Re: NSAIDS ???

August 9, 2002

Becki,

All NSAIDS are pretty much the same, but sometimes the kids don't have the same response to one as to another. For example, over the course of the summer we have tried to switch my daughter from motrin to naprosyn, as naprosyn is only twice a day. Unfortunately she has had stomach problems with it and even with zantac and tums we've had to lower the dose considerably to help the stomach. Well, the dose that her stomach can handle is too low for her pain to be relieved, so we've just made the decision-- with the rheumy-- to go back to motrin.

Is in a daycare, private school or public school? The policy of no meds makes no sense!! Have you spoken to the powers that be at school about this? Do they understand 's need for the motrin if he is to do well? Have you enlisted the help of the rheumatology team? There should be someone on staff who will intervene with the school on 's behalf. If the issue is that it is an over the counter med, the solution might be as simple as having the rheumy write a prescription and having that on the bottle.

Good luck.

Liz

NSAIDS ???

Hi gang,

I have a question to the group about NSAIDS.

Are all NSAIDS the same,Im not talking about 2 and tummy troubles Im talking about efficiancy and how powerful they are.Are some stronger than others?

takes over the counter Ibuprofin and he is maxed out on it.The problem is now that he will be attending preschool full days he needs to take his Motrin right after he leaves the cafeteria.The school system has a very strict policy about no antibiotics and no things like asprin or tylenol can be administered by school personel. has to take his 3x a day,so I cant wait until he gets home because it would put it to close to his evening dose.I know alot of your kids only take an NSAID once or twice a day.

has had no side effects from the Motrin,so in a way I dont want him switched,but if another Nsaid could help his left ankle more,that would be a big plus and I dont know if a letter from the rheumy explaining this is a critical part of treating JRA would help or not.Come on, I am not sending to school trying to cover up a fever,just want him to be able to move around all day.

Any input on NSAIDS or your experiances with OTC Ibuprofin and schools would be helpful.The first full day of school is Monday the 19.

Thanks a bunch

Becki and 4systemic

August 9, 2002

HI, Becki. My kids go to a private school and as such there is no school nurse. We have a Health room staffed by parents. I have worked there myself and I know we have the same policy. It does protect the school. I know it really doesn't make sense but in our lawsuit happy world.... Anyway, I have a suggestion. Could your dr write out a "prescription" of sorts saying that must take the medicine? They could keep the "prescription" with the bottle of Motrin in the locked cabinet wherever the meds are kept in his school. I think if they see something official from the dr they will allow it. At least in our school, we did. Or even perhaps a letter kept on file in the office. Just an idea, Michele

-----Original Message-----From: Allan Larson [mailto:alarson1@...] Sent: Friday, August 09, 2002 1:03 PM Subject: NSAIDS ???

Hi gang,

I have a question to the group about NSAIDS.

Are all NSAIDS the same,Im not talking about 2 and tummy troubles Im talking about efficiancy and how powerful they are.Are some stronger than others?

takes over the counter Ibuprofin and he is maxed out on it.The problem is now that he will be attending preschool full days he needs to take his Motrin right after he leaves the cafeteria.The school system has a very strict policy about no antibiotics and no things like asprin or tylenol can be administered by school personel. has to take his 3x a day,so I cant wait until he gets home because it would put it to close to his evening dose.I know alot of your kids only take an NSAID once or twice a day.

has had no side effects from the Motrin,so in a way I dont want him switched,but if another Nsaid could help his left ankle more,that would be a big plus and I dont know if a letter from the rheumy explaining this is a critical part of treating JRA would help or not.Come on, I am not sending to school trying to cover up a fever,just want him to be able to move around all day.

Any input on NSAIDS or your experiances with OTC Ibuprofin and schools would be helpful.The first full day of school is Monday the 19.

Thanks a bunch

Becki and 4systemic

August 9, 2002

Hi Becki,

Meagan used to take Motrin 3x a day until she started school. I

asked her Rhumey if she could give me something that lasted longer

and I wouldn't have to give it to her in the middle of the day. She

started on Naproxen 2x a day. (I think you can only give every 12

hrs.) Once in the morning and once before bed. This always worked

for us. We had to quit Naproxen because she got a kidney stone and

they put her on Vioxx, which is supposedly easier on the kidneys.

