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One other point with the emla cream is that especially with young children,

is that they dont care if you tell them its not going to hurt because of the

cream its the idea of getting a needle stuck into your arm that is scaring

the crap out of them.........Holly a huge veterean of many blood draws (once

had 14 sticks to get an iv) hardly cries at all, but since she was

hospitalized over the summer is horrible about them now, so we have been

using emla cream everytime, well let me tell you it took 5 people (her doc,

another doc, 2 nurses and myself) to hold her down while she had blood work

done, and she had emla on..........so what i am saying is sometimes its the

mental part that makes them cry, even moreso than the physical stick. (just

my 2 cents) aj

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Hi AJ,

Definitely. Needle sticks were one of the issues that we brought up as a

concern when Josh was seeing a child psychologist. To Josh, he felt as

if he were being invaded. Like he didn't have any control in the matter.

This was way back, when he was six years old. After he was released from

the hospital he needed blood draws weekly, then every two weeks,

eventually going to just once a month ... except when he was sick or

they had just changed his meds dosages. He was really too sick to put up

any type of fuss at all while he was in the hospital and besides, they

were using IV's then. Once he started to get a little better I think

maybe it was a reminder to him that things were no longer the same as

they used to be, prior to JRA. He never fought them or needed to be held

down but he used to cry and cry. I'd get tears welling up in my own

eyes, just seeing him so uncomfortable, stressed.

Aloha,

Georgina

ajaomom@... wrote:

>

> One other point with the emla cream is that especially with young children,

> is that they dont care if you tell them its not going to hurt because of the

> cream its the idea of getting a needle stuck into your arm that is scaring

> the crap out of them.........Holly a huge veterean of many blood draws (once

> had 14 sticks to get an iv) hardly cries at all, but since she was

> hospitalized over the summer is horrible about them now, so we have been

> using emla cream everytime, well let me tell you it took 5 people (her doc,

> another doc, 2 nurses and myself) to hold her down while she had blood work

> done, and she had emla on..........so what i am saying is sometimes its the

> mental part that makes them cry, even moreso than the physical stick. (just

> my 2 cents) aj

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hey donald why don't you try an EMLA bath and let us all know the

results!!!!LOL!!

Tree waiting patiently for your critique hehehehe

Needle Pokes

Oh for that cream, I hated to and still do, dislike getting that needle

jabbed into my body. The only good thing in my favor is, I have great

veins, at least that is what all the lab tech's and nurses tell me.

I guess there has to one good part of my old body still working,

considering the rest is falling apart or rusting away.

There some days I think I would like to rub that EMLA cream, all over my

body.

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I was offered emla cream but found the 20 minute wait was too tiring. I was

then offered eythl chloride which is a local anesthetic which works reallly

well. It comes in a spray and you just spray it on the skin and the needle

can go straight in-no wait. I dont know if you can get it in america but its

worth a try if any of you are annoyed with emla.

Vicky

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aj i agree one hundred percent..tabitha has been stuck with needles since

she was four years old and now she is sixteen..she still throws a fit once

in awhile. luckily we had doctors who told her she could scream as loud as

she wants but she has to be still..i remember when she was little and trying

to hold her..it was so amazing how much strength a child, as small as she

was, could muster up. if you did not hold her arm straight before she bent

it up there was trouble because there was no straightening it out once it

was locked.

karen

From: ajaomom@...

Reply-

Subject: Re: Needle Pokes

Date: Wed, 22 Aug 2001 11:11:27 EDT

One other point with the emla cream is that especially with young children,

is that they dont care if you tell them its not going to hurt because of the

cream its the idea of getting a needle stuck into your arm that is scaring

the crap out of them.........Holly a huge veterean of many blood draws (once

had 14 sticks to get an iv) hardly cries at all, but since she was

hospitalized over the summer is horrible about them now, so we have been

using emla cream everytime, well let me tell you it took 5 people (her doc,

another doc, 2 nurses and myself) to hold her down while she had blood work

done, and she had emla on..........so what i am saying is sometimes its the

mental part that makes them cry, even moreso than the physical stick.

