Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 MICHELLE great remember the one voice goes along way you took the stand there in Va now if we had a parent in each state do this the mini grand prix here in atlanta sept 15th and sept 17th will have TV coverage from what i understand i am hopeing it will get the coverage it so dearly needs Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 Great news!!!! The anchor I emailed responded to my letter! I'm sending a copy of it at the end of this. I emailed her back and told her an interview isn't totally out of the question, but maybe we could other parents/kids in our area together for a group interview of some kind. Anyway, I hope this gets something started... usually people in our area respond well to news, especially when it involves children. We'll keep our fingers crossed! Note from news anchor in response to a suggestion for a story on jra: , I agree and I have tried to set up a story on this before...I know you said that you were not interested in being interviewed but maybe you know someone who is...thanks for you time and for watching...we have so many health topics...this was a good reminder for me to get back on track with this one... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 coool this is great and if everyone of us do this we will get the BALL rolling on coverage on this and we all need to stress this important part we as parents NEED more doctors who specialize in this in EVERY STATE and if you kinda let them know ARIZONA needs one BAD maybe david and skyler and the others there will get one and maybe those who have to travel along way may get one closer to yall this is looking GREAT we are a TEAM here Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 michelle also let them know that there are parents that dont have the access to internet who feel that they are alone in this fight with JRA we did feel alone til we all found this group here you GO GIRL shake that booty lolol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 Robbin, LOL... I did think of that; we don't have any support groups in our area, that I know of anyway. The news anchor, , emailed me again and said she will be talking to me soon I'm looking forward to it, if I can help just one person understand JRA or help just one person in any way, it will be worth it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 yes your right just one hand helps another then the circle begins and we become a bigger group this is going to be great if everyone can do this you can get the TV stations email and email any now on the internet i called the doctor she wanted me to bring melissa in but i told her we had a appointment sept 12th and we would try and make it that long this is to see what goes on with melissa so it will be a better exam she is going to write a letter of what melissa has and her restrictions for me so i can give to the school i told her if melissa did the number again like monday i would be calling her ASAP she said ok she did ask if the medication was working i told her i aint sure but i am hopeing it kicks in soon Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Hi , Way to go!!!! I think it's wonderful that you've taken this initiative to help educate others. Great job! Aloha, Georgina > LOL... I did think of that; we don't have any support groups in our area, > that I know of anyway. The news anchor, , emailed me again and said she > will be talking to me soon I'm looking forward to it, if I can help just > one person understand JRA or help just one person in any way, it will be > worth it. > Quote Link to comment Share on other sites More sharing options...
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