prednisone 60mg

[Guest guest]

i still thing 60mg of prednisone is too much for jra alone. someone here

was asking bout side effects of that amount. well, i had that amount for a

kidney disease i was recently diagnosed with. i also have systemic jra but

refuse treatment so i was not happy at all with the prescription. even less

when the side effects hit me. i thought i was going to lose my mind and

take everybody else with me. i could be standing completely still and feel

like i was running marathons! my thoughts ran thru my head so fast i got

dizzy. i also had no sleep what so ever and could be depressed to sobbing

one minute and pure evil the next. it was horrible and i hope i never have

to do it again, my kidney disease is in remission and i pray it stays that

way cuz the next class of drugs are even worse. i was pulled off the

prednisone a lot faster than i see your kids coming down and i am feeling

the consequences jra wise. i still have chipmunk face, looks i am storing

winter harvest in my cheeks, lol. i can actually look down and see my own

cheeks, lol!! oh well, goodluck to all those on it, brandy ps, the docs

made me take prilosec so it wouldnt hurt my stomach

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[Guest guest]

a child might feel better TODAY cuz they think their pets going to

live, but what are you gonna do if it dies TOMORROW? "

brandy_erin@... ( Hendricks)

As far as what I told my son about his puppy having parvo virus, I being

a responsible person, went in there Sunday morning at 1am and woke Tally up

to tell him that Roy ( his puppy) might not make it through the night and to

allow Tally to say good bye to him. Tally told Roy he loved him and cried

himself to sleep after that while I continued to feed Roy by dropperful to

try to help him hydrated. What a low blow . Roy is doing just fine

now, he's still hospitalized and will be for at least another night. Tally

was devestated when I told him but I didn't sugar coat the information nor

would I. I did tell him to believe in Roy and I kept rocking Roy in my arms

all night long until the vet would see him.... telling him what a good puppy

he was and how i loved him. Sunday morning, I put him down to get Tally's

medicine. I come back and he had crawled over to the couch and was in the

process of trying to jump up there to be next to Tally. I cried hard once

again. , I can't believe you used the life or death situation of

Tally's puppy to hammer your point home. Then again, maybe I can expect that

from you as everything is about you. How hard you worked, how tough your

life is, how sick you are.... You refuse medication and then whine when

you're sore. Of course you have organ damage by now.... you have an

autoimmune disease and that means without therapy, it will get worse. Does

that make sense to you at all? But you are quick to point out how brave you

are for not taking the medication that is prescribed for you. I'm sorry

you have arthritis but I can't change that. I can't make it go away. I

don't owe you for your suffering. Your suffering now has much to do with

your stubborness for treatment. That to me, isn't courage, only stupidity.

I'm once again appalled that you would use Tally's puppy to question me

on sugar coating things. What I did tell him was that sometimes you have to

believe in others so that they can believe in themselves. I told Tally to

believe in Roy and to let Roy know how much we loved him. I went through 3

rolls of paper towels cleaning up bloody diarhea and 2 packs of puppy pads

Saturday night to sunday morning.

Sugar coat my ass.... you try telling a 5 year old his dog might not live

through the night and come and tell me how i sugar coat things. As for

being negative in that situation....I wasn't at all. Even when the vet told

me that there wasn't much to be done and how the night would be a good

indication of whether he would pull through, I didn't give up hope. I

didn't sit back with his illness any more than I do with my son's. I didn't

dwell on what statistics tell me should happen. The truth is that Parvo is

a puppy killer.... even with vacination, it's not 100%.

As far as my original letter... go ahead and tell people who have just

started dealing with this disease that they can look forward to a life of

pain, organ damage, crying yourself to sleep every night.... should I go

on? I'm not saying sugar coat nor not tell later, I am saying that

systemic arthritis is like having a bomb go off in your family. Your whole

life is shattered in an instant. You go from perfectly healthy to barely

able to move. Then you get on a list for support, and the only things you

hear is how your child's dose is too high, or how hard it is to life with

the disease as a jra'er.... You have all these people telling you how

tough it is but not many telling you that it's not bad or that it could be

worse.

There's a difference between telling someone what could happen and saying

it will. I value education and knowledge a heck of a lot. However, rather

than tell someone that you can expect to be in constant pain in the mornings

and that you will get a moon face, lots of hair, kidney disease, maybe

death... why not tell that person that the pain is worse in the mornings,

that the moon face is something that not every one gets, that the excess

hair will go away as the dosage decreases, and that the majority of the

people do not get kidney damage and die.

If you want me to start looking on the negative side of life...I will.