(just

my 2 cents) aj

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hi

just reading the needle pokes

this is a mental thing i think sticking and needles

as we all know when we accidently stick ourself it does hurt

kids find this out early in life

plus its foriegn to them also i have told melissa i will always be there if

any needles are present with her and she can hold on to me and i will not

let anything happen to her that is unneeded

the reason i guess i am more involved with her blood draws labs or any tests

done

my mom had a severe phobia

this being needles and seeing blood

mom was really BAD with this phobia

she must have had a bad experience or something as a kid

seen my moms phobia

she walked up to my mom and said nitnu it dont hurt to bad to get the blood

out

or the shots just a little sting and its over

this was said when my mom was in the hospital due to diabetes

my moms words were but honey your nitnu dont need this done

maybe seen what happened and might have over heard us talking

but since she seen this she knows the phobia could have costed my mom her life

this phobia is not something you would want when your diabetic and so

terrified of needles you will fight or never see a doctor because your sick

and really need a doctor my mom lost her battle with diabetes Sept 22 1999

in my heart i believe if she took better care of herself she would be with us

today

even if there was someone who would have taken time with her like the doctor

or the lab tech or a nurse as they do with the kids

this woman even though she was terrified of needles and blood

gave birth to 12 kids during her life this phobia went on to 3 of those kids

now sees the lab techs and says heres the one you get

she has no fear so far as she once did

and she knows i will be there

Robbin

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Georgina

this is where the kids need something called TRUST in the lab techs

knows the lab techs and will ask for the one she likes lololol the

one who is gentle and gets it on the first try

its a invasive thing like some of these tests these kids have to go through

i always ask if its a invasive test before i tell or explain it to

this way it will prepare her and since shes getting older she will ask why

does this test need to be done and what for lololol i will be open and honest

with her

when i was young and had to get needles my mom had to have her sister take

me to the doctor lololol

Robbin

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Hi Robbin,

We actually switched labs because one place really didn't handle kids so

well. A couple errors too, not major ones but things like ... we'd go in

for the regular labs and have it on the form that we needed another

particular test and they'd call us the next day and say, oops. We forget

to get blood for that test. For an adult, maybe that wouldn't be so bad

but for a kid who doesn't particularly like being stuck all the time, to

have to have another so soon afterwards, when you had promised it

wouldn't be done for another two weeks ... well, that didn't work out

too well.

The other lab, it turns out, had the nicest, sweetest people. The parent

of kids that went to my kids' school worked there and she was firm but

very gentle and it really relaxed Josh. I mean, there was a major

difference in his whole demeanor. For the first time ever, he didn't

even need to sit on my lap anymore. Nowadays, we have them done at the

hospital where he gets his MTX injection. Again, the nurses there are

really great with children. It's so much easier, now. Sometimes the

technicians attitude and " bedside manner' can have a great affect, in

terms of the kids dreading the blood tests or being more willing to

cooperate.

Aloha,

Georgina

Robbin40@... wrote:

>

> Georgina

> this is where the kids need something called TRUST in the lab techs

> knows the lab techs and will ask for the one she likes lololol the

> one who is gentle and gets it on the first try

> its a invasive thing like some of these tests these kids have to go through

> i always ask if its a invasive test before i tell or explain it to

> this way it will prepare her and since shes getting older she will ask why

> does this test need to be done and what for lololol i will be open and honest

> with her

> when i was young and had to get needles my mom had to have her sister take

> me to the doctor lololol

> Robbin

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Georgina

your so right this one lab started with and she was uneasy then

when the lady came in informed her that she was useing the wrong

tube lololol

the lady wanted to agrue with her and wouldnt let her take the blood

the head tech came in and tried to comfort but stood her

footing on it and was right the blood has to be in certain colored

topped tubes

lolololol when we went back to the dr i told of the event lololol and they

agreed should know she has the labs done and shes the one who is

poked

lololol now i just watch lolololol

if the parents would ask for the name of the lab tech that the child does

real good with then every time they have to go get blood taken this would

help ALOT

parents have the rights to request that tech

if you have to just ask for the times that one works and this saves ALOT of

time and discomfort for the parent and child

Robbin

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Hi Georgina:

I noticed in your post that you mention Josh gets his methotrexate shot at

the hospital... is that easier on him? As you probably remember, I have been

giving Mickey her mtx shots and it developed over time into a big problem

with her anxiety causing her to vomit at the time of the shot, from stress.

