Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I think it is very important that we hear both the good and the bad. How else can we make informed decisions? did your first revision not include osteotomies? > > > > > > it is good to be hearing from so many people who are happy with > their revisions. It seemed like 'the other group' had an awful lot > of negative posts and people who ended up with no reduction in pain, > more pain, or applying for permanent disability. I found those > stories to be very frightening! > > > > Now I am wondering if there is an objective study of revision > patients and how many have had positive outcomes and how many people > wish they had not had revisions? Does this group tend to attract > the positive people? Are the people with negative outcomes not able > to sit long enough to correspond with us (or maybe they are too > depressed)? > > > > After hearing the positive stories, I am slightly less inclined > to say NO WAY! to more surgery (but I am in no way ready) > > > > Now, if I could figure out a way to spend my recovery period in > the Bahamas . . . > > > > > > > > > > > > --------------------------------- > > > > Find Great Deals on Holiday Gifts at > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Dear and Sharon, My first revision (after my decompression) was a success for about five months, but then I had an unseen complication, my Harrington rod fusion mass cracked above L-3, not an area that was addressed during my revision. Why it cracked no one is sure, maybe the pure strength of my revised area put undue pressure on that area. While this was a complication, and no one wants to have more surgery, I just moved on to the next surgery knowing it was going to get fixed. I guess I had blind faith. For the second revision they took out all my titanium hardware and put in Stainless steel, because of the past problem, and decided to go all the way up my spine, I now have twenty some odd screws, three rods, and bolts. I really can't see how anything is going to move now. My husband teased Dr. Kumar and said maybe he should have a structural engineer look at the whole plan. So for me, complications were something that happened, now lets move on and fix it. I KNEW Kumar would fix me, he was as devoted to getting me fixed as I was to getting fixed. No one knows if everything will come out perfectly, but having complications and having a second very successful revision makes me all the more thankful for what these doc's can do. I know I appreciate my good outcome even more for what I went through, a great blessing. Colorado Springs [ ] Re: Digest Number 221 > > >> Hello SB - >> >> You are so right in describing how nice it is to hear so many >> positive revision outcomes.....I too left the " other group " around >> the same time as most did, and am in total agreement that this group >> is much more informative, congenial, and supportive. Unfortunatly I >> believe I would fit into the group you speak of as having had >> negative results from revision surgery resulting in all that you >> list - no reduction of pain, more pain, and (to my dismay) going on >> permanent disability (although with that group I refrained from >> posting any 'negative' posts, just as I do in this group). As to >> your other questions, even with my outcome I will not say I regret >> having had revision surgery - it was something that needed to be >> done. And I would think that this group does attract positive >> people by the simple fact that all of its members are considerable >> upbeat and positive themselves. And no, it's not that I am not able >> to sit long enough to coorespond - I read every single post every >> day - and no, I'm also not too depressed. I'm so thankful for >> finding all of you - without this group I probably would have just >> accepted my problems and done my best to get by. But thanks to you >> all, I've been to Texas to consult with Dr. LaGrone, and also to San >> Francisco to see Dr. Hu, and am scheduled for an osteotomy February >> 28 at UCSF. With any luck, this time I will have good results and >> will be more able to contribute positive posts on here. For I most >> definately do not want to be one of those stories you found to be >> very frightening.....which is the main reason I seldom post. >> Peace - >> ~CA ~ >> >> >>> >>> >>> it is good to be hearing from so many people who are happy with >> their revisions. It seemed like 'the other group' had an awful lot >> of negative posts and people who ended up with no reduction in pain, >> more pain, or applying for permanent disability. I found those >> stories to be very frightening! >>> >>> Now I am wondering if there is an objective study of revision >> patients and how many have had positive outcomes and how many