- Not Long Term

[Guest guest]

:

Naprosyn can cause scarring, which is reason why if you're on it you

should be protected with lots of sun screen.

In terms of growing out of JRA, what we were first told when Elliot

was diagnosed about 4 years ago is about 1/3 grow out of it perhaps

after only a year. A higher percentage grow out of JRA by

adulthood. 1/3 have severe problems, and 1/3 have very manageable

JRA. I don't know if there was scientific basis for this. There was

a study posted on this site about people growing out of JRA.

Some excerpts I found which are in earlier posts:

1)

Sent: Wednesday, November 17, 1999 8:53 PM

Subject: [ ] Article re Long Term - Pt 1

From: " Charlie S " <charles_c_s@...>

http://bioscience.org/1998/v3/e/prahalad/e13-22.htm

[Frontiers in Bioscience 3, e13-22, March 21, 1998]

Reprints PubMed CAVEAT LECTOR

LONG-TERM OUTCOME AMONG PATIENTS WITH JUVENILE RHEUMATOID ARTHRITIS

Sampath Prahalad, Murray H. Passo, M.D

....

2)

Date: Wed, 10 May 2000 02:01:11 -1000

From: Georgina <gmckin@...>

Subject: JRA Persisting Into Adulthood

Title: Juvenile Chronic Arthritis Persists in Adults

URL: http://rheumatology.oupjournals.org/cgi/content/abstract/39/2/198

04/04/2000

More than one third of cases of patients with juvenile chronic

arthritis have active disease that persists into adulthood, according

to a retrospective study. ...

Good luck.

Charlie

> Hi everyone,

> This is in response to some questions that people have asked. I

don't

> remember exactly what all I wrote in my last letter, so if I repeat

> anything, I'm sorry. As I've read some of your stories I am so

grateful

> for our journey-in comparison- so far. Several of you have mentioned

> difficulty in getting a diagnosis. And meds/symptoms that are all

still

> very foreign to me. I'm really hoping that they stay that way as

far as

> hands on knowledge.

>

> I have a little girl, , who just turned 3 this April. She has

had

> knee pains, mostly in the middle of the night, off and on for the

past

> six month or so. My church has a prayer loop, and a request came

over

> for the 4yo grand daughter of a couple whose knees were hurting. I

later

> asked about the little girl, and the grandmother told me that it was

> JRA. I spoke with my brother in law, who is an internist here in

town

> and he told me that the next time she complained to check for

swelling

> and heat in her knees. Both were present so I called him back and he

> spoke with the rheumy in his clinic. The first question she asked

him

> was if had blonde hair, which she does. She's not a ped rheumy

so

> she wouldn't see , but gave us the name of the ped here in town

that

> handles the " day to day " stuff here for several children. She ran

blood

> work and did x-rays on 's knees. She does have fluid on both

knees

> but most of her blood work came back in range. Her ANA was

positive, but

> when the did the titer the norm is less than 40 and her's came back

at

> 40. (Her platelets were also a little high, but not much.) So not to

> bad. But still enough that Dr. Sneed prefers we see a specialist. We

> don't have a specialist here so we have to drive to Little Rock. We

> aren't going until the 25th of July because the first two weeks of

the

> month are extremely busy for my husband and it would be virtually

> impossible for him to go. We're in boro, about 2 1/2 hours

away, so

> it will be an all day event with the dilated eye exam and everything

> else. Until then is taking Naprosyn twice a day. She shows

> absolutely no symptoms. Our only problem is maybe once a week

(sometimes

> more, but usually less) she wakes up crying with her knee(s)

hurting. No

> limp, no major swelling-I had to look for it, no difficulty in

keeping

> up with her brothers. I'm just needing to know as much as I can so

that

> we stay symptom-free.

>

> My questions as of now: have any of you heard of Naprosyn causing

> scarring on the face, especially around the eyes of blonde/blue eyed

> girls? If so, do you have a source or is that just what your dr.

said?

> Do you know of a good web site for looking up meds? I looked it up

in a

> PDR, but I don't remember how current it was.

> Do any of you know the " chances " of her outgrowing this? I had read

that

> somewhere, but sometimes chances consist of 1%.

> Side effect/reactions to the eye exam. Just what will she be like

> afterward? I've never had that done so I know very little about it.

>

> I think that's all for now. I'm sorry that took so long. It usually

> takes me a lot of words to say things. (That's my husbands nice way

of

> saying that I talk a lot.)

>

> TIA for all of your help,

>