I will tell you all everything you don't want to hear about the meat you

eat, the air you breathe and even the milk you drink. I can tell you about

the parasites that lurk everywhere. About the bacteria that you are breeding

in your houses by using anti-bacterial products. I could tell you how

irresponsible you are for allowing your child to sit in the sun knowing the

risk for skin cancer. But you see, I won't. Because the truth of the

matter is that in life, you have to weigh the pros against the cons and then

make the best choice.

That is what I have had to do constantly. Do I put him on aggressive

drug therapy knowing it can cause terrible side affects like stunting of

growth or excess hairiness.... or do I not put him on and allow the disease

to ruin his joints and keep him bedridden? Do I not force feed liquid to a

puppy with bloody diarhea because he will only poop it out or do I try

anyways? Life is about tough decisions. I make them everyday of my life.

My son makes them.

Grow up . You got your little wish. I will unsubscribe. I

don't need your negatives in my life. Using my dogs illness was a low blow,

. From 9 pm Saturday to 9 am Sunday, I nursed that puppy on the

longest night of the year. He may die yet but it wasn't without a fight

from all of us.

This should make you happy . Once again, you will be the center of

attention. You will have people tell you how they know you didn't mean to be

nasty and how courageous you are to not take your medicine and living with

your pain. Do you think people get on here to listen to your pain??? I

joined this list for support of myself having a child with JRA and not to

listen to someone with JRA complain about every facet in her life. I joined

to gain hope through the stories of other parents who have children who live

a normal life with JRA not to listen to a JRA'er complain about the choices

her own parents made.

kathy

[Guest guest]

kathy, you are just pitiful. you take every word i type and turn it into

some kind of personal insult. the simple truth of the matter was that you

did tell patti " not to tell her son the negatives please. " then, after you

acted like i told this lady the worst story she could ever fear hearing, you

wrote forever like she was suicidal or something. i am very sorry that your

son tallys puppy is so ill, i'm sure evryone here has had an animal they

loved pass away and break their heart. who are you to make such judgements

on someones personal character? i have never once called myself brave, i

have just done what i was forced into doing just to survive. everyone here

shares their own experiences, but you dont seem to think i should be

permitted the same right? i do not think my life is as horrible as you have

made it out to be. yes, some bad things have happened to me, but here i am

and doing a great deal of things to be only proud of. of course, now i will

be called conceited? you are something else, you call me whiny? please. i

did not wish for you to unsubscribe, but if you do, its your own weakness

and lack of character. you did know it was wrong to tell your son that his

pet wouldnt die or you wouldnt have gone back and ammended what you said in

the first place. i have pets, 8 indoor cats, that i love dearly and would

be broken hearted if they passed away. if jra scares the hell outta

someone, its for a reason. and just for you kathy, since i have been bold

enough to say that i refuse meds, several other jra-ers have also come

forward and said they do the same and are just as fine and healthy. my

kidney disease is not a result of my decision, so your attempt to make me

feel like i somehow asked for it failed. the damage to my kidneys was not

permanent. you might want to ask yourself something since you want to call

me stupid kathy. yes, i have systemic jra. no, i do not take any

medication. but, i dont get the sky high fevers like some of the kids of

the parents on this list get. i also dont end up in the ER every other week

or have weird rashes all the time. i am not bedridden. i am not crippled.

see anything curious yet? i have never made myself seem to be some kind of

jra supergirl or done even a portion of what you accused. it breaks my

heart to see what these kids are going through and to know some of what they

may face in their futures. i have read updates that put me in tears and

told a dear friend i made on this list that i wished i could do something

just to keep them from suffering. so, you can insult, judge, whatever. if

it makes you feel better to vent and just go crazy, go ahead. can you look

back and be proud? the truth is still the truth and no matter how many

opinions you have or judgements you make, it wont change or get any easier

to swallow. your wish will not come true, i will not unsubscribe, i fought

tougher opponents than you.

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[Guest guest]

,

The only point in your letter I will comment on is the fact that I told my

son on Sunday, after bringing his puppy to the vet, that his puppy would live

not Saturday night during the worst of it. His rash symptoms developed

after the episode, as they commonly do with stress for him, not before. I

didn't ammend what I said, you just chose to pick out what you wanted to

comment on.

kathy

[Guest guest]

Kathy,

I'm really sorry to hear about your puppy being sick. Another of my

online friends, who has adult onset systemic RA, got a puppy as a

companion/best friend .... after his marriage dissolved and around the

time his Mom died. Unfortunately, his pup had Parvo too. It was a very

sad time. You and Tally are in our thoughts. Kayla cried when I read her

your story. She thinks, since our little Marlee has completely

recovered, that there still might be a happy ending. I guess there

isn't, this time?

I'm so sorry.

