.His Ibuprofin got moved up to 300mg every 6hrs and 325mg Tylenol every 4 hours for the pain.When he wasnt sleeping he was holding his head crying in pain.He would cover his head with a blanket to block out light.I really thought he was suffering from a migraine,especially when he started throwing up.He threw up some duiring the night due to the pain,but feals a little better today.His head still hurts but hes not crying.This was the first bacterial infection hes gotten since diagnoses.I have taken him to his ped a few times only to be told he doesnt look sick and the pred makes it hard to diagnose and his labs are so screwed up labwork wouldnot tell him anything.If only he could have seen him yesterday.I had to carry him for the first time since his pred got bumped up.I dont know how much he has gained,but I could feal it.When they weighed him they gave it in Kilos and I didnt even ask to translate,didnt want to know.The good news is is back down to 7.5mg pred and his Arthur is fine.He is supposed to go to 5mg friday and if we take things nice and slow mayby some of the weight will come off.I left out alot of stuff and this was still long.I hope everyone elses holiday is going better. Love becki and 4systemic Quote Link to comment Share on other sites More sharing options...
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