Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 HI becki, My son has systemic onset JRA,only lately his joints hv started swelling up.His doc too said that injecting the particular swollen joint with some steroid helps.Wud be doing that during his next appointment ,perhaps.She says it quickly brings down the inflammation. Hope ur son feels well quicky. madhu --- Allan Larson <alarson1@...> wrote: > Hi its Becki,I was wondering if anyone can give me > any info on joint > injections. has been having problems with his > ankles and nothing > else.I droped him to 8mg pred yesterday and he was > unable to walk this > morning,suprisingly no rash though and it did turn > out to be a wicked > case of morning stiffness that improved greatly > after Motrin and a hot > bath,by 7:00 he was up and running ready for his 2nd > day of preschool.I > sent a note to his teacher saying he may need to use > the big stroller to > go to music and lunch,but all was great he even got > to play outside.When > he went to school this morning his lft ankle was > huge even had swelling > on the inside which I have never seen before,when I > picked him up at > 11:30 his outside Lft ankle had a little > swelling,but very tender to the > touch.I am running out of patiance with waiting for > Enbrel,I know its > comming but when?Just trying to see what my options > may be. Becki and > 3systemic > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi its Becki,I was wondering if anyone can give me any info on joint injections. has been having problems with his ankles and nothing else.I droped him to 8mg pred yesterday and he was unable to walk this morning,suprisingly no rash though and it did turn out to be a wicked case of morning stiffness that improved greatly after Motrin and a hot bath,by 7:00 he was up and running ready for his 2nd day of preschool.I sent a note to his teacher saying he may need to use the big stroller to go to music and lunch,but all was great he even got to play outside.When he went to school this morning his lft ankle was huge even had swelling on the inside which I have never seen before,when I picked him up at 11:30 his outside Lft ankle had a little swelling,but very tender to the touch.I am running out of patiance with waiting for Enbrel,I know its comming but when?Just trying to see what my options may be. Becki and 3systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 My son has had a few joint injections over the years and these have helped considerably. I imagine it is quite tricky with his small joints but we have had no problems whatsoever. joint injections Hi its Becki,I was wondering if anyone can give me any info on joint injections. has been having problems with his ankles and nothing else.I droped him to 8mg pred yesterday and he was unable to walk this morning,suprisingly no rash though and it did turn out to be a wicked case of morning stiffness that improved greatly after Motrin and a hot bath,by 7:00 he was up and running ready for his 2nd day of preschool.I sent a note to his teacher saying he may need to use the big stroller to go to music and lunch,but all was great he even got to play outside.When he went to school this morning his lft ankle was huge even had swelling on the inside which I have never seen before,when I picked him up at 11:30 his outside Lft ankle had a little swelling,but very tender to the touch.I am running out of patiance with waiting for Enbrel,I know its comming but when?Just trying to see what my options may be. Becki and 3systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Becki I guess Jordan was one of the lucky ones, having success with joint injections. He had them a year ago March 21, (he was 4 at the time) from shoulder to ankles, both sides with tremendous success. We did keep him off his feet for 48 hours afterward, (a word of advice from another mom on here) and he hasn't had any active arthritis or swelling since. This was a kid that couldn't make it up with stairs, run, fever & rash all the time. Since the injections and starting MTX, he hasn't had a fever or rash either. He was taken off his indocin in November and is now only on the MTX 7.5 mg once a week. He's gained weight since his last appointment, and by the looks of his pants, he's grown too. We go on Tuesday back up to Toronto to see his rheumy, and we're going with no complaints. They do work, some longer than others for different kids, but you do need to keep him off his feet for at least 24 hours, 48 is better. Not easy, but it can be done. Good luck with Lori & Jordan- 5 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Becki as a child and even now I will take joint asperation and injection faster than prednisone orally . One because It gets directly too the spot immediately. Then if u remain none weight bearing for the injected sight for as long as possible 24-48 hrs after injection ....u may have a result like diane was saying ..a year or so with no swelling and very little discomfort to the joint. But sometimes it seems to just move to a different joint, not always though. This can be a painful procedure sometimes depending on the amount of inflamation already present and skill of doctor, (believe me i had a few that needed to go back to school) but it is so much better in the next few days that the next time u really will take it over dealing with a nasty joint for months. Re: joint injections Becki- had a joint injection in her knee when it was the only joint swollen. She had absolutely no symptoms for a year. Definitely worth considering!! