504 plans etc

[Guest guest]

Thank you to all who responded. I knew you could help. I talked to the counselor. She will email the teachers about the need for 2 sets of books. I need to set up an appt to set up the 504. I have to get a note from the doctor about PE they said. Her school has Blue/Gold days where they go to 3 classes a day for 100 minutes each. I need to make sure they give her time to stretch etc because it hurts to sit for too long. while giving her the Enbrel tonight I asked about her joints, she said her knees are hurting. She is down to 4mg Prednisone. She said she was going to up it to 5 mg not go down to 3mg because she doesn't feel good at less than 5mg. She seems to be understanding more what works and doesn't. So got to put a call in to the rheumy tomorrow. And set up an appointment with the school counselor too. Always something.

Thanks again for all the help.

e, mom to joe 15yo poly