people >> wish they had not had revisions? Does this group tend to attract >> the positive people? Are the people with negative outcomes not able >> to sit long enough to correspond with us (or maybe they are too >> depressed)? >>> >>> After hearing the positive stories, I am slightly less inclined >> to say NO WAY! to more surgery (but I am in no way ready) >>> >>> Now, if I could figure out a way to spend my recovery period in >> the Bahamas . . . >>> >>> >>> >>> >>> >>> --------------------------------- >>> >>> Find Great Deals on Holiday Gifts at >>> >> >> >> >> >> >> >> >> scoliosis veterans * flatback sufferers * revision candidates >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Sharon - thank you for your well wishes! Just to clarify though, this upcoming surgery will be revision #3. And 3 feels like a pretty lucky number to me! ~CA ~ > >> > >> > >> it is good to be hearing from so many people who are happy with > > their revisions. It seemed like 'the other group' had an awful lot > > of negative posts and people who ended up with no reduction in pain, > > more pain, or applying for permanent disability. I found those > > stories to be very frightening! > >> > >> Now I am wondering if there is an objective study of revision > > patients and how many have had positive outcomes and how many people > > wish they had not had revisions? Does this group tend to attract > > the positive people? Are the people with negative outcomes not able > > to sit long enough to correspond with us (or maybe they are too > > depressed)? > >> > >> After hearing the positive stories, I am slightly less inclined > > to say NO WAY! to more surgery (but I am in no way ready) > >> > >> Now, if I could figure out a way to spend my recovery period in > > the Bahamas . . . > >> > >> > >> > >> > >> > >> --------------------------------- > >> > >> Find Great Deals on Holiday Gifts at > >> > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Correct SB - Revision #1 I was fused L-1 to the sacrum, anterior/posterior all in the same procedure. And #2 was removal of all the hardware and reinsertion of new, 5 months afterwards. And no osteotomies were done either time. It's in Member Stories, along with pictures. I'm very hopeful that this next surgery will go much smoother and make for an easier recovery! ~~ > > > > > > > > > it is good to be hearing from so many people who are happy with > > their revisions. It seemed like 'the other group' had an awful > lot > > of negative posts and people who ended up with no reduction in > pain, > > more pain, or applying for permanent disability. I found those > > stories to be very frightening! > > > > > > Now I am wondering if there is an objective study of revision > > patients and how many have had positive outcomes and how many > people > > wish they had not had revisions? Does this group tend to attract > > the positive people? Are the people with negative outcomes not > able > > to sit long enough to correspond with us (or maybe they are too > > depressed)? > > > > > > After hearing the positive stories, I am slightly less > inclined > > to say NO WAY! to more surgery (but I am in no way ready) > > > > > > Now, if I could figure out a way to spend my recovery period > in > > the Bahamas . . . > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > > Find Great Deals on Holiday Gifts at > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Oh, my! Well, then this one MUST be your last. :^) [ ] Re: Digest Number 221 > Sharon - thank you for your well wishes! Just to clarify though, > this upcoming surgery will be revision #3. And 3 feels like a > pretty lucky number to me! > ~CA ~ > > >> >> >> >> >> >> it is good to be hearing from so many people who are happy with >> > their revisions. It seemed like 'the other group' had an awful > lot >> > of negative posts and people who ended up with no reduction in > pain, >> > more pain, or applying for permanent disability. I found those >> > stories to be very frightening! >> >> >> >> Now I am wondering if there is an objective study of revision >> > patients and how many have had positive outcomes and how many > people >> > wish they had not had revisions? Does this group tend to attract >> > the positive people? Are the people with negative outcomes not > able >> > to sit long enough to correspond with us (or maybe they are too >> > depressed)? >> >> >> >> After hearing the positive stories, I am slightly less > inclined >> > to say NO WAY! to more surgery (but I am in no way ready) >> >> >> >> Now, if I could figure out a way to spend my recovery period > in >> > the Bahamas . . . >> >> >> >> >> >> >> >> >> >> >> >> --------------------------------- >> >> >> >> Find Great Deals on Holiday Gifts at >> >> >> > >> > >> > >> > >> > >> > >> > >> > scoliosis