Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 now > he is being > switched to non preservative because it doesnt > burn,only drawback is > that out of a 50mg vile he only gets 2 doses then it > has to be thrown > away so we lose a whole dose and 5mg,luckily it is > cheap. It is my understanding from my pharmacist, that the Mtx WITHOUT preservative can only be used one time. K. was on mtx with preservative, and for some reason it isn't available right now which is why she was switched. As far as Enbrel is concerned.............I think your rheumy has a lousy attitude/bedside manner. I would be SO turned off by his statement to you. K. just started Enbrel last week. It's been a LONG road. I had hoped for a significant improvement, but she's only had 3 doses so far, and I guess I'm impatient (only because I was told results would be immediate!). Isabel <-----who's having an awful time __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi,its Becki.I questioned mu sons rheumy about using non preservative Mtx more than once,and he still believes if I keep it in the fridge it is safe.I am starting to question his abilities as a dr,nobody else uses it more than once,I have called pharmacy after pharmacy they wont say anything other than talk to the Dr.who prescribed it.Rheumy told me its a personal decision.Personally the patiant insert says " for single use only " and as far as the fridge is conserned-keep at controlled room temp vith a variabe of 56-86 degrees.The patiant insert even talks about an iv solution that can be refridgerated for 24 hrs after being mixed at 90%effectiveness.So now I wonder if it loses potency after being opened or being kept in fridge. goes to the pediatrician this afternoon for first shot ,I have decided that I am not going to take any chances,my baby is going to get the purist most potent dose he can get,every time.I never want to have to look back and wonder if s not responding well because the drug loses potency after being opened or refridgerated.If the rheumy gets upset tough shit.He will just have to get over it. Becki and 3systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Hi Becki s dad here our dr has used the non preservative mtx he says that it just needs to be kept in the fridge and to make sure you use a alcohol swab to clean the bottle and a new syringe each time. we use what the pharmacy gives us and it has the preservative in it. good luck --- Allan Larson <alarson1@...> wrote: > Hi,its Becki.I questioned mu sons rheumy about using non preservative > Mtx more than once,and he still believes if I keep it in the fridge it > is safe.I am starting to question his abilities as a dr,nobody else uses > it more than once,I have called pharmacy after pharmacy they wont say > anything other than talk to the Dr.who prescribed it.Rheumy told me its > a personal decision.Personally the patiant insert says " for single use > only " and as far as the fridge is conserned-keep at controlled room temp > vith a variabe of 56-86 degrees.The patiant insert even talks about an > iv solution that can be refridgerated for 24 hrs after being mixed at > 90%effectiveness.So now I wonder if it loses potency after being opened > or being kept in fridge. goes to the pediatrician this afternoon > for first shot ,I have decided that I am not going to take any > chances,my baby is going to get the purist most potent dose he can > get,every time.I never want to have to look back and wonder if s > not responding well because the drug loses potency after being opened or > refridgerated.If the rheumy gets upset tough shit.He will just have to > get over it. > Becki and > 3systemic > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 I wanted to let you know that my daughter got non-preservative over preservative one month because the preservative Mtx was out of stock. All month the shot stung and the nurse at the Rheum. said others had complained that month and we made sure we got the one with preservatives from then on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Holly's first injection was on friday too, and she has the one with preservatives in it, and she didnt complain about it burning, but i do have to say not wanting to put ideas in her head didnt ask either. But she didnt complain about anything beyond the pinch from inserting the needle, even pushed down the plunger to basically give herself the injection. She is 7, and even asked me last night, how many times she would have to get the shot, before she could do it all herself. Aj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 hi,its Becki.Im a little confused.s rheumy put him on preservative free because it wasnt supposed to burn,he got his first shot last fri at pediatricians office. he did great with the shot until the needle was out and he hollered take it out,take it out.It had been out for about 3sec so I know it was the MTX itself that hurt.He also only cried a LITTLE bit and he was so proud of himself ,he is barely 3.If anyone could tellme what kind of MTX shot they get(preservative or non preservative)and if the medicine burns or not I would greatly appreciate it.Thanks a bunch! Becki and 3systemic pamelabrockett@... wrote: > I wanted to let you know that my daughter got non-preservative over > preservative one month because the preservative Mtx was out of stock. All > month the shot stung and the nurse at the Rheum. said others had complained > that month and we made sure we got the one with preservatives from then on. > > > For links to websites about arthritis and JRA, visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Holly was on mtx(pill form) for 5 years., came off it for a few months over the summer, and is now on injectable. They showed me how and i did it myself the next day. All i can say is i am glad the 1st time is over. Aj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Hi,its Becki.I think its great that Holly is wanting to give it to herself.My brother was diagnosed with jeuvenile diabetis at 4 and by 7 he was giving himself injections 2-3 times a day I have heard they can be taught as early as 5 though. is going to the pediatricians office for at least the fist 4 weeks while they teach me.My mom told me to practice on an orange that it is the closes thing to skin(35yrs ago anyway)mayby that is something Holly can try untill you and the rheumy feel it is ok for her to do it herself. I hope the second goes as good as the first.Oh,by the way is Holly just starting MTX or just starting injections? Becki and 3systemic ajaomom@... wrote: Holly's first injection was on friday too, and she has the one with preservatives in it, and she didnt complain about it burning, but i do have to say not wanting to put ideas in her head didnt ask either. But she didnt complain about anything beyond the pinch from inserting the needle, even pushed down the plunger to basically give herself the injection. She is 7, and even asked me last night, how many times she would have to get the shot, before she could do it all herself. Aj For links to websites about arthritis and JRA, visit: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Hi Becki, Shoot! Josh had his MTX injection today and I completely forgot to ask the nurses if his did or did not have the preservative in it! I'm sorry about that. I also just wanted to say how proud I was to hear how well 's injection went. He sounds like a very brave little guy I remember, though, how painful those tears used to be ... for me! ... when was just a little guy. Not for his MTX injections back then but just for the ordinary blood draws. My gosh, he used to have to get his blood drawn so frequently, too. I'm really glad that it's just once a month, now. And it doesn't bother him at all, anymore, after all of the pokes he's gotten. Gentle hugs for , Georgina Allan Larson wrote: > > hi,its Becki.Im a little confused.s rheumy put him on preservative free > because it wasnt supposed to burn,he got his first shot last fri at > pediatricians office. he did great with the shot until the needle was out and > he hollered take it out,take it out.It had been out for about 3sec so I know it > was the MTX itself that hurt.He also only cried a LITTLE bit and he was so > proud of himself ,he is barely 3.If anyone could tellme what kind of MTX shot > they get(preservative or non preservative)and if the medicine burns or not I > would greatly appreciate it.Thanks a bunch! Becki and 3systemic > > pamelabrockett@... wrote: > > > I wanted to let you know that my daughter got non-preservative over > > preservative one month because the preservative Mtx was out of stock. All > > month the shot stung and the nurse at the Rheum. said others had complained > > that month and we made sure we got the one with preservatives from then on. Quote Link to comment Share on other sites More sharing options...
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