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Re: Intro to Tyler

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Hi Chellie,

My son was 6 when he was diagnosed with systemic JRA. Josh is 12, now.

Since we live in Hawaii we don't visit the same hospital but I just

wanted to say hello and welcome you to our group. My son has also never

used Vioxx, so I can't be too much help with that. Josh takes

prednisone, indomethacin, plaquinel, methotrexate, cytotec, and

miacalcin. Poor little guy. If you don't mind me asking, how did Tyler

break his nose? My gosh. That must have been a real shock!

Take care,

Georgina

chellieae@... wrote:

>

> Hello. My name is Chellie and my son Tyler 5 was recently diagnosed

> with Jra. He is being treated at Children's Hospital LA in California

> by Dr. Reiff. He is currently in a clinical study for Vioxx. His

> right knee is a 2+4 swelling alot better than when he was first seen

> and his Left knee is now a 6+4 and it was at 0 when first seen.

> He has elevated Liver Functions and a HLA-B27 NEGATIVE. yeah...

> We are still ajusting to what Tyler can and can not do right now. He

> is a great trooper.

> He was scheduled for a Slit Lamp yesterday, but had a school yard

> accident last week and broke his nose. The eye doc wasnt able to get

> his eyes to dialate so his appt was rescheduled.

> If anyone is being treated at CHLA, please email me.

>

> Chellie- Mom 2 Tyler-5

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