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Tabitha has also had joint injections done before on her knees..before they were replaced..was only used for temporarily relief..they gave her a valium..she was vicious..had to calm her down. Anyways, Tabs knees were bad off to begin with..it was used until she got a little bit bigger to have the replacements. karen(tab16..poly) From: " Oliver Skudder " <oliver.skudder@...> Reply- < > Subject: RE: joint injections Date: Fri, 1 Mar 2002 12:38:43 -0000 My son has had a few joint injections over the years and these have helped considerably. I imagine it is quite tricky with his small joints but we have had no problems whatsoever. joint injections Hi its Becki,I was wondering if anyone can give me any info on joint injections. has been having problems with his ankles and nothing else.I droped him to 8mg pred yesterday and he was unable to walk this morning,suprisingly no rash though and it did turn out to be a wicked case of morning stiffness that improved greatly after Motrin and a hot bath,by 7:00 he was up and running ready for his 2nd day of preschool.I sent a note to his teacher saying he may need to use the big stroller to go to music and lunch,but all was great he even got to play outside.When he went to school this morning his lft ankle was huge even had swelling on the inside which I have never seen before,when I picked him up at 11:30 his outside Lft ankle had a little swelling,but very tender to the touch.I am running out of patiance with waiting for Enbrel,I know its comming but when?Just trying to see what my options may be. Becki and 3systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 I have had a very different experience with joint injection, my daughter 15 (poly JRA) was given a joint injection in her knee in March. The steroid caused steroid crystals to form & then she was in excruciating pain for 2 weeks.after 2 trips to the DR & to the hospital she finally had to have morphine to calm down the pain. While I am told this is not an everyday reaction, it is one that we were not informed could happen. So I say the benefit should definitely outweigh the risk. As for my daughter no more joint injections. I know there are many who will post saying that their children have had them with no problems...and that is wonderful if it works! But beware there is another side to the joint injection. I f one joint in particular is giving them trouble then they should also be sure to check for joint infection first. Just my experience...Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 So sorry to hear that Kris. I haven't seen anything like that in ten years... sometimes my son had mild pain in the injected joint right after the injection, but it was like 30 minutes. If my child had to go trouhgh what yours had, I'm sure I'd never let them do it again. Even if you know that next time it could be different, you wouldn't want to risk it. My husband read your post and he thinks the reason could have been that the knee had a bacteria infection at the time, then the streoid- injection would only make things worse. Or that the needle hit a nerve and the steroid never got to the synovia and ended up somewhere else. Do you know if they put only steroid or steroid- anesthetic " cocktail " in the knee? Sometimes the " cocktail " is not right, but usually this " mistake " only shows not doing any good, and doesn't cause the kind of pain you described. Hope that this never happens to anybody anymore. The meaning is to do good, not make things worse. Love, Soili Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 Hi Kris: Did they have any explanation for why your daughter's body reacted that way? Or what caused the stuff to crystalize? We've only ever had good results for Mickey, but like you, no one has ever told us about the particular risk/reaction your daughter experienced. We were told that there can be scarring, if the stuff they inject leaks out or gets on the skin around the injection site, and in fact, Mickey does have some scarring on the skin of one ankle. Is she okay now? Lynn From: dkakheath@... Reply- Date: Tue, 18 Jun 2002 17:39:18 EDT Subject: Re: Re:joint injections I have had a very different experience with joint injection, my daughter 15 (poly JRA) was given a joint injection in her knee in March. The steroid caused steroid crystals to form & then she was in excruciating pain for 2 weeks.after 2 trips to the DR & to the hospital she finally had to have morphine to calm down the pain. While I am told this is not an everyday reaction, it is one that we were not informed could happen. So I say the benefit should definitely outweigh the risk. As for my daughter no more joint injections. I know there are many who will post saying that their children have had them with no problems...and that is wonderful if it works! But beware there is another side to the joint injection. I f one joint in particular is giving them trouble then they should also be sure to check for joint infection first. Just my experience...Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Hi all.. Just went to the rheumy yesterday ... we discussed my daughters reaction to the steroid injection. They " think " that she got what they call steroid induced synovitis. The rheumy we saw said that she has rarely seen it & in fact that is why she did not tell us it was possible. She said she now tells pt's/parents of this risk however remote. Unfortunately as in my daughters case ... if it's rare.. odd... never happens guess what?? ...it happens! She is much better now,took about 2 weeks for the pain to completely resolve...but no adverse affects after the fact. Kris (Ashton 15 poly JRA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Hi Jane, I just wanted to send a warm thank you, for taking the time to write in such detail about your son Ben's experiences with joint injections. That was very helpful. I'm so glad that the procedure has been beneficial and I'm very happy to hear that Ben is doing so much better, now. Thanks again, Aloha, Georgina ----- Original Message ----- From: janemud@... Hi all,Have just noticed postings on these and wanted to let you know of my sonsexperiences of them.He is admitted to a day care ward in the early morning, nil by nouth ofcourse, Rheumy comes to see him and marks joints that need injecting with pen.He then explains the procedure to him. Usually the remove fluid from joint before injecting the steroids into it andits also useful for them to use for investigations and research. You can seethe joint is smaller as soon as they return. All Ive ever seen is a small pinprick over each joint afetr procedure. He rests for 24 hours and theimprovement is marvellous. These injections and methotrexate alone have got my once wheelchair boundchild walking again.His last appointmrnt 2 weeks ago amazed the rheumy team and they remarked whata different child he was.I was anxious but after hes now received this type of treatment three times inthe 18 months since diagnosis and last time was in JUne is well worth it.Good Luck and all my love from UKJane, mum to Ben aged 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Hi Jane, I just wanted to send a warm thank you, for taking the time to write in such detail about your son Ben's experiences with joint injections. That was very helpful. I'm so glad that the procedure has been beneficial and I'm very happy to hear that Ben is doing so much better, now. Thanks again, Aloha, Georgina ----- Original Message ----- From: janemud@... Hi all,Have just noticed postings on these and wanted to let you know of my sonsexperiences of them.He is admitted to a day care ward in the early morning, nil by nouth ofcourse, Rheumy comes to see him and marks joints that need injecting with pen.He then explains the procedure to him. Usually the remove fluid from joint before injecting the steroids into it andits also useful for them to use for investigations and research. You can seethe joint is smaller as soon as they return. All Ive ever seen is a small pinprick over each joint afetr procedure. He rests for 24 hours and theimprovement is marvellous. These injections and methotrexate alone have got my once wheelchair boundchild walking again.His last appointmrnt 2 weeks ago amazed the rheumy team and they remarked whata different child he was.I was anxious but after hes now received this type of treatment three times inthe 18 months since diagnosis and last time was in JUne is well worth it.Good Luck and all my love from UKJane, mum to Ben aged 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Hi Pam, I forgot to mention,we aren't in the IL 1 study but we take to Cincy for a 3yr Enbrel study.Dr.Lawton doesn't like to give drugs that haven't been around for less then 2 yrs unless he is desperate.He broke down and put one teenager on Remicade but her throat swelled shut and almost died.Do you take r to Cincy for their IL1 study?It sounds like we have alot in common with this JRA.My e-mail address is Arthurnator @wmconnect.com.Where do you live?We live in Murfreesboro. Hugs Becki and 4systemic,turns 5 in July Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Pamela, are you sure they are going to inject the joints without general anesthesia, even if your child is only 5 ? Which joints ? In our hospital they never (or very seldom) do it awake to a child under 10, and over 10 yo olds it's only with the child's full concent, and only if it's one or two joint max. Knees and hips are almost always done under general anesthesia, no matter how old the child is. My son Juho is 8 and he has had his knee and ankle done awake, since he has this superhero-complex... but it was quite nasty in my opinion. Last ones (knee and ankle again) were done two days ago and he was put to sleep. Have a talk with the hospital and tell them that you hesitate. Soili Quote Link to comment Share on other sites More sharing options...
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