For the summer, I've been giving her the shot after she fell asleep, but

this is rapidly becoming unmanageable as well. The night of the shot, even

with a dose of gravol to make her sleepier, she is very wakeful, and I've

had to stay up half the night trying to find a time she doesn't wake up the

moment I tip-toe into her room. It's very stressful, now on both of us and I

need more sleep!! I may see about getting someone else to do it, afterall.

Any ideas, again, would be greatly appreciated, from anyone. We've (I think)

tried it all, including a special councellor at the hospital, who councels

kids on ways to reduce anxiety. I'm looking into some other therapies, play

therapy or art therapy, but would welcome any and all ideas.

Lynn

From: Georgina <gmckin@...>

Reply-

Date: Tue, 28 Aug 2001 22:51:12 -1000

Subject: Re: Needle Pokes

Hi Robbin,

We actually switched labs because one place really didn't handle kids so

well. A couple errors too, not major ones but things like ... we'd go in

for the regular labs and have it on the form that we needed another

particular test and they'd call us the next day and say, oops. We forget

to get blood for that test. For an adult, maybe that wouldn't be so bad

but for a kid who doesn't particularly like being stuck all the time, to

have to have another so soon afterwards, when you had promised it

wouldn't be done for another two weeks ... well, that didn't work out

too well.

The other lab, it turns out, had the nicest, sweetest people. The parent

of kids that went to my kids' school worked there and she was firm but

very gentle and it really relaxed Josh. I mean, there was a major

difference in his whole demeanor. For the first time ever, he didn't

even need to sit on my lap anymore. Nowadays, we have them done at the

hospital where he gets his MTX injection. Again, the nurses there are

really great with children. It's so much easier, now. Sometimes the

technicians attitude and " bedside manner' can have a great affect, in

terms of the kids dreading the blood tests or being more willing to

cooperate.

Aloha,

Georgina

Robbin40@... wrote:

>

> Georgina

> this is where the kids need something called TRUST in the lab techs

> knows the lab techs and will ask for the one she likes lololol the

> one who is gentle and gets it on the first try

> its a invasive thing like some of these tests these kids have to go through

> i always ask if its a invasive test before i tell or explain it to

> this way it will prepare her and since shes getting older she will ask why

> does this test need to be done and what for lololol i will be open and honest

> with her

> when i was young and had to get needles my mom had to have her sister take

> me to the doctor lololol

> Robbin

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Meghann, also on Methotrexate, decided that she wanted to try the injection

Vs the pills....thinking it might be easier on her stomach...the jury is

still out on that one....however after giving her one injection myself,

Meghann is now giving her own injection. We both were given instructions

on what to do and how important it is to change sites etc....She was a

little apprehensive giving herself the shot but she wanted to do it....I am

sure it is like that feeling of apprehension before we had to stick

ourselves in science class to check our blood types.

She has her diagram of her sites and where she gives it to help....but I

think again it is a control thing; now she is doing it to herself....and it

was HER decision to try this...

I don't remember how old Mickey is (sorry) but have you tried the pills? Is

the mtx helping? Maybe a break from MTX completely for a while?

I can understand the anxiety and the frustration you must feel, I have had

to come to grips with just sometimes being the " bad " person. The " this is

just the way it is " parent. It hurts but I believe Meghann is the stronger

for it. I think tho maybe the night time after she falls asleep attempts at

the injection might be a lot like distracting the baby while mom runs out

the door. In the long run it causes more problems than saying goodbye face

to face.

ps. even children as young as six can give themselves injections....those

children with juvenile diabetes (insulin dependent) learn how to do it.

I hope that you are able to find something that works for you and Mickey...

