Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Patty, his rheumy should be monitoring his blood levels. If it looks like he is slightly anemic I can give you herbal ideas that helped us. Bonnie Regional Director, PHD Products http://phdproducts.com mailto:bonnie@... 800-863-3403 Re: this is new to us >Thanks AJ! > >I'm in a nervous state right now and you must be able to sense that. >You told me exactly what I needed to hear. If you've been on 60 mg's of >pred. before, then I feel better. > >I'm easily confused because this disease is new to me, the meds are new >to me, and I'm hearing words I've never heard before. Does it take a >long time to get down to say, 30 mg's/day? How long do you usually stay >at 60 mg? What side effects might I expect? Of course, everyone is >different. already experiences loss of sleep, and he's ok with >that. Is there something I should be looking for to determine if he's >becoming anemic? > >Thanks for your help! >Patti >________________________________________________________________ >YOU'RE PAYING TOO MUCH FOR THE INTERNET! >Juno now offers FREE Internet Access! >Try it today - there's no risk! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. > > >To receive JRA-related news and research emails, please consider >joining the JRA-info list. To sign up, visit: jra-info >If you subscribe in the digest mode you will receive no more than one email per day. > >For links to websites with JRA info please visit: >http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi AJ, Thanks for all your help! I'll be sure to check out rxlist.com. We live in Weston, Wisc., which is just below central WI. How about you? I called the doctor today ('s rheumatologist) and she said, " yes, 60 mg is a lot, but we really want to kick it out of his system (his pain has been so great) and soon we'll go to 50 mg, then 40 mg, and if all is going well, we'll continue going down by 5's " . Does that sound realistic to you? His appetite has been increasing! is small anyway for 17. He was 135 lbs (now 128 lbs.) so he didn't lose too much and he's 5'7 " . He's the smallest guy on the football team (out of 75 boys). He goes to school from 8 - 11:30 a.m., comes home, has lunch, and takes a nap. I'm hoping that will help with the sleep thing. He wakes up several times in the night but can usually fall back to sleep. His doc suggested Benadryl to help him sleep. Tylonal, not Advil for headaches. He's been taking two tums in the morning and two at evening for stomach pain and calcium. Any advise is welcome!! Patti ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Hi Patty, Try not to worry too much. Like others have said before now, a lot of times they will prescribe high dose steroid therapy, for short periods of time. For lots of different conditions, including arthritis. And often, it's very effective in easing symptoms. When it's used as a regualr maintenance drug they try to get the dose as low as possible, while still controlling the symptoms. This is in those cases where the person doesn't respond well enough to other available therapies or while they are waiting for another med to become effective, as some need to be administered for a period of time before levels are built up enough to start showing effect. Like Methotrexate, one of the DMARDs. Which can often take 6 weeks or longer to start showing benefits. If it helps you feel any better, my sister's cat who weighs about 10lbs takes 10mgs of prednisone daily because she had a problem with benign tumor growths. That would be considered a high dose to use for long-term therapy, at 1mg per pound. But the only change in the cat's outward behavior is that she eats a little more than she used to. And her tumors have shrunk. She appears to be doing really well. This may be exactly what your son needs to control his arthritis symptoms right now. Early aggressive treatment usually has the best outcome, as this illness can be very aggressive. Take care, Georgina Patti J Desotelle wrote: > > Thank you everyone who has responded! I really appreciate hearing what > everyone has to say - and of all of your experiences. > > I do have some questions. What is a 504 plan? > > Also, I went into an arthritis chat room last night and someone asked how > much pred. is getting. He's getting 60 mg/day. A man responded > that he was very shocked... he said this is an extremely dangerous > amount - way too high. Also that I'd better get another doctor. Well, > of course now I'm concerned and somewhat worried. What should I do? Any > suggestions? Is this too much? > > Your thoughts would be greatly appreciated! > Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Patty, Alana did email , don't know if he's opened his mail lately. Just thought I'd let you know. Bonnie Regional Director, PHD Products http://phdproducts.com mailto:bonnie@... 800-863-3403 Re: this is new to us >Thank you everyone who has responded! I really appreciate hearing what >everyone has to say - and of all of your experiences. > >I do have some questions. What is a 504 plan? > >Also, I went into an arthritis chat room last night and someone asked how >much pred. is getting. He's getting 60 mg/day. A man responded >that he was very shocked... he said this is an extremely dangerous >amount - way too high. Also that I'd better get another doctor. Well, >of course now I'm concerned and somewhat worried. What should I do? Any >suggestions? Is this too much? > >Your thoughts would be greatly appreciated! >Patti >________________________________________________________________ >YOU'RE PAYING TOO MUCH FOR THE INTERNET! >Juno now offers FREE Internet Access! >Try it today - there's no risk! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. > > >To receive JRA-related news and research emails, please consider >joining the JRA-info list. To sign up, visit: jra-info >If you subscribe in the digest mode you will receive no more than one email per day. > >For links to websites with JRA info please visit: >http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
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