This has worked just as well as the Naproxen. Hope this help. Good

luck with the school. Hugs. Becky (Meagan 8)

> Hi gang,

> I have a question to the group about NSAIDS.

> Are all NSAIDS the same,Im not talking about 2 and tummy

troubles Im talking about efficiancy and how powerful they are.Are

some stronger than others?

> takes over the counter Ibuprofin and he is maxed out on

it.The problem is now that he will be attending preschool full days

he needs to take his Motrin right after he leaves the cafeteria.The

school system has a very strict policy about no antibiotics and no

things like asprin or tylenol can be administered by school

personel. has to take his 3x a day,so I cant wait until he gets

home because it would put it to close to his evening dose.I know alot

of your kids only take an NSAID once or twice a day.

> has had no side effects from the Motrin,so in a way I dont

want him switched,but if another Nsaid could help his left ankle

more,that would be a big plus and I dont know if a letter from the

rheumy explaining this is a critical part of treating JRA would help

or not.Come on, I am not sending to school trying to cover up a

fever,just want him to be able to move around all day.

> Any input on NSAIDS or your experiances with OTC Ibuprofin and

schools would be helpful.The first full day of school is Monday the

19.

> Thanks a bunch

> Becki and 4systemic

August 9, 2002

Adam takes Vioxx 12.5 mg once a day. So I give it to him in the morning and he is good to go. Adam is in 4th grade and our school has a school nurse who is just great! If he has pain during the day she will call me and usually as long as it is after noon she will give him an extra dose of Vioxx to get him through the day. That usually doesn't happen to often Maybe you should check into some of the other NSAIDS with your rheumy so he doesn't have to take medicine 3X a day. Starting school is a big step. When Adam was in pre-school and he had pain it was so hard to resist not going down and bringing him home, but the nurse reassured me to leave him there and let him figure out as much as he could on his own how to deal with his pain his own way. At that age it is also important not to relay the message to the kids if they have pain they get to go home! It was funny when he was younger he didn't want to tell kids he had arthritis but about 2nd grade he asked me to go to his class and talk to the kids because he was tired of answering all their questions all the time. So I did. The nurse was present and the guidance counselor and I got up and talked for about an hour. I got coloring books from the Arthritis Foundation which they have available and put them in goodie bags with some treats, it turned out to be a party. It went really well... I even had parents call me at home and said arthritis was the topic of decision at their dinner table that night and they wanted to know more. Now I do it every year in his class, the key is to give out treats!!! Hope this helps.

V

NSAIDS ???

Hi gang,

I have a question to the group about NSAIDS.

Are all NSAIDS the same,Im not talking about 2 and tummy troubles Im talking about efficiancy and how powerful they are.Are some stronger than others?

takes over the counter Ibuprofin and he is maxed out on it.The problem is now that he will be attending preschool full days he needs to take his Motrin right after he leaves the cafeteria.The school system has a very strict policy about no antibiotics and no things like asprin or tylenol can be administered by school personel. has to take his 3x a day,so I cant wait until he gets home because it would put it to close to his evening dose.I know alot of your kids only take an NSAID once or twice a day.

has had no side effects from the Motrin,so in a way I dont want him switched,but if another Nsaid could help his left ankle more,that would be a big plus and I dont know if a letter from the rheumy explaining this is a critical part of treating JRA would help or not.Come on, I am not sending to school trying to cover up a fever,just want him to be able to move around all day.

Any input on NSAIDS or your experiances with OTC Ibuprofin and schools would be helpful.The first full day of school is Monday the 19.

Thanks a bunch

Becki and 4systemic

August 9, 2002

Hi ,

I will keep that in mind.Last year all we could do was get him in special ed due to health imparement.This year we are hoping for there regular program,so there may be questions from the other kids,since they have no medical problems.I think what you did was a great idea,especially the coloring books and treat bags.Can you just call your local chapter and have these mailed to you.I also want the student pamplet and the one to help the teacher explain to the class what is wrong.