Sharon and Meghann

JRA and PRS

Re: Needle Pokes

>

>

> Hi Robbin,

>

> We actually switched labs because one place really didn't handle kids so

> well. A couple errors too, not major ones but things like ... we'd go in

> for the regular labs and have it on the form that we needed another

> particular test and they'd call us the next day and say, oops. We forget

> to get blood for that test. For an adult, maybe that wouldn't be so bad

> but for a kid who doesn't particularly like being stuck all the time, to

> have to have another so soon afterwards, when you had promised it

> wouldn't be done for another two weeks ... well, that didn't work out

> too well.

>

> The other lab, it turns out, had the nicest, sweetest people. The parent

> of kids that went to my kids' school worked there and she was firm but

> very gentle and it really relaxed Josh. I mean, there was a major

> difference in his whole demeanor. For the first time ever, he didn't

> even need to sit on my lap anymore. Nowadays, we have them done at the

> hospital where he gets his MTX injection. Again, the nurses there are

> really great with children. It's so much easier, now. Sometimes the

> technicians attitude and " bedside manner' can have a great affect, in

> terms of the kids dreading the blood tests or being more willing to

> cooperate.

>

> Aloha,

> Georgina

>

> Robbin40@... wrote:

> >

> > Georgina

> > this is where the kids need something called TRUST in the lab techs

> > knows the lab techs and will ask for the one she likes lololol

the

> > one who is gentle and gets it on the first try

> > its a invasive thing like some of these tests these kids have to go

through

> > i always ask if its a invasive test before i tell or explain it to

> > this way it will prepare her and since shes getting older she will ask

why

> > does this test need to be done and what for lololol i will be open and

honest

> > with her

> > when i was young and had to get needles my mom had to have her sister

take

> > me to the doctor lololol

> > Robbin

>

>

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Hi Sharon & Meghann:

Mickey is 7... and I agree with you, you got it right on with the feeling I

get giving her the shot (or trying to) while she is asleep. I did it the

first time without telling her, then told her afterward what I had done, to

see what she thought, if she preferred it that way. She did, but after a few

months, became such a light sleeper that it has become impossible to do it.

But it does feel like that cheating thing, as you said, covering up the

baby's eyes while mom sneaks out. And it think it has just avoided really

dealing with her anxiety. Not a good solution, as it turns out. Hindsight is

great!

I am pursuing a councelling solution, getting her to talk to a child

psychologist, to work out why she hates it so much, and gets so worked up,

when she herself says she can't even really feel it. Hmmm.... maybe that is

part of the problem, actually numbing it. She always watches, refuses to

look away... maybe numbing it with EMLA (or Amatop Gel) is making it seems

scarier, or unreal, because she CAN'T feel it? She is mostly okay with her

bloodwork draws, rarely cries anymore - and we use nothing to numb for that.

Gotta give that some thought. Thanks for your thought-provoking reply! I

think you may be on to what is really behind her anxiety... gotta work it

out somemore, but I do think there is a lot of merit in what you say.

Thanks!

Lynn

From: " Gerfen " <rsgerfen@...>

Reply-

Date: Wed, 29 Aug 2001 18:00:42 -0700

< >

Subject: Re: Needle Pokes

Meghann, also on Methotrexate, decided that she wanted to try the injection

Vs the pills....thinking it might be easier on her stomach...the jury is

still out on that one....however after giving her one injection myself,

Meghann is now giving her own injection. We both were given instructions

on what to do and how important it is to change sites etc....She was a

little apprehensive giving herself the shot but she wanted to do it....I am

sure it is like that feeling of apprehension before we had to stick

ourselves in science class to check our blood types.

She has her diagram of her sites and where she gives it to help....but I

think again it is a control thing; now she is doing it to herself....and it

was HER decision to try this...

I don't remember how old Mickey is (sorry) but have you tried the pills? Is

the mtx helping? Maybe a break from MTX completely for a while?

I can understand the anxiety and the frustration you must feel, I have had

to come to grips with just sometimes being the " bad " person. The " this is

just the way it is " parent. It hurts but I believe Meghann is the stronger

for it. I think tho maybe the night time after she falls asleep attempts at

the injection might be a lot like distracting the baby while mom runs out

the door. In the long run it causes more problems than saying goodbye face

to face.

ps. even children as young as six can give themselves injections....those

children with juvenile diabetes (insulin dependent) learn how to do it.

