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Re: Re: Tucson, Arizona

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Arizona does not have a registration for Pediatric Rheumatologists. This is why

our Insurance Co. gave us such a hard time. They insisted there was no such

thing as a " Board Certified " Pediatric Rheumatologist.

~D

Re: Tucson, Arizona

> Hi, my name is Jane, my son Arlo has JRA.....I live in Tucson, I am

new to

> this and am learning fast......I would love to talk to someone in

Arizona, as

> I am told there are NO pediatric arhtritic physicians here in

> AZ...................thnx, Jane!

Well you might be right, but I would check with your state medical

licensing board to find out for sure. According to the NIH there are

approx 160 pedi rheumotologists in the US. The NIH has recently open a

pediatric rheumatology clinic to not only to help families but with

another purpose. And that is to facilitate exposure to this

subspecialty to new MD's.

http://www.eurekalert.org/releases/nnia-nop092000.html

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This " pediatric specialty " issue is very confusing. The rheumatologist my

daughter sees is listed as having a pediatric specialty by the American

College of Rheumatology (the web site you listed). Nonetheless, he is not a

pediatric rheumatologist. I asked him, and my daughter's pediatrician, about

pediatric rheumatologists in AZ. Both told me there are none. Just because

a doctor lists his discipline as including pediatrics, and sees pediatric

patients, does not mean he has specifically trained in and studied pediatric

issues. Of course, if he sees lots of children, hopefully he tries to keep up

to date on pediatric issues. Somebody said a Board Certification means

nothing. I don't understand this. Isn't that the only way to tell if a

rheumatologist has actually gone through specific training pertaining to

pediatric rheumatology? I do not mean to imply that a doctor who does not

have that certification may not be immensely well-qualified and quite capable

of treating children. But is he really a pediatric specialist?

Diane

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Yes, our doctor is certified in internal medicine, and that's great. But a

certification in internal medicine is not a certificate a doctor is an expert

in treating children. I have to wonder how many people out there mistakenly

think their child is seeing a " pediatric rheumatologist " when, in fact,

they're seeing only someone who practices in the area of pediatric

rheumatology. (The reason rheumatologists list pediatrics as one of their

disciplines is that there are many rheumatologists who won't treat children.

It only indicates their willingness to do so). Like , I did extensive

research on this issue when my daughter was diagnosed. I spoke with the

Arthritis Foundation, the Children's Hospital here in Phoenix, and numerous

physicians. All of them confirmed what I'm telling you. In most cases, the

extensive training specific to pediatrics is probably not required to

adequately treat a child with jra. There are lots of excellent

rheumatologists out there. In some cases, like Skyler's ('s son), a

" specialist " is necessary.

Diane

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Like I said, I can't speak from personal experience on this issue, however

I've had friends, family, and even heard from someone in this group that if

the doctor isn't board certified, their insurance wouldn't pay for the

specialist. Again, thank GOD this isn't a problem for us. There is only 1

pediatric rheumatologist in our area, and she isn't board certified. She is

a wonderful doctor and has done a great job with Kelsey.

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this is just something interesting. i was sent to a peds rheumy and i was

already 19!! are you going to keep your ped doc when your kids are over 18?

do you think the may be better at treating jra than an adult doc? just

curious about what you all think, brandy

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Hi ,

Here, the pediatric rheumatologists will be able to see Josh until he's

21 years of age. If need be. After that, he'll need to find a new

doctor.

Take care,

Georgina

Hendricks wrote:

>

> this is just something interesting. i was sent to a peds rheumy and i was

> already 19!! are you going to keep your ped doc when your kids are over 18?

> do you think the may be better at treating jra than an adult doc? just

> curious about what you all think, brandy

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,

I think we will keep the pediatric rheumy as long as they will let us come.

The adult rheumy's we have seen here in Boise have offices that resemble

cattle calls! Jana

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