Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Thanks ny for sharing! I am on week 7 of Kineret and also having good results. It is interesting that my other meds are the same as yours (20 mg of mtx and 5 of prednisone). I have been able to cut out the NSAID entirely and will soon be done with Arava. I do hope others will also try this - especially with the enbrel shortage. This may be one of those times when " things happen for a reason. " I was happy enough with the enbrel that I wouldn't have switched to Kineret except that enbrel was so hard to get! To better health for us all! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 . That is great that you have gotten such a good responce and I am so glad the injection site reaction is over.I remember how painful it was for you in the beginning.I hope things just keep getting better.Take care. Becki and 3systemic Rainey wrote: > Hi Friends, > > It has now been 12 weeks since I started Anakinra / Kineret. The results > have been truly amazing. I didn't want to write updates weekly because I > knew there would be ups and downs, but really after 12 weeks - it has been > great. > > For starters 90% good days now reign!!!! And the 10% which are not so good > are just down to over doing it!!! I have been away to Gran Canaria on > holiday - I walked for miles along beeches and hill walks. I am back > exercising and doing weights. I can now do some press ups, lift a pot of > potatoes, cut the lawn, wash the car, get up and down the stairs properly > and have a good nights sleep. > > Driving is more comfortable and as I build up my muscle again, I see daily > improvements in all aspects of life. > > Flares still come and go, but the drug really dampens them down so much so > they are pretty insignificant. The sweats are are the tell tale sign of a > flare - the smell, dampness and heat - but as for joints - they are much > improved - swelling is confined to a little round my wrists and ankles - but > this could be due also to the increased levels of activity. > > Injections every day could be tolerated if this is the long term results - > site reactions have gone totally now and the only down side if finding a > spot I ain't injected b4!!!!! > > I have stuck to a low fat diet - high protein and fibre and have also > started to loose weight - down almost 1 stone in 3 months. I feel more > comfortable overall and think I may have found the right cocktail of drugs - > 20mg MTX, 7.5mg / 5.0mg Steroids daily & Anakinra daily!!! I take vitamin, > calcium and a heap of other 'good for you' drugs to help with energy levels > and fight off baddies!!!!! > > I hope others get to try this wonder drug and have all the benefits and more > which I have had. Here's to more medical breakthroughs!! > > Thanks for all your support, > > Jonny > > Note: The information in this email may be confidential and legally > privileged. If you are not the intended recipient, you must not read, use > or disseminate that information. Although this email and any attachments > are believed to be free of any virus, or any other defect which might affect > any computer or IT system into which they are received and opened, it is the > responsibility of the recipient to ensure that they are virus free and no > responsibility is accepted by dotdot Marketing for any loss or damage > arising in any way from receipt or use thereof. > > Contact Details: > Republic of Ireland: 1890-DOTDOT (368368) > www.dotdotmarketing.com > www.dotdotwebdesign.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Hi ny, Okay then, you are the other one taking the Kineret. Wowzers! It sure sounds as if the Kineret is doing what it was intended to. You sound so much improved from *before* the Kineret days. Thank you for letting us know how you are doing! Keep up the good work, and check in with your progress from time to time. I had a " feeling " about this drug the first time I read the name. Live, and be happy ny! ~~tricia~~ -- Anakinra / Kineret Hi Friends, It has now been 12 weeks since I started Anakinra / Kineret. The results have been truly amazing. I didn't want to write updates weekly because I knew there would be ups and downs, but really after 12 weeks - it has been great. For starters 90% good days now reign!!!! And the 10% which are not so good are just down to over doing it!!! I have been away to Gran Canaria on holiday - I walked for miles along beeches and hill walks. I am back exercising and doing weights. I can now do some press ups, lift a pot of potatoes, cut the lawn, wash the car, get up and down the stairs properly and have a good nights sleep. Driving is more comfortable and as I build up my muscle again, I see daily improvements in all aspects of life. Flares still come and go, but the drug really dampens them down so much so they are pretty insignificant. The sweats are are the tell tale sign of a flare - the smell, dampness and heat - but as for joints - they are much improved - swelling is confined to a