Georgina

akally@... wrote:

>

> ,

> The only point in your letter I will comment on is the fact that I told my

> son on Sunday, after bringing his puppy to the vet, that his puppy would live

> not Saturday night during the worst of it. His rash symptoms developed

> after the episode, as they commonly do with stress for him, not before. I

> didn't ammend what I said, you just chose to pick out what you wanted to

> comment on.

> kathy

[Guest guest]

hi brandy

i feel the same never hold back the truth from a child you have to be honest

with the child

i know about parvo virus

my sister was told not to let ANY puppies on her land due to the dogs have

died from this on her land

she has to wait 10 years before the parvo virus dies you are saying WHAT

the parvo virus lingers on the ground for this long

its a bad thing for a pup to die from this but now my sister said shes not

allowing no animals on her land for this period

if anyone has a pup becareful where its been and where it goes

get the shots PLEASE a heart broken child is sad

Robbin

[Guest guest]

In a message dated 11/1/00 5:27:21 PM Eastern Standard Time, gmckin@...

writes:

<< Kathy,

I'm really sorry to hear about your puppy being sick. Another of my

online friends, who has adult onset systemic RA, got a puppy as a

companion/best friend .... after his marriage dissolved and around the

time his Mom died. Unfortunately, his pup had Parvo too. It was a very

sad time. You and Tally are in our thoughts. Kayla cried when I read her

your story. She thinks, since our little Marlee has completely

recovered, that there still might be a happy ending. I guess there

isn't, this time?

I'm so sorry.

Georgina

>>

Georgina,

Roy is still in the puppy hospital. When I called the vet Saturday night

asking what to do, he told me that since it had progressed pretty far, to

wait out the night and see. He wasn't terribly optimistic but then again,

parvo is a terrible thing. When I brought Roy in, he was very sick. He

has been on IV and antibiotics now since Sunday morning but he is still

alive. Roy had his parvo vaccination but that isn't 100%. He is also tan

and brown (a dashound) and that color tends to get parvo pretty severe. I

never knew that before but that's what the vet says.

Tally is doing well about it. He wasn't when I woke him up at 1am to

tell him.... and it took most of Sunday but the rash he developed later

Sunday went away by Monday. Ahhh, what stress does on the body. The

vet let Tally watch him intubate Roy and I think that was a good thing.

Sometimes I feel as though no matter what I do turns out bad. The only

reason I bought Roy is that Tally really wanted him. So I bring him home,

vaccinate and feed him, and then he gets sick. Roy hasn't been with us

long but he has been so good for Tally. Since we have had him, Tally has

been reduced from between 9 and 10ish to now, 5 and 5.5 mg of prednisone.

Roy represented more than just a puppy. While changing his pads it brought

me back to the terror I felt those first few weeks in the hospital with

Tally. The helplessness, the fear, the wondering why... first my son, then

my car, then my dog, what was next?

Humans have such an ability to love. But the same thing that allows us

to love, has the ability to strip us raw and dig us deep with pain. I've

always been raised to be strong, to stay objective and love often doesn't

come into that. My son is probably the only thing I posses that I would not

survive losing. Then Tally picked Roy and I found myself doting on this

puppy. He fit into my purse so he went shopping with me. He slept in the

crook of my arm at night... I read somewhere once that sometimes long

after stress, something will remind you of it again, and you'll be locked in

that moment that had happened so long ago. I felt that way on Saturday

night. I felt I was back with Tally in the hospital, watching the doctors

try to figure out why he was so sick. This time, with Roy however, was

different in that I could fight and I could do something rather than just

watch.

Gosh, I'm rambling. I hope Josh continues to do well. I know he's

struggling with the decrease in prednisone. Tally always has it hard for

about 3 days right after a decrease. I'm hoping we can keep going down.

We have been on the perna now over 6 months and that was when my professor

believed we would start seing beneficial results. He goes to have his

blood tested for IL2, IL6, IL12 and TNFa in another week or so.

Other than the dog and Tally's decrease, my life is relatively boring.

Dating a grad student here. Struggling in quantitative analysis and physics

but it could be worse, I suppose. Tally's school has been extremely

supportive and so have my professors. I'm starting to think graduate school

but that's pretty scary as well.

I'll keep you in my thoughts. I wish I knew of something that could

help Josh but Still's is definately something you know more about than me.

shalom,

kathy

[Guest guest]

Kathy, sorry to hear about your puppy. We also have a dog that we've

all grown attached to, so I understand.

Thanks for giving me so much to think about. I especially enjoyed your

quote by Booker T. Washington.

I'm not sure about how to email you privately. I tried akally@...

but it came back to me. Isn't that correct?

Patti

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