I hope that you are able to find something that works for you and Mickey...

Sharon and Meghann

JRA and PRS

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Hi Lynn,

Someone else already said that sometimes, as the parent, you sort of get

forced to play the role of 'the bad guy.' Because Josh gets his

injection done by a nurse, I've been able to avoid that in this

situation. They say that if we don't like the way a person responds to

us in a certain recurring situation, we may need to change our own

behavior in order to elicit a different response. Maybe it wouldn't be

so traumatic if somebody else did Mickey's. If you can try that, I

would. To see what happens. You'd be there for moral support, able to

console her afterwards if need be.

If Josh gets approved to start the human growth hormone treatment we'll

be trying something totally new. Fortunately, the one we're working

towards is just one or two injections a month rather than every day. I

felt a little bit anxious just thinking about doing a daily injection. I

guess with practice it would have become routine but this will be lots

more manageable I think. For both of us. I'm curious about how it will

go. After reading some of the responses here, I guess Josh might be able

to learn how to do it himself even, at his age.

I hope it gets easier, soon. There's got to be some sort of solution.

Aloha,

Georgina

Lynn Young wrote:

>

> Hi Georgina:

> I noticed in your post that you mention Josh gets his methotrexate shot at

> the hospital... is that easier on him? As you probably remember, I have been

> giving Mickey her mtx shots and it developed over time into a big problem

> with her anxiety causing her to vomit at the time of the shot, from stress.

> For the summer, I've been giving her the shot after she fell asleep, but

> this is rapidly becoming unmanageable as well. The night of the shot, even

> with a dose of gravol to make her sleepier, she is very wakeful, and I've

> had to stay up half the night trying to find a time she doesn't wake up the

> moment I tip-toe into her room. It's very stressful, now on both of us and I

> need more sleep!! I may see about getting someone else to do it, afterall.

> Any ideas, again, would be greatly appreciated, from anyone. We've (I think)

> tried it all, including a special councellor at the hospital, who councels

> kids on ways to reduce anxiety. I'm looking into some other therapies, play

> therapy or art therapy, but would welcome any and all ideas.

>

> Lynn

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Hi Lynn,

I sure wish there was an easy way to get shots. My son(Chase, 8 with

systemic) refuses to let me touch him with a needle....awake or asleep. He's

on his 9th week of methatrexate shots. So I also have to take him to the

dr.'s office and have a nurse do it. That's with his arm numb with emla

cream, holding him on my lap and covering his eyes. It seems he's alittle

braver around someone he doesn't know. I'm sorry I don't have any good ideas,

but just wanted to let you know what works for us. Hope this works for

Mickey....best of luck.

Barb Mengle

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It has been awhile since I worked with the compressed air method - but it was

designed for large volume multiple injections (we used them in the military for

troop immunizations) - I have never seen them used for another purpose other

than mass immuninizations - though my experience is limited to the military -

and time changes some things quickly. Personnally - on the receiving end of the

injection - I found the compressed air method much more uncomfortable (though,

if done correctly is very fast) - than the needle. But I never had a problem

with needles (until a run in with a particular dentist - but that's another

story lol) - however, most people that I knew and worked with in the military

preferred the compressed air method - (generally those with a needle phobia) so

different methods for different people.... I hope you find a way that works for

you!

Rob's Mom

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Boy its good to hear that other kids react the same way to shots. Every

Thursday when I had to give her MTX shot, I worried that the neighbors

would hear her yelling and crying and me yelling and crying and think I was

beating her. It's not easy to do something so invasive to your own little

baby!

Pat

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Our doctor has suggested I take to a psycologist regarding the

injections. If we have to start them again, I am going to take her there

first. I cannot go thru the anguish again.