veterans * flatback sufferers * revision candidates >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 , this group practically IS the other one. The main difference now is that we don't have one individual trying to govern the rest of us. I feel this group is evidence that most people can interact with others reasonably and courteously, as long as there is no need for fear of censure or ridicule. Look how much posting picked up as soon as the new group was formed! It's practically a full-time job to keep up with, LOL. Sharon [ ] Re: Digest Number 221 > Hello SB - > > You are so right in describing how nice it is to hear so many > positive revision outcomes.....I too left the " other group " around > the same time as most did, and am in total agreement that this group > is much more informative, congenial, and supportive. Unfortunatly I > believe I would fit into the group you speak of as having had > negative results from revision surgery resulting in all that you > list - no reduction of pain, more pain, and (to my dismay) going on > permanent disability (although with that group I refrained from > posting any 'negative' posts, just as I do in this group). As to > your other questions, even with my outcome I will not say I regret > having had revision surgery - it was something that needed to be > done. And I would think that this group does attract positive > people by the simple fact that all of its members are considerable > upbeat and positive themselves. And no, it's not that I am not able > to sit long enough to coorespond - I read every single post every > day - and no, I'm also not too depressed. I'm so thankful for > finding all of you - without this group I probably would have just > accepted my problems and done my best to get by. But thanks to you > all, I've been to Texas to consult with Dr. LaGrone, and also to San > Francisco to see Dr. Hu, and am scheduled for an osteotomy February > 28 at UCSF. With any luck, this time I will have good results and > will be more able to contribute positive posts on here. For I most > definately do not want to be one of those stories you found to be > very frightening.....which is the main reason I seldom post. > Peace - > ~CA ~ > > >> >> >> it is good to be hearing from so many people who are happy with > their revisions. It seemed like 'the other group' had an awful lot > of negative posts and people who ended up with no reduction in pain, > more pain, or applying for permanent disability. I found those > stories to be very frightening! >> >> Now I am wondering if there is an objective study of revision > patients and how many have had positive outcomes and how many people > wish they had not had revisions? Does this group tend to attract > the positive people? Are the people with negative outcomes not able > to sit long enough to correspond with us (or maybe they are too > depressed)? >> >> After hearing the positive stories, I am slightly less inclined > to say NO WAY! to more surgery (but I am in no way ready) >> >> Now, if I could figure out a way to spend my recovery period in > the Bahamas . . . >> >> >> >> >> >> --------------------------------- >> >> Find Great Deals on Holiday Gifts at >> > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 -- , I think it is important to also know the reality of what can happen, not all revisions turn out positive..as stated in one of Racines emails, something like " this surgery can have many complications " . You should feel free to bitch if you want too. We should all be able to hear the good,bad and ugly,,ugly, like removing your guts..that is ugly stuff but ok to hear too!!,hopefully it is all good but this is not a perfect world....at least my world is not perfect. I hope you get great results next go around, if not still feel free to say what is on your mind....,PA - In , " " <Dawg@a...> wrote: > > Hello SB - > > You are so right in describing how nice it is to hear so many > positive revision outcomes.....I too left the " other group " around > the same time as most did, and am in total agreement that this group > is much more informative, congenial, and supportive. Unfortunatly I > believe I would fit into the group you speak of as having had > negative results from revision surgery resulting in all that you > list - no reduction of pain, more pain, and (to my dismay) going on > permanent disability (although with that group I refrained from > posting any 'negative' posts, just as I do in this group). As to > your other questions, even with my outcome I will not say I regret > having had revision surgery - it was something that needed to be > done. And I would think that this group does attract positive > people by the simple fact that all of its members are considerable > upbeat and positive