little round my wrists and ankles - but this could be due also to the increased levels of activity. Injections every day could be tolerated if this is the long term results - site reactions have gone totally now and the only down side if finding a spot I ain't injected b4!!!!! I have stuck to a low fat diet - high protein and fibre and have also started to loose weight - down almost 1 stone in 3 months. I feel more comfortable overall and think I may have found the right cocktail of drugs - 20mg MTX, 7.5mg / 5.0mg Steroids daily & Anakinra daily!!! I take vitamin, calcium and a heap of other 'good for you' drugs to help with energy levels and fight off baddies!!!!! I hope others get to try this wonder drug and have all the benefits and more which I have had. Here's to more medical breakthroughs!! Thanks for all your support, Jonny Note: The information in this email may be confidential and legally privileged. If you are not the intended recipient, you must not read, use or disseminate that information. Although this email and any attachments are believed to be free of any virus, or any other defect which might affect any computer or IT system into which they are received and opened, it is the responsibility of the recipient to ensure that they are virus free and no responsibility is accepted by dotdot Marketing for any loss or damage arising in any way from receipt or use thereof. Contact Details: Republic of Ireland: 1890-DOTDOT (368368) www.dotdotmarketing.com www.dotdotwebdesign.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Congratulations Jonny, That is great news. I am always so happy to hear when someone gets this disease under control. I'm so glad that the Kineret is working for you. Wishing you more and more pain free days. Ellie and Riley 4 poly " Rainey " <jonr@...> wrote: > Hi Friends, > >It has now been 12 weeks since I started Anakinra / Kineret.nbsp; The results >have been truly amazing.nbsp; I didn't want to write updates weekly because I >knew there would be ups and downs, but really after 12 weeks - it has been >great. > >For starters 90% good days now reign!!!!nbsp; And the 10% which are not so good >are just down to over doing it!!!nbsp; I have been away to Gran Canaria on >holiday - I walked for miles along beeches and hill walks.nbsp; I am back >exercising and doing weights.nbsp; I can now do some press ups, lift a pot of >potatoes, cut the lawn, wash the car, get up and down the stairs properly >and have a good nights sleep. > >Driving is more comfortable and as I build up my muscle again, I see daily >improvements in all aspects of life. > >Flares still come and go, but the drug really dampens them down so much so >they are pretty insignificant.nbsp; The sweats are are the tell tale sign of a >flare - the smell, dampness and heat - but as for joints - they are much >improved - swelling is confined to a little round my wrists and ankles - but >this could be due also to the increased levels of activity. > >Injections every day could be tolerated if this is the long term results - >site reactions have gone totally now and the only down side if finding a >spot I ain't injected b4!!!!! > >I have stuck to a low fat diet - high protein and fibre and have also >started to loose weight - down almost 1 stone in 3 months.nbsp; I feel more >comfortable overall and think I may have found the right cocktail of drugs - >20mg MTX, 7.5mg / 5.0mg Steroids daily amp; Anakinra daily!!!nbsp; I take vitamin, >calcium and a heap of other 'good for you' drugs to help with energy levels >and fight off baddies!!!!! > >I hope others get to try this wonder drug and have all the benefits and more >which I have had.nbsp; Here's to more medical breakthroughs!! > >Thanks for all your support, > >Jonny > >Note:nbsp; The information in this email may be confidential and legally >privileged.nbsp; If you are not the intended recipient, you must not read, use >or disseminate that information.nbsp; Although this email and any attachments >are believed to be free of any virus, or any other defect which might affect >any computer or IT system into which they are received and opened, it is the >responsibility of the recipient to ensure that they are virus free and no >responsibility is accepted by dotdot Marketing for any loss or damage >arising in any way from receipt or use thereof. > >Contact Details: >Republic of Ireland: 1890-DOTDOT (368368) >www.dotdotmarketing.com >www.dotdotwebdesign.