Pat

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Hi,

Some of you may recall that a year ago we had a similar problem with our

son Damien who was six years old at the time. It got to the stage where

even the Paediatric Nurse at our local hospital refused to perform the

injections as it was so stressful for all concerned. I am very pleased to

say that it is not such a problem now . Obviously he still doesn't like

Thursdays much (his MTX day), but after about five weekly visits to a child

psychologist he overcame some of his fears and has largely accepted the

situation. He has Ametop gel (amethocaine - probably similar to Emla)

applied to the area beforehand which seems to help.

Because of the problems this caused I went on a largely fruitless quest to

see if there were any needle-free alternatives. I discovered a number of

different methods whereby medicines could be delivered subcutaneously (via

compressed air etc), but did not find anyone who could supply methotrexate

in this form. It may be worth another search?

Best wishes,

Oliver

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pat..sorry it is karen again..i forgot and believe me I don't know how i

forgot this one(my mind is still trying to wake up this morning). Tabitha

was on the mtx shots, a nurse came and administered the shots at the time.

It was when she was nine or ten. The dr. I had at the time,thought that a

shot would be better than the pills. Well tabitha had such a reaction to the

shots it was unbelievable! Now this was a summer where the temp. got up to

106 degrees outside. Tabitha after the shot would get chills so bad i had to

put 6 blankets on her. Well i called the dr. he said try to give her

benadryl..well that didn't help.I finally told him no more! I mean her eyes

would become glazed and everything. So he suggested mtx orally mixed in

orange juice, which that did work for awhile but Tabitha said she would

rather go back to the pills. But I let her make the decision. I was glad

though, she said the mtx tasted nasty in orange juice.

Sorry to ramble thought i would add that. Oh by the way, sorry about the

punctuation or lack of. I type like I talk..without a breath..lol

karen

From: sdbpab@...

Reply-

Subject: Re: Needle Pokes

Date: Thu, 30 Aug 2001 17:08:13 EDT

Boy its good to hear that other kids react the same way to shots. Every

Thursday when I had to give her MTX shot, I worried that the

neighbors

would hear her yelling and crying and me yelling and crying and think I was

beating her. It's not easy to do something so invasive to your own little

baby!

Pat

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  • 2 weeks later...

Hi,

We don't have too much yelling over here ~ I don't give the injections

:) ~but there's a similar sort of thing that disturbs me: the state of

's shins. He has bruising on his legs that will not go away. We

wonder sometimes if it may be permanent? I hope not. I've talked to the

doctors about this, quite a few times. No definite answer. Some of these

bruises are years old but it looks as if he's a terribly battered child.

I'm sure there have been people who've wondered about it. Nobody's ever

said anything but if they did, they might not even believe my response.

Oh yeah, he's got arthritis? Oh, and the meds are what caused all that

bruising? Ah, well ...

Take care,

Georgina

sdbpab@... wrote:

>

> Boy its good to hear that other kids react the same way to shots. Every

> Thursday when I had to give her MTX shot, I worried that the neighbors

> would hear her yelling and crying and me yelling and crying and think I was

> beating her. It's not easy to do something so invasive to your own little

> baby!

>

> Pat

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Dear Georgina,

Read your post--and that sounds like Kate. It was really bad when she

was on Naprosyn. We recently moved and started a new school--and thats

the first thing I said to her teacher and nurse--I don't beat her but it

looks like it! She's a very active tomboy on her good days so you can

only imagine what she looks like at times! lol! I remember when she was

in preschool and on Naprosyn at the time--I picked her up and her

teacher was almost in tears because she bumped a table and had a huge

black bruise on her leg! Hers do tend to fade away--though she does

have a few " shadows " left. Her dr. told us it's due from the meds and

the fact that her immune system can't heal them as quickly.

and Kate

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Dear Teri,

I do agree that the naprosyn is a big factor in the bruising. Kate's on

very high doses of ibuprofen and Enbrel injections, and while she still

bruises easily--it's nothing like when she was on the naprosyn.

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Tabitha has been on Naporsyn for years and has never experienced bruising

except when she hurts herself.

karen

From: " Teri " <thep115@...>

Reply-

Subject: Re: Needle Pokes

Date: Wed, 12 Sep 2001 03:14:27 -0000

,

bruised pretty good too while on the naprosyn. The bruises

didn't go away until after the med was discontinued.

Teri

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