themselves. And no, it's not that I am not able > to sit long enough to coorespond - I read every single post every > day - and no, I'm also not too depressed. I'm so thankful for > finding all of you - without this group I probably would have just > accepted my problems and done my best to get by. But thanks to you > all, I've been to Texas to consult with Dr. LaGrone, and also to San > Francisco to see Dr. Hu, and am scheduled for an osteotomy February > 28 at UCSF. With any luck, this time I will have good results and > will be more able to contribute positive posts on here. For I most > definately do not want to be one of those stories you found to be > very frightening.....which is the main reason I seldom post. > Peace - > ~CA ~ > > > > > > > > it is good to be hearing from so many people who are happy with > their revisions. It seemed like 'the other group' had an awful lot > of negative posts and people who ended up with no reduction in pain, > more pain, or applying for permanent disability. I found those > stories to be very frightening! > > > > Now I am wondering if there is an objective study of revision > patients and how many have had positive outcomes and how many people > wish they had not had revisions? Does this group tend to attract > the positive people? Are the people with negative outcomes not able > to sit long enough to correspond with us (or maybe they are too > depressed)? > > > > After hearing the positive stories, I am slightly less inclined > to say NO WAY! to more surgery (but I am in no way ready) > > > > Now, if I could figure out a way to spend my recovery period in > the Bahamas . . . > > > > > > > > > > > > --------------------------------- > > > > Find Great Deals on Holiday Gifts at > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 You're not missing much, . :^) It's an older flatback forum on . Sharon [ ] Re: Digest Number 221 >> >> >> > Hello SB - >> > >> > You are so right in describing how nice it is to hear so many >> > positive revision outcomes.....I too left the " other group " around >> > the same time as most did, and am in total agreement that this > group >> > is much more informative, congenial, and supportive. > Unfortunatly I >> > believe I would fit into the group you speak of as having had >> > negative results from revision surgery resulting in all that you >> > list - no reduction of pain, more pain, and (to my dismay) going > on >> > permanent disability (although with that group I refrained from >> > posting any 'negative' posts, just as I do in this group). As to >> > your other questions, even with my outcome I will not say I regret >> > having had revision surgery - it was something that needed to be >> > done. And I would think that this group does attract positive >> > people by the simple fact that all of its members are considerable >> > upbeat and positive themselves. And no, it's not that I am not > able >> > to sit long enough to coorespond - I read every single post every >> > day - and no, I'm also not too depressed. I'm so thankful for >> > finding all of you - without this group I probably would have just >> > accepted my problems and done my best to get by. But thanks to > you >> > all, I've been to Texas to consult with Dr. LaGrone, and also to > San >> > Francisco to see Dr. Hu, and am scheduled for an osteotomy > February >> > 28 at UCSF. With any luck, this time I will have good results and >> > will be more able to contribute positive posts on here. For I most >> > definately do not want to be one of those stories you found to be >> > very frightening.....which is the main reason I seldom post. >> > Peace - >> > ~CA ~ >> > >> > >> >> >> >> >> >> it is good to be hearing from so many people who are happy with >> > their revisions. It seemed like 'the other group' had an awful > lot >> > of negative posts and people who ended up with no reduction in > pain, >> > more pain, or applying for permanent disability. I found those >> > stories to be very frightening! >> >> >> >> Now I am wondering if there is an objective study of revision >> > patients and how many have had positive outcomes and how many > people >> > wish they had not had revisions? Does this group tend to attract >> > the positive people? Are the people with negative outcomes not > able >> > to sit long enough to correspond with us (or maybe they are too >> > depressed)? >> >> >> >> After hearing the positive stories, I am slightly less inclined >> > to say NO WAY! to more surgery (but I am in no way ready) >> >> >> >> Now, if I could figure out a way to spend my recovery period in >> > the Bahamas . . . >> >> >> >> >> >> >> >> >> >> >> >> --------------------------------- >> >> >> >> Find Great Deals on Holiday Gifts at >> >> >> > >> > >> > >> > >> > >> > >> > >> > scoliosis