Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Dear Lorie, the doctors told me the same thing about the prednisone when I mentioned how it was affecting my sons overall personality...they made light of it..but i definitley noticed a difference, especially on the higher doses. he had episodes of an almost paranoia, nervousness, crying jags, temper tantrums, moodiness, obviously not all in one day but I noticed these behavoirs over the course of 5 years..it would lessen with lower doses and these behavoirs a re pretty much gone now ( he is on 1 mg ) he had many good days too, don't get me wrong..I don't mean to scare anyone, but the Drs can say what they want, that this shouldn't have anythng to do with the prednisone, but i say it had everything to do with the prednsione.... Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Here I am again - I forgot to add that Rob's doctor and the nurse did say the steroids did cause his behavioural changes - even paranoia can be caused - one nurse also told me that It can cause psychosis. Rob had three different episodes where he had apparent hallucinations - he wasn't asleep - it was in the middle of the day and he saw people who weren't there. The first two times occurred when he was on high doses for his Minimal Change Disease, and the third occurred when he was first on the current high dose for the JRA. It doesn't seem to happen except in the first couple of days of the high dose - then I guess his body adjusts - though sometimes I wonder when he won't go into a room in our house without me - maybe he is just tired of me telling him that nobody is there. Val Rob's Mom In a message dated Sun, 30 Sep 2001 10:25:32 AM Eastern Daylight Time, Jitz45@... writes: > Dear Lorie, the doctors told me the same thing about the prednisone when I > mentioned how it was affecting my sons overall personality...they made light > of it..but i definitley noticed a difference, especially on the higher doses. > he had episodes of an almost paranoia, nervousness, crying jags, temper > tantrums, moodiness, obviously not all in one day but I noticed these > behavoirs over the course of 5 years..it would lessen with lower doses and > these behavoirs a re pretty much gone now ( he is on 1 mg ) he had many good > days too, don't get me wrong..I don't mean to scare anyone, but the Drs can > say what they want, that this shouldn't have anythng to do with the > prednisone, but i say it had everything to do with the prednsione.... Jane > > > For links to websites about arthritis and JRA, visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 My doctor told us in the beginning that the prednisone would cause mood swings. But I also feel that these are pretty sick kids and can get mad, upset, weepy, whatever just cause of that. And they are so young. Its hard sometimes to judge if is just acting up cause she's a 7 year old girl, or if its the meds. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Wov Val, that's like deja vu. When Abbie was in the hospital prior to diagnosis and on high doses of steroids, she was extremely paranoid and halucinogenic. I could never leave her room and she refused to go in the bathroom by herself. She said that bad men were going to jump out and get her. When I asked her why she said that is what they did. This from a 10 year old. It was very frightening to us, but everything settled down when the meds dropped. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Christy, It is really something to hear this from our kids! Rob jumped of the couch one day and ran and closed the door to the kitchen, and screamed when I opened it back up - he told me there was a soldier in the kitchen, (at the time we lived in base housing on Fort Meade!) and he finally told me after moving in our current house that he didn't want to go in living room because he didn't like " that man " on the couch. After a week of that I was looking over my shoulder & decided I didn't like " that man " either (no, I never saw him). Rob will go in the Living Room now, but still avoids the couch. I'm glad to hear that Rob isn't the only one - though I wouldn't wish that fear on any child! The first doctor I relayed this to looked at me like I was nuts! Thanks Christy. Val Rob's Mom(4 tomorrow, systemic) In a message dated Mon, 1 Oct 2001 3:39:05 PM Eastern Daylight Time, gazelle34@... writes: > Wov Val, that's like deja vu. When Abbie was in the hospital prior to diagnosis and on high doses of steroids, she was extremely paranoid and halucinogenic. I could never leave her room and she refused to go in the bathroom by herself. She said that bad men were going to jump out and get her. When I asked her why she said that is what they did. This from a 10 year old. It was very frightening to us, but everything settled down when the meds dropped. > > > > Christy > > > > <!-- |**|begin egp html banner|**| --> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 WOW..........I am not saying that i believe or not, but i have heard that children are more sensitive when it comes to "seeing" things like that......I dont think i would be very comfortable either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Lots of birthdays this week huh??? Holly's little brother joey is turning 6 on thursday :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Dear Pat, I agree with you that while the meds can cause mood swings etc... I think the disease itself does too. Kate's not on steroids but can be very moody, easily frustrated to wear she's crying or yelling. Add to that she has a VERY determined stubborn nature--and well, you can imagine! lol! But it makes sense that the disease plays a part in some beause I have yet to meet a " cheerful " person in pain! (Lord knows I'm a grump when I don't feel good! lol!) I think too the fact that because they are kids and want to be just like their friends, leads to a high frustration factor for them. So with that and the meds, drs. appts, procedures, x-rays, needles,pain, therapies etc... it's easy to see how our little angels can have their devilish days! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Hang in there Val; we can all get through it together. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Thank you Christy! Val In a message dated Tue, 2 Oct 2001 3:24:32 PM Eastern Daylight Time, gazelle34@... writes: > Hang in there Val; we can all get through it together. > > > > Christy > > > > <!-- |**|begin egp html banner|**| --> > > > > Quote Link to comment Share on other sites More sharing options...
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