Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Hi, sorry i forgot to put my name(laughs)i'm Angie i live in Las Vegas Nevada, and i believe i have poly but not sure. i have jra from the neck down in all my joints..thank you for responding to my post,i'm really on the shy side so i really dont know what to say....How is your daughter doing? good i hope! take care. Angie > Hi > since i didnt see a name hi > hi midnight dreamer > glad you are in the group i am Robbin have a daughter 15 with poly JRA > we live in Atlanta Ga > where do you live? what kind of JRA do you have? > Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 HI Angie, welcome to the group, we are glad to have you. I agree with everyone else here, you need to get a second opinion because I just dont understand your current doctors logic. My son is 7 and has severe poly (basically every joint also) and Anklosing spondilitis, and he is on Methotrexate 25 mg a week, that i give to him by injection. I have seen some improvement with this so, i really think you need to look into another rheumy. Tina (s mom) midnight_dreamer21 <midnight_dreamer21@...> wrote: Hi, sorry i forgot to put my name(laughs)i'm Angie i live in Las Vegas Nevada, and i believe i have poly but not sure. i have jra from the neck down in all my joints..thank you for responding to my post,i'm really on the shy side so i really dont know what to say....How is your daughter doing? good i hope! take care.Angie> Hi> since i didnt see a name hi > hi midnight dreamer > glad you are in the group i am Robbin have a daughter 15 with poly JRA> we live in Atlanta Ga > where do you live? what kind of JRA do you have?> Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 I know because if you have it from your neck down for that many years, I just don't see how she can even be moving at all. She should be paralized or something or unless she dosn't have that severe of a case. I think I have done asked Angie but What kind of symptoms are you having, Angie?? Jona7 mom of na 2 poly Norman Tina <jramom2002@...> wrote: HI Angie, welcome to the group, we are glad to have you. I agree with everyone else here, you need to get a second opinion because I just dont understand your current doctors logic. My son is 7 and has severe poly (basically every joint also) and Anklosing spondilitis, and he is on Methotrexate 25 mg a week, that i give to him by injection. I have seen some improvement with this so, i really think you need to look into another rheumy. Tina (s mom) midnight_dreamer21 <midnight_dreamer21@...> wrote: Hi, sorry i forgot to put my name(laughs)i'm Angie i live in Las Vegas Nevada, and i believe i have poly but not sure. i have jra from the neck down in all my joints..thank you for responding to my post,i'm really on the shy side so i really dont know what to say....How is your daughter doing? good i hope! take care.Angie> Hi> since i didnt see a name hi > hi midnight dreamer > glad you are in the group i am Robbin have a daughter 15 with poly JRA> we live in Atlanta Ga > where do you live? what kind of JRA do you have?> Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Hello Tina, how's doing on the Mtx, I've been on it now for nearly 3 months. I don't know that I feel any different, but then I'm only taking 12.5 mg a week. Although it would be hard to say if the Mtx is really making a difference, I'm also taking 25 mg of Vioxx and 375 mg of Naprasyn a day too. The combination of all three is making a difference,except during extreme weather flux. My major complaint is my neck right now. Well warm hugs for the little guy, from the old rusty limbs On Sat, 25 May 2002 22:12:21 -0700 (PDT) Norman Tina <jramom2002@...> writes: HI Angie, welcome to the group, we are glad to have you. I agree with everyone else here, you need to get a second opinion because I just dont understand your current doctors logic. My son is 7 and has severe poly (basically every joint also) and Anklosing spondilitis, and he is on Methotrexate 25 mg a week, that i give to him by injection. I have seen some improvement with this so, i really think you need to look into another rheumy. Tina (s mom) midnight_dreamer21 <midnight_dreamer21@...> wrote: Hi, sorry i forgot to put my name(laughs)i'm Angie i live in Las Vegas Nevada, and i believe i have poly but not sure. i have jra from the neck down in all my joints..thank you for responding to my post,i'm really on the shy side so i really dont know what to say....How is your daughter doing? good i hope! take care.Angie> Hi> since i didnt see a name hi > hi midnight dreamer > glad you are in the group i am Robbin have a daughter 15 with poly JRA> we live in Atlanta Ga > where do you live? what kind of JRA do you have?> Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Rusty, seems to be doing a little better pain wise, with the MTX, although I have noticed that his stomach pains are getting more intense, and he has more bouts of bad diarrhea at times too. I have also noticed his mood has changed a bit too, he seems to be crabbier!! LOL He also is tired alot. So I have a few things to discuss with his rheumy on the next visit. He also takes 25mg of Indocin in the morning and 75 mg at night, and 150mg a day of zantac, and, 1mg of Folic Acid. Then we have the Zofran for his bouts of nausea which works really well. I am glad you are feeling a bit better, i hope you continue to see improvement. Enjoy the nice warm weather we are getting!! (((((((((((((((((hugs)))))))))))))))) Tina and A Morse <dam755@...