veterans * flatback sufferers * revision candidates >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 , I really should re-think that flippant answer. There was a good deal of hurt at the time of the split-off. The archives of the old forum contain a wealth of information and history. Here's the link: /messages Sharon [ ] Re: Digest Number 221 >> >> >> > Hello SB - >> > >> > You are so right in describing how nice it is to hear so many >> > positive revision outcomes.....I too left the " other group " around >> > the same time as most did, and am in total agreement that this > group >> > is much more informative, congenial, and supportive. > Unfortunatly I >> > believe I would fit into the group you speak of as having had >> > negative results from revision surgery resulting in all that you >> > list - no reduction of pain, more pain, and (to my dismay) going > on >> > permanent disability (although with that group I refrained from >> > posting any 'negative' posts, just as I do in this group). As to >> > your other questions, even with my outcome I will not say I regret >> > having had revision surgery - it was something that needed to be >> > done. And I would think that this group does attract positive >> > people by the simple fact that all of its members are considerable >> > upbeat and positive themselves. And no, it's not that I am not > able >> > to sit long enough to coorespond - I read every single post every >> > day - and no, I'm also not too depressed. I'm so thankful for >> > finding all of you - without this group I probably would have just >> > accepted my problems and done my best to get by. But thanks to > you >> > all, I've been to Texas to consult with Dr. LaGrone, and also to > San >> > Francisco to see Dr. Hu, and am scheduled for an osteotomy > February >> > 28 at UCSF. With any luck, this time I will have good results and >> > will be more able to contribute positive posts on here. For I most >> > definately do not want to be one of those stories you found to be >> > very frightening.....which is the main reason I seldom post. >> > Peace - >> > ~CA ~ >> > >> > >> >> >> >> >> >> it is good to be hearing from so many people who are happy with >> > their revisions. It seemed like 'the other group' had an awful > lot >> > of negative posts and people who ended up with no reduction in > pain, >> > more pain, or applying for permanent disability. I found those >> > stories to be very frightening! >> >> >> >> Now I am wondering if there is an objective study of revision >> > patients and how many have had positive outcomes and how many > people >> > wish they had not had revisions? Does this group tend to attract >> > the positive people? Are the people with negative outcomes not > able >> > to sit long enough to correspond with us (or maybe they are too >> > depressed)? >> >> >> >> After hearing the positive stories, I am slightly less inclined >> > to say NO WAY! to more surgery (but I am in no way ready) >> >> >> >> Now, if I could figure out a way to spend my recovery period in >> > the Bahamas . . . >> >> >> >> >> >> >> >> >> >> >> >> --------------------------------- >> >> >> >> Find Great Deals on Holiday Gifts at >> >> >> > >> > >> > >> > >> > >> > >> > >> > scoliosis veterans * flatback sufferers * revision candidates >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 How right you are Sharon! Being with this group from day one, the only people that I " knew " were transplants from the other. And you're not kidding about the amount of mail generated now! There were never this many posts from as many members - it seemed like the only response to any posts were from the moderator. So the improved atmosphere and participation has definately not gone unnoticed. > >> > >> > >> it is good to be hearing from so many people who are happy with > > their revisions. It seemed like 'the other group' had an awful lot > > of negative posts and people who ended up with no reduction in pain, > > more pain, or applying for permanent disability. I found those > > stories to be very frightening! > >> > >> Now I am wondering if there is an objective study of revision > > patients and how many have had positive outcomes and how many people > > wish they had not had revisions? Does this group tend to attract > > the positive people? Are the people with negative outcomes not able > > to sit long enough to correspond with us (or maybe they are too > > depressed)? > >> > >> After hearing the positive stories, I am slightly less inclined > > to say NO WAY! to more surgery (but I am in no way ready) > >> > >> Now, if I could figure out a way to spend my recovery period in > > the Bahamas . . . > >> > >> > >> > >> > >> > >> --------------------------------- > >> > >> Find Great Deals on Holiday Gifts at > >> > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 What is the purpose of this group? Bonnie Re: [ ] Digest Number 221 it is good to be hearing from so many people who are happy with their revisions. It seemed like 'the other group' had an awful lot of negative posts and people who ended up with no reduction in pain, more pain, or applying for permanent disability. I found those stories to be very frightening! Now I am wondering if there is an objective study of revision patients and how many have had positive outcomes and how many people wish they had not had revisions? Does this group tend to attract the positive people? Are the people with negative outcomes not able to sit long enough to correspond with us (or maybe they are too depressed)? After hearing the positive stories, I am slightly less inclined to say NO WAY! to more surgery (but I am in no way ready) Now, if I could figure out a way to spend my recovery period in the Bahamas . . . Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 --- No, that is fine, I was unaware that there was another group, I just joined in Aug 2005 or Sept, I can't remember, I am faily new. I just started having issues this past June 2005, I was very lucky.,PA In , " Sharon Green " <sharon.green18@v...> wrote: > > , I really should re-think that flippant answer. There was a good deal > of hurt at the time of the split-off. > > The archives of the old forum contain a wealth of information and history. > > Here's the link: > > /messages > > Sharon > > > [ ] Re: Digest Number 221 > >> > >> > >> > Hello SB - > >> > > >> > You are so right in describing how nice it is to hear so many > >> > positive revision outcomes.....I too left the " other group " around > >> > the same time as most did, and am in total agreement that this > > group > >> > is much more informative, congenial, and supportive. > > Unfortunatly I > >> > believe I would fit into the group you speak of as having had > >> > negative results from revision surgery resulting in all that you > >> > list - no reduction of pain, more pain, and (to my dismay) going > > on > >> > permanent disability (although with that group I refrained from > >> > posting any 'negative' posts, just as I do in this group). As to > >> > your other questions, even with my outcome I will not say I regret > >> > having had revision surgery - it was something that needed to be > >> > done. And I would think that this group does attract positive > >> > people by the simple fact that all of its members are considerable > >> > upbeat and positive themselves. And no, it's not that I am not > > able > >> > to sit long enough to coorespond - I read every single post every > >> > day - and no, I'm also not too depressed. I'm so thankful for > >> > finding all of you - without this group I probably would have just > >> > accepted my problems and done my best to get by. But thanks to > > you > >> > all, I've been to Texas to consult with Dr. LaGrone, and also to > > San > >> > Francisco to see Dr. Hu, and am scheduled for an osteotomy > > February > >> > 28 at UCSF. With any luck, this time I will have good results and > >> > will be more able to contribute positive posts on here. For I most > >> > definately do not want to be one of those stories you found to be > >> > very frightening.....which is the main reason I seldom post. > >> > Peace - > >> > ~CA ~ > >> > > >> > > >> >> > >> >> > >> >> it is good to be hearing from so many people who are happy with > >> > their revisions. It seemed like 'the other group' had an awful > > lot > >> > of negative posts and people who ended up with no reduction in > > pain, > >> > more pain, or applying for permanent disability. I found those > >> > stories to be very frightening! > >> >> > >> >> Now I am wondering if there is an objective study of revision > >> > patients and how many have had positive outcomes and how many > > people > >> > wish they had not had revisions? Does this group tend to attract > >> > the positive people? Are the people with negative outcomes not > > able > >> > to sit long enough to correspond with us (or maybe they are too > >> > depressed)? > >> >> > >> >> After hearing the positive stories, I am slightly less inclined > >> > to say NO WAY! to more surgery (but I am in no way ready) > >> >> > >> >> Now, if I could figure out a way to spend my recovery period in > >> > the Bahamas . . . > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> --------------------------------- > >> >> > >> >> Find Great Deals on Holiday Gifts at > >> >> > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > scoliosis veterans * flatback sufferers * revision candidates > >> > Quote Link to comment Share on other sites More sharing options...
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