Re: MY 7 1/2 YEAR OLD DAUGHTER AND J.R.A. AND SEA SYNDROME

[Guest guest]

Welcome ,

How old is your daughter now, and what type of jra does she have? Also, what

is SEA Syndrome?

My daughter Abbie is 12. She was diagnosed with systemic jra almost 2 years

ago. I agree that this site is a true lifeline.

Christy

[Guest guest]

Hi ,

We go to Shriner's too and you're right, they are a great group of people. In a few months they'll be having a television series on PBS. I can't wait to see it. When I get more details, I'll let everyone know. They even filmed a little bit while Josh (my son, systemic JRA for 6+ years) and the rest of the children in Hawaii enjoyed their weekend JRA Camp in October.

What does SEA stand for?

Aloha,

Georgina

HELLO.... MY NAME IS LAURA AND MY DAUGHTER WAS DIAGNOSED WITH JRA AT THE AGE OF 5 YEARS OLD..AND SHE WAS RECENTLY DIAGNOSED WITH SEA SYNDROME. WE GO TO THE SHRINNERS HOSPITAL IN SHERVPORT L.A. ABOUT EVERY 3 MONTHS..THEY HAVE BEEN THE MOST WONDERFUL PEOPLE TO US. I AM GLAD I FOUND YOUR WEB SITE. AND HOPE TO HEAR FROM YOU SOON LAURA

[Guest guest]

it stands for syndrome of seronegative enthesopahty &

arthropathy (sea syndrome)or spondyloarthropathies

--- Georgina <gmckin@...> wrote:

> Hi ,

>

> We go to Shriner's too and you're right, they are a

> great group of people. In a few months they'll be

> having a television series on PBS. I can't wait to

> see it. When I get more details, I'll let everyone

> know. They even filmed a little bit while Josh (my

> son, systemic JRA for 6+ years) and the rest of the

> children in Hawaii enjoyed their weekend JRA Camp in

> October.

>

> What does SEA stand for?

>

> Aloha,

> Georgina

> HELLO.... MY NAME IS LAURA AND MY DAUGHTER WAS

> DIAGNOSED WITH JRA AT

> THE AGE OF 5 YEARS OLD..AND SHE WAS RECENTLY

> DIAGNOSED WITH SEA

> SYNDROME. WE GO TO THE SHRINNERS HOSPITAL IN

> SHERVPORT L.A. ABOUT

> EVERY 3 MONTHS..THEY HAVE BEEN THE MOST WONDERFUL

> PEOPLE TO US. I AM

> GLAD I FOUND YOUR WEB SITE. AND HOPE TO HEAR FROM

> YOU SOON LAURA

>

__________________________________________________

[Guest guest]

it stands for seronegative enthesopathy & artgropathy

(sea syndrome)or spondyloarthropathies

--- Georgina <gmckin@...> wrote:

> Hi ,

>

> We go to Shriner's too and you're right, they are a

> great group of people. In a few months they'll be

> having a television series on PBS. I can't wait to

> see it. When I get more details, I'll let everyone

> know. They even filmed a little bit while Josh (my

> son, systemic JRA for 6+ years) and the rest of the

> children in Hawaii enjoyed their weekend JRA Camp in

> October.

>

> What does SEA stand for?

>

> Aloha,

> Georgina

> HELLO.... MY NAME IS LAURA AND MY DAUGHTER WAS

> DIAGNOSED WITH JRA AT

> THE AGE OF 5 YEARS OLD..AND SHE WAS RECENTLY

> DIAGNOSED WITH SEA

> SYNDROME. WE GO TO THE SHRINNERS HOSPITAL IN

> SHERVPORT L.A. ABOUT

> EVERY 3 MONTHS..THEY HAVE BEEN THE MOST WONDERFUL

> PEOPLE TO US. I AM

> GLAD I FOUND YOUR WEB SITE. AND HOPE TO HEAR FROM

> YOU SOON LAURA

>

__________________________________________________

[Guest guest]

she is 7 1/2 and has systemic and sea syndrome is

seronegative enthesopathy & arthopathy or you can call

it spondyloaropathies

--- gazelle34@... wrote:

> Welcome ,

>

> How old is your daughter now, and what type of jra

> does she have? Also, what

> is SEA Syndrome?

>

> My daughter Abbie is 12. She was diagnosed with

> systemic jra almost 2 years

> ago. I agree that this site is a true lifeline.

>

> Christy

>

__________________________________________________