> wrote: Hello Tina, how's doing on the Mtx, I've been on it now for nearly 3 months. I don't know that I feel any different, but then I'm only taking 12.5 mg a week. Although it would be hard to say if the Mtx is really making a difference, I'm also taking 25 mg of Vioxx and 375 mg of Naprasyn a day too. The combination of all three is making a difference,except during extreme weather flux. My major complaint is my neck right now. Well warm hugs for the little guy, from the old rusty limbs On Sat, 25 May 2002 22:12:21 -0700 (PDT) Norman Tina <jramom2002@...> writes: HI Angie, welcome to the group, we are glad to have you. I agree with everyone else here, you need to get a second opinion because I just dont understand your current doctors logic. My son is 7 and has severe poly (basically every joint also) and Anklosing spondilitis, and he is on Methotrexate 25 mg a week, that i give to him by injection. I have seen some improvement with this so, i really think you need to look into another rheumy. Tina (s mom) midnight_dreamer21 <midnight_dreamer21@...> wrote: Hi, sorry i forgot to put my name(laughs)i'm Angie i live in Las Vegas Nevada, and i believe i have poly but not sure. i have jra from the neck down in all my joints..thank you for responding to my post,i'm really on the shy side so i really dont know what to say....How is your daughter doing? good i hope! take care.Angie> Hi> since i didnt see a name hi > hi midnight dreamer > glad you are in the group i am Robbin have a daughter 15 with poly JRA> we live in Atlanta Ga > where do you live? what kind of JRA do you have?> Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Hi Tina, I hope that is doing alright. I think I'd be feeling pretty crabby, too, if I had to deal with ongoing stomache pains, diarrhea, and fatigue : ( takes indomethacin. That's the same as Indocin, right? He takes 25mgs, twice a day. Did used to be on a lower night-time dose? Might the high evening dose be the reason for some of his tummy issues? Or was that 75mgs just a typo? How much does weigh? Aloha, Georgina ----- Original Message ----- From: Norman Tina seems to be doing a little better pain wise, with the MTX, although I have noticed that his stomach pains are getting more intense, and he has more bouts of bad diarrhea at times too. I have also noticed his mood has changed a bit too, he seems to be crabbier!! LOL He also is tired alot. So I have a few things to discuss with his rheumy on the next visit. He also takes 25mg of Indocin in the morning and 75 mg at night, and 150mg a day of zantac, and, 1mg of Folic Acid. Then we have the Zofran for his bouts of nausea which works really well. I am glad you are feeling a bit better, i hope you continue to see improvement. Enjoy the nice warm weather we are getting!! (((((((((((((((((hugs)))))))))))))))) Tina and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Hi Georgina, No, that wasnt a typo! takes 25mg in the morning, and 75mg at night. (yes, indomethacin is the same thing, lol) I dont know whats causing the tummy aches so bad, he was only taking 75mg of indocin at night to start, but when his MTX got increased, they also incresed his indocin to include 25 mg in the morning and the 75mg at night, so I dont know what it is realated to, he has taken it with food, and like i said I do notice he is having more better days, but these tummy aches concern me. I dont know if its related to the MTX or the indocin. By the way, weighs 85 lbs. I am just so concerned because the MTX and Indocin alone can affect the liver, so does it make it worse when they are taken together??? Seems to me it would be. Any suggestions would be helpful!!! Thanks, Tina (s mom) Georgina <gmckin@...> wrote: Hi Tina, I hope that is doing alright. I think I'd be feeling pretty crabby, too, if I had to deal with ongoing stomache pains, diarrhea, and fatigue : ( takes indomethacin. That's the same as Indocin, right? He takes 25mgs, twice a day. Did used to be on a lower night-time dose? Might the high evening dose be the reason for some of his tummy issues? Or was that 75mgs just a typo? How much does weigh? Aloha, Georgina ----- Original Message ----- From: Norman Tina seems to be doing a little better pain wise, with the MTX, although I have noticed that his stomach pains are getting more intense, and he has more bouts of bad diarrhea at times too. I have also noticed his mood has changed a bit too, he seems to be crabbier!! LOL He also is tired alot. So I have a few things to discuss with his rheumy on the next visit. He also takes 25mg of Indocin in the morning and 75 mg at night, and 150mg a day of zantac, and, 1mg of Folic Acid. Then we have the Zofran for his bouts of nausea which works really well. I am glad you are feeling a bit better, i hope you continue to see improvement. Enjoy the nice warm weather we are getting!! (((((((((((((((((hugs)))))))))))))))) Tina and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Tina..when Tab was 5 the doc. had put her on Indocin..well