Re: Lupus etc.

August 10, 2000

My mom and grandma both have fibro mialgia. Just a little something else to

add to our history!

August 10, 2000

A few other related conditions that should be noted

here are Fibro Mialgia and Rheiters Syndrome. After

discovering Skylers condition I found I was

surrounded. My rommate has Rheiters, my best friend

has Lupus, several ladies I know have Fibro Mialgia

two neighbors have AOSD! Suddenly I was wondering how

rare this condition(s) is(are).

--- Aimee Moles <ssahm@...> wrote:

<HR>

<tt>

Thanks to all for the thoughts re: family

plagues! & nbsp; I also appreciate

the comment about early treatment. & nbsp; It is really

easy to blow off

early symptoms. & nbsp; In fact my doctor said that it

can sputter along for

years before becomming really noticable or even

showing up in the

blood work. & nbsp;

What I know about Lupus is that it is different for

everyone just

like JRA. & nbsp; Some people have mild symptoms and

some have a lot of

trouble. & nbsp; My sis had had it since age 13. & nbsp;

There are plenty of

informative websites out there with good information

in them.

Aimee Moles (Karl's mom)

</tt>

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<tt>

For links to websites with JRA info visit:

<a

href= " http://www.geocities.com/Heartland/Village/8414/Links.html " >http://www.geo\

cities.com/Heartland/Village/8414/Links.html</a></tt>

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__________________________________________________

August 17, 2000

Question: About 4 years ago I was hospitalized over a supposed allergic

reaction. It started with a rash on my forearm, thought was chicken pox --

ER said allergic reaction and gave me steriods and corto cream. Within 1

week I was swollen so badly, turning black/blur, ached everywhere, itching

was uncontrollable, rash everywhere.....was immediately put in hospital.

Docs pumped me full of steriods, took pictures for their educational files

and thought I had lupus. Went to a specialist, found no proof of lupus.

Technically docs are saying I had a severe allergic reaction to the

antibiotic Cephaclor, but no real proof of that either.

Then 1 week ago every morning I'd wake up itching with little pimple like

bumps on me here and there. Nothing major and thought maybe spider bites.

Then three days ago I woke up with a lot more little bumps and major itching.

Went to doc yesterday, not regular doc and this one could have cared less.

I told him even though I have no rash or swelling, the itching feels the same

as 4 years ago. He gave me a corto shot and sent me home with a 6 day taper

pack of steriods. He's tentatively thinking a reaction to stopping Macrobid

(an antibiotic I was taking for 6 months for bladder infections) 5 days ago.

I don't believe this because the original bumps started before I quit the

Macrobid. The itching is driving me crazy. I'm taking Atarax to help keeps

things at bay.

Wondered if anyone can help lead me in the right direction....I know if I'm

not better tomorrow, I'm going to try and see my allergist. Wondered if this

is lupus still undiagnosed?

Thanks,

Sandi A. (Ashli's mom)

August 17, 2000

Sandi

my mother in law has lupus and vasculitis and it took her a long time to be

diagnosed. her bloodwork came back borderline her allergist said. Finally she

went to a rheumy who did multiple different lupus test. Then she was

diagnosed with both. Also she never had the lupus rash on her face. Only the

vasculitis rash elsewhere on her body.

Charlene(chychys mom)

August 18, 2000

Sandi

this is very tricky

the doctor thought melissa had lupus first before more testing showed JRA

is the rash only on the joint area?

melissa never has had a rash just swelling and pain

but since your on atarax does this seem to help?

a few years ago i had noticed my back was itching alot asked my hubby to see

what was there he asked me where i had been cause my back was bad with a

rash

i went to the doctor who said i had a bad case of hives

how in the world could it be hives lololol

the doctor asked me a bunch of questions and confirmed it was hives

gave me a nerve pill and said i would be ok

i laughed it off

it worked though

but he said moms go and go and stress builds up and the body releases it but

when it cant it will come out as hives its emotional lolol this one made my

day when he said that nerves play a good part of a woman

tragedy tramatic happenings arguements different things

but if you have not used anything different on your clothes or rubbed up

against anything different OR been out where chiggers are

and the doctor said no lupus but prescribed a nerve pill ( atarax) it could

be just hives

but if this continues PLEASE go back to the doctor and MAKE him do something

Robbin

August 23, 2000

This sounds identical to what Skyler experienced at

onset of JRA - Stills. He had these and other rashes,

was treated for Fungal rash, Hives, Excema and Chicken

pox. His stills rash was diagnosed as Eruthema

Multiforma (a rash normally associated with Ebstein

Bar disease) and he was quite the spectical at Phoenix

childrens Hospital as these were so rare to see.

We were given several topical ointments including

steroids. The latter work the best but I am allways

concerned about all the steroid uses. The little

pimple like things still come around and sometimes do

not go away until we physically break them.

We are still not sure if he has or has not had chicken

pox.

[ & Skyler]

--- mommytme@... wrote:

<HR>

<tt>

Question: & nbsp; About 4 years ago I was hospitalized

over a supposed allergic

reaction. & nbsp; It started with a rash on my forearm,

thought was chicken pox --

ER said allergic reaction and gave me steriods and

corto cream. & nbsp; Within 1

week I was swollen so badly, turning black/blur, ached

everywhere, itching

was uncontrollable, rash everywhere.....was

immediately put in hospital. & nbsp;

Docs pumped me full of steriods, took pictures for

their educational files

and thought I had lupus. & nbsp; Went to a specialist,

found no proof of lupus. & nbsp;

Technically docs are saying I had a severe allergic

reaction to the

antibiotic Cephaclor, but no real proof of that

either.

Then 1 week ago every morning I'd wake up itching with

little pimple like

bumps on me here and there. & nbsp; Nothing major and

thought maybe spider bites. & nbsp;

Then three days ago I woke up with a lot more little

bumps and major itching.

Went to doc yesterday, not regular doc and this one

could have cared less. & nbsp;

I told him even though I have no rash or swelling, the

itching feels the same

as 4 years ago. & nbsp; He gave me a corto shot and sent

me home with a 6 day taper

pack of steriods. & nbsp; He's tentatively thinking a

reaction to stopping Macrobid

(an antibiotic I was taking for 6 months for bladder

infections) 5 days ago. & nbsp;

I don't believe this because the original bumps

started before I quit the

Macrobid. & nbsp; The itching is driving me crazy. & nbsp;

I'm taking Atarax to help keeps

things at bay. & nbsp;

Wondered if anyone can help lead me in the right

direction....I know if I'm

not better tomorrow, I'm going to try and see my

allergist. & nbsp; Wondered if this

is lupus still undiagnosed?

Thanks,

Sandi A. (Ashli's mom)

</tt>

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<tt>

For links to websites with JRA info visit:

<a

href= " http://www.geocities.com/Heartland/Village/8414/Links.html " >http://www.geo\

cities.com/Heartland/Village/8414/Links.html</a></tt>

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