Re: can someone answer a question?

[Guest guest]

Amy,

My son (systemic JRA since 9months, now almost 7 years old) had a

salmon-pink rash that came and went when he was first ill. I recall a few

photos being posted on someone's web site a few years back but

unfortunately do not recall where. Perhaps someone else can help. I do

remember that because it came and went, the Doctors were very quick to get

their cameras out if they managed to catch it! He also had a few

lumps/nodules under his skin that came and went too. If I remember

correctly, the rash is a significant indication that the patient has

systemic JRA.

My son was too young to talk when he was first sick so I can't comment on

the achey/numb fingers but if you're worried I think you you should keep

pestering. Does your son see a Rheumatologist?

Best wishes,

Oliver

can someone answer a question?

I have a question. Buzz has been having a rash on the back of his

legs and then also on his left arm and left side of his chest. It

has come on during the late afternoon and usually fades by morning.

It is gone before we can go to the doctor. He says it hurts and

stings. It almost looks like heat; but it gets brighter and more

distinctive than I have ever seen heat. I just have never seen a

picture of the rash I have heard can go along with JRA and don't know

if it is that or not. Could it be? Also, since last night he has

complained that three fingers on his left hand feel numb and his

fingers feel funny. I don't know if it could be the arthritis moving

into his fingers or not. His left elbow and wrist have just started

swelling in the last week; but I have never heard of anyone saying

anything about fingers being numb or feeling funny. His doctor is on

vacation so I don't know what to do. I hate feeling like I'm crazy

or something running to the doctor with every new thing. I just

don't know what else to do.

Amy

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[Guest guest]

HI guys,

I havent gotten any email in days from this list...........has that been

happening to everyone??? n

[Guest guest]

We saw a immunologist a couple weeks ago. We have finally gotten an appointment

with a reumatologist we are waiting for that. He is supposed to be wonderful.

I have spoken with several people who see him.

Amy

can someone answer a question?

I have a question. Buzz has been having a rash on the back of his

legs and then also on his left arm and left side of his chest. It

has come on during the late afternoon and usually fades by morning.

It is gone before we can go to the doctor. He says it hurts and

stings. It almost looks like heat; but it gets brighter and more

distinctive than I have ever seen heat. I just have never seen a

picture of the rash I have heard can go along with JRA and don't know

if it is that or not. Could it be? Also, since last night he has

complained that three fingers on his left hand feel numb and his

fingers feel funny. I don't know if it could be the arthritis moving

into his fingers or not. His left elbow and wrist have just started

swelling in the last week; but I have never heard of anyone saying

anything about fingers being numb or feeling funny. His doctor is on

vacation so I don't know what to do. I hate feeling like I'm crazy

or something running to the doctor with every new thing. I just

don't know what else to do.

Amy

To manage your subscription settings, please visit:

For links to websites about JRA:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Amy,

Best of luck. If Buzz has JRA it is generally agreed he will need

specialised and aggressive treatment from Rheumatologists, Physiotherapists

and others. Our medical team in London, England has worked wonders.

Oliver

Re: can someone answer a question?

We saw a immunologist a couple weeks ago. We have finally gotten an

appointment with a reumatologist we are waiting for that. He is supposed

to be wonderful. I have spoken with several people who see him.

Amy

can someone answer a question?

I have a question. Buzz has been having a rash on the back of his

legs and then also on his left arm and left side of his chest. It

has come on during the late afternoon and usually fades by morning.

It is gone before we can go to the doctor. He says it hurts and

stings. It almost looks like heat; but it gets brighter and more

distinctive than I have ever seen heat. I just have never seen a

picture of the rash I have heard can go along with JRA and don't know

if it is that or not. Could it be? Also, since last night he has

complained that three fingers on his left hand feel numb and his

fingers feel funny. I don't know if it could be the arthritis moving

into his fingers or not. His left elbow and wrist have just started

swelling in the last week; but I have never heard of anyone saying

anything about fingers being numb or feeling funny. His doctor is on

vacation so I don't know what to do. I hate feeling like I'm crazy

or something running to the doctor with every new thing. I just

don't know what else to do.

Amy

To manage your subscription settings, please visit:

For links to websites about JRA:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Amy, finger numbness, elbow and wrist swelling, as long as there is good

coloring in his fingers. Then I would say, just another symptom of jra.

I have finger numbness as well , the eye problem may be Iritis, I had

same thing at the onset of my jra.

As for fash, take a photo of it when it is at its brightest, so you can

show it to the Dr..

[Guest guest]

marion..don't feel bad my emails are so out of order..i have the replies to

letters before i read the actual letter..lol. Try checking to make sure your

email address is still in the list.

karen

From: ajaomom@...

Reply-

Subject: Re: can someone answer a question?

Date: Mon, 23 Jul 2001 12:24:54 EDT

HI guys,

I havent gotten any email in days from this list...........has that

been

happening to everyone??? n

[Guest guest]

, thank you. The coloring is still good. His fingers are swollen this

morning; but the coloring if fine. Thank you. I am calling his eye doctor this

afternoon and getting an appointment. I don't know why I didn't think about

taking a picture of the rash. I will have to do that when it comes back.

Thanks again.

Amy

Re: can someone answer a question?

Amy, finger numbness, elbow and wrist swelling, as long as there is good

coloring in his fingers. Then I would say, just another symptom of jra.

I have finger numbness as well , the eye problem may be Iritis, I had

same thing at the onset of my jra.

As for fash, take a photo of it when it is at its brightest, so you can

show it to the Dr..

[Guest guest]

Hi Amy

I dont know if you have found a answer to your rash Question yet, but my

son had the rash and it did the same thing as it would flair in the

pm and be gone by AM. We took photos since at that time he had not been

diagnosed yet (systemic JRA). The photos were very helpful since the rash

was almost always gone by the time we got to the DR.

--- amyluker@... wrote:

> I have a question. Buzz has been having a rash on the back of his

> legs and then also on his left arm and left side of his chest. It

> has come on during the late afternoon and usually fades by morning.

> It is gone before we can go to the doctor. He says it hurts and

> stings. It almost looks like heat; but it gets brighter and more

> distinctive than I have ever seen heat. I just have never seen a

> picture of the rash I have heard can go along with JRA and don't know

> if it is that or not. Could it be? Also, since last night he has

> complained that three fingers on his left hand feel numb and his

> fingers feel funny. I don't know if it could be the arthritis moving

> into his fingers or not. His left elbow and wrist have just started

> swelling in the last week; but I have never heard of anyone saying

> anything about fingers being numb or feeling funny. His doctor is on

> vacation so I don't know what to do. I hate feeling like I'm crazy

> or something running to the doctor with every new thing. I just

> don't know what else to do.

>

> Amy

>

>

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