her liver count was way off and so they had to do a liver biopsy..here it was the indocin that was causing the trouble..so they switched her to naporsyn and kept her on the mtx. What does the rheumy say about the tummy aches? Hope feels better!!! karen(tab17..poly) From: Norman Tina Reply- Subject: Re: Hi All.....Thanks Date: Wed, 29 May 2002 21:26:54 -0700 (PDT) Hi Georgina, No, that wasnt a typo! takes 25mg in the morning, and 75mg at night. (yes, indomethacin is the same thing, lol) I dont know whats causing the tummy aches so bad, he was only taking 75mg of indocin at night to start, but when his MTX got increased, they also incresed his indocin to include 25 mg in the morning and the 75mg at night, so I dont know what it is realated to, he has taken it with food, and like i said I do notice he is having more better days, but these tummy aches concern me. I dont know if its related to the MTX or the indocin. By the way, weighs 85 lbs. I am just so concerned because the MTX and Indocin alone can affect the liver, so does it make it worse when they are taken together??? Seems to me it would be. Any suggestions would be helpful!!! Thanks, Tina (s mom) Georgina wrote: Hi Tina, I hope that is doing alright. I think I'd be feeling pretty crabby, too, if I had to deal with ongoing stomache pains, diarrhea, and fatigue : ( takes indomethacin. That's the same as Indocin, right? He takes 25mgs, twice a day. Did used to be on a lower night-time dose? Might the high evening dose be the reason for some of his tummy issues? Or was that 75mgs just a typo? How much does weigh? Aloha, Georgina----- Original Message ----- From: Norman Tina seems to be doing a little better pain wise, with the MTX, although I have noticed that his stomach pains are getting more intense, and he has more bouts of bad diarrhea at times too. I have also noticed his mood has changed a bit too, he seems to be crabbier!! LOL He also is tired alot. So I have a few things to discuss with his rheumy on the next visit. He also takes 25mg of Indocin in the morning and 75 mg at night, and 150mg a day of zantac, and, 1mg of Folic Acid. Then we have the Zofran for his bouts of nausea which works really well. I am glad you are feeling a bit better, i hope you continue to see improvement. Enjoy the nice warm weather we are getting!! (((((((((((((((((hugs)))))))))))))))) Tina and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Hi : see's the rheumy next week, so i will find out more on the tummy aches then, but he was already on naprosyn and had no relief at all with it. I hope his liver counts are not off!!! Thanks, and again, I am sorry for your recent loss, please take care. Tina adn karens tribe <nutsomom5@...> wrote: Tina..when Tab was 5 the doc. had put her on Indocin..well her liver count was way off and so they had to do a liver biopsy..here it was the indocin that was causing the trouble..so they switched her to naporsyn and kept her on the mtx. What does the rheumy say about the tummy aches? Hope feels better!!! karen(tab17..poly) From: Norman Tina Reply- Subject: Re: Hi All.....Thanks Date: Wed, 29 May 2002 21:26:54 -0700 (PDT) Hi Georgina, No, that wasnt a typo! takes 25mg in the morning, and 75mg at night. (yes, indomethacin is the same thing, lol) I dont know whats causing the tummy aches so bad, he was only taking 75mg of indocin at night to start, but when his MTX got increased, they also incresed his indocin to include 25 mg in the morning and the 75mg at night, so I dont know what it is realated to, he has taken it with food, and like i said I do notice he is having more better days, but these tummy aches concern me. I dont know if its related to the MTX or the indocin. By the way, weighs 85 lbs. I am just so concerned because the MTX and Indocin alone can affect the liver, so does it make it worse when they are taken together??? Seems to me it would be. Any suggestions would be helpful!!! Thanks, Tina (s mom) Georgina wrote: Hi Tina, I hope that is doing alright. I think I'd be feeling pretty crabby, too, if I had to deal with ongoing stomache pains, diarrhea, and fatigue : ( takes indomethacin. That's the same as Indocin, right? He takes 25mgs, twice a day. Did used to be on a lower night-time dose? Might the high evening dose be the reason for some of his tummy issues? Or was that 75mgs just a typo? How much does weigh? Aloha, Georgina----- Original Message ----- From: Norman Tina seems to be doing a little better pain wise, with the MTX, although I have noticed that his stomach pains are getting more intense, and he has more bouts of bad diarrhea at times too. I have also noticed his mood has changed a bit too, he seems to be crabbier!! LOL He also is tired alot. So I have a few things to discuss with his rheumy on the next visit. He also takes 25mg of Indocin in the morning and 75 mg at night, and 150mg a day of zantac, and, 1mg of Folic Acid. Then we have the Zofran for his bouts of nausea which works really well. I am glad you are feeling a bit better, i hope you continue to see improvement. Enjoy the nice warm weather we are getting!! (((((((((((((((((hugs)))))))))))))))) Tina and Quote Link to comment Share on other sites More sharing options...
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