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 that is really great that kineret works for ya but wow im not used to all the drugs you have to take, something i might have to get used to, if my doc starts me on one of the bigger drugs, but i don't care if it is a daily injection as long as i feel good. well just keep up informed of this kineret. Brent#2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Hi Jonny, Wow! That message really made my day. I am so happy for you, Jonny, to be feeling so much better since starting the new treatment. It sounds like you have been appreciating lots of new freedoms, since the benefits began. That's great. I do hope it helps keep those flares at bay and that you continue to feel the positive effects for a long time to come. One question though: How much is a stone? Know that we are very happy for you : ) Georgina ----- Original Message ----- From: Rainey Hi Friends, It has now been 12 weeks since I started Anakinra / Kineret. The results have been truly amazing. I didn't want to write updates weekly because I knew there would be ups and downs, but really after 12 weeks - it has been great. For starters 90% good days now reign!!!! And the 10% which are not so good are just down to over doing it!!! I have been away to Gran Canaria on holiday - I walked for miles along beeches and hill walks. I am back exercising and doing weights. I can now do some press ups, lift a pot of potatoes, cut the lawn, wash the car, get up and down the stairs properly and have a good nights sleep. Driving is more comfortable and as I build up my muscle again, I see daily improvements in all aspects of life. Flares still come and go, but the drug really dampens them down so much so they are pretty insignificant. The sweats are are the tell tale sign of a flare - the smell, dampness and heat - but as for joints - they are much improved - swelling is confined to a little round my wrists and ankles - but this could be due also to the increased levels of activity. Injections every day could be tolerated if this is the long term results - site reactions have gone totally now and the only down side if finding a spot I ain't injected b4!!!!! I have stuck to a low fat diet - high protein and fibre and have also started to loose weight - down almost 1 stone in 3 months. I feel more comfortable overall and think I may have found the right cocktail of drugs - 20mg MTX, 7.5mg / 5.0mg Steroids daily & Anakinra daily!!! I take vitamin, calcium and a heap of other 'good for you' drugs to help with energy levels and fight off baddies!!!!! I hope others get to try this wonder drug and have all the benefits and more which I have had. Here's to more medical breakthroughs!! Thanks for all your support, Jonny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Just wanted to second the congratulations, Jonny! It sounds like you're doing great and taking great care to get your strength and health back. I am really really glad for you! Lynn From: " Georgina " <gmckin@...> Reply- Date: Thu, 18 Jul 2002 16:23:53 -1000 < > Subject: Re: Anakinra / Kineret Hi Jonny, Wow! That message really made my day. I am so happy for you, Jonny, to be feeling so much better since starting the new treatment. It sounds like you have been appreciating lots of new freedoms, since the benefits began. That's great. I do hope it helps keep those flares at bay and that you continue to feel the positive effects for a long time to come. One question though: How much is a stone? Know that we are very happy for you : ) Georgina ----- Original Message ----- From: Rainey Hi Friends, It has now been 12 weeks since I started Anakinra / Kineret. The results have been truly amazing. I didn't want to write updates weekly because I knew there would be ups and downs, but really after 12 weeks - it has been great. For starters 90% good days now reign!!!! And the 10% which are not so good are just down to over doing it!!! I have been away to Gran Canaria on holiday - I walked for miles along beeches and hill walks. I am back exercising and doing weights. I can now do some press ups, lift a pot of potatoes, cut the lawn, wash the car, get up and down the stairs properly and have a good nights sleep. Driving is more comfortable and as I build up my muscle again, I see daily improvements in all aspects of life. Flares still come and go, but the drug really dampens them down so much so they are pretty insignificant. The sweats are are the tell tale sign of a flare - the smell, dampness and heat - but as for joints - they are much improved - swelling is confined to a little round my wrists and ankles - but this could be due also to the increased levels of activity. Injections every day could be tolerated if this is the long term results - site reactions have gone totally now and the only down side if finding a spot I ain't injected b4!!!!! I have stuck to a low fat diet - high protein and fibre and have also started to loose weight - down almost 1 stone in 3 months. I feel more comfortable overall and think I may have found the right cocktail of drugs - 20mg MTX, 7.5mg / 5.0mg Steroids daily & Anakinra daily!!! I take vitamin, calcium and a heap of other 'good for you' drugs to help with energy levels and fight off baddies!!!!! I hope others get to try this wonder drug and have all the benefits and more which I have had. Here's to more medical breakthroughs!! Thanks for all your support, Jonny Quote Link to comment Share on other sites More sharing options...
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