3 year old diagnosed with JRA

[Guest guest]

hello

my son zachary has jra we found out when he was three he is now 5 yrs old the

doctors want to try a new drug on him because he is having so many flair ups

mtx is the drug and they are also putting a port in his chest because he has

so many problems with getting ivs in him we are also trying to get some info

since it is rare that boys have jra and i want more info on this methotrexate

good luck

angie

[Guest guest]

Hello! My name is and my 3 year old daughter, Kelsey, has

just been diagnosed with polyarticular JRA. She has seen a pediatric

rheumatologist and is now taking Naprosyn. She is also going to

physical therapy 3 times per week to start. We need to schedule her

an appointment with an opthamologist within the next week or so as

well. My husband and I are relieved to have a diagnosis and to

finally have her on some medication and in therapy, however this is

very scary for us and we could really use some advice and input on

JRA.

We would love to know as much as possible about this and what we can

expect in the future. Thank you, and I hope to hear from you soon.

[Guest guest]

Hi ,

I remember being in your shoes, and how scared I was. My son has had

polyarticular JRA for 5 years, he is now 13. First of all you are doing

the right thing by seeing a pediatric rheumatolgist, let him guide you.

(We were not as lucky, didn't have one in our area so it took longer

to figure out what was happening.) The physical therapy is helpful,

they may suggest splints etc, we did that, but not for very long. The

eye doctor thing is a check up that needs to occur every 6 months

to make sure your daughter doesn't get Iridocyclitis, which can

occur in JRA kids. This check up is not painful. As far as what

to expect? My son does very well. He plays sports, has many

friends, functions normally to the outside world. The down side...

he is shorter and weighs less then I would expect at his age. Our

family believes in aggressive drug therapy to prevent damage to

his joints. As poly JRA kids have an 80% chance of out growing

this disease (with a negative RA factor), we are doing everything

we can to prevent damage. We are hopeful he will go into remission

at some point. Not all on this list have this same point of view, it

is something you will have to decide for yourselves as you become

more educated on the options. The downside is all the injections

and blood tests, which my son fights me on.

Keep your chin up, and ask questions to this site. The support

here is great, I wish I would have had it when my son was first

diagnosed. Jana

[Guest guest]

Dear , Welcome to the list. There are several parents on the list

who have little ones with poly arthritis. You have come to the right place

to share experiences and get info. My daughter, n age 11, was

diagnosed in NOvember with systemic JRA. We are still learning and probably

always will be. n started out on naprosyn, but she still had a lot of

joint pain and the other things that go along with the systemic JRA (fevers,

rashes, and organ enlargement, and weight loss). The problem with this

disease is that all children get it differently and different medications

work differently for all of the children. If naprosyn controls your

daughter's pain that is great. The doctors usually start out with something

like naprosyn, and then if they need to step up they might try plaquenil or

usually methotrexate. It is a confusing disease and you may find that the

doctors can't tell you what to expect in the future. They aren't being

evasive, it is just that the disease can take so many different courses.

The doctor should be able to give you some statistics on what may happen to

give you some idea what you may be up against. Praying for a cure.

3 year old diagnosed with JRA

>Hello! My name is and my 3 year old daughter, Kelsey, has

>just been diagnosed with polyarticular JRA. She has seen a pediatric

>rheumatologist and is now taking Naprosyn. She is also going to

>physical therapy 3 times per week to start. We need to schedule her

>an appointment with an opthamologist within the next week or so as

>well. My husband and I are relieved to have a diagnosis and to

>finally have her on some medication and in therapy, however this is

>very scary for us and we could really use some advice and input on

>JRA.

>We would love to know as much as possible about this and what we can

>expect in the future. Thank you, and I hope to hear from you soon.

>

>

>------------------------------------------------------------------------

>Avoid the lines and visit avis.com for quick and easy online

>reservations. Enjoy a compact car nationwide for only $29 a day!

>Click here for more details.

>1/3011/1/_/524922/_/956025994/

>------------------------------------------------------------------------

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

[Guest guest]

Hi ,

I am glad you found this list. I hope it helps you like it has us. I think

you are doing the right thing and hopefully your daughter will respond well

to the Naprosyn. Our daughter was also three when she was diagnosed with

JRA. McKenzie is now five years old. McKenzie first signs of JRA were in her

right eye, so seeing the ophthalmologist is a very good idea to rule out any

inflammation in her eye. We also started out taking Naprosyn and that never

seemed to control it enough and now Kenzie just started taking Mexto. That

was a very hard decision but with the help and info from this list it made

it a little easier. So far so good the swelling in her knee's is much better

and she has been getting up in the morning without any problem. We go see

the ophthalmologist ourselves next week to hope the metho is helping there

as well. The best thing I can tell you to do is ask a lot of questions and

this list will respond. Also call your Arthritis Foundation and they will

send you a ton of stuff. Hope we have helped a little and know that you are

not alone in this battle. Talk to you soon

Angel Beers

3 year old diagnosed with JRA

Hello! My name is and my 3 year old daughter, Kelsey, has

just been diagnosed with polyarticular JRA. She has seen a pediatric

rheumatologist and is now taking Naprosyn. She is also going to

physical therapy 3 times per week to start. We need to schedule her

an appointment with an opthamologist within the next week or so as

well. My husband and I are relieved to have a diagnosis and to

finally have her on some medication and in therapy, however this is

very scary for us and we could really use some advice and input on

JRA.

We would love to know as much as possible about this and what we can

expect in the future. Thank you, and I hope to hear from you soon.

------------------------------------------------------------------------

Avoid the lines and visit avis.com for quick and easy online

reservations. Enjoy a compact car nationwide for only $29 a day!

Click here for more details.

1/3011/1/_/524922/_/956025994/

------------------------------------------------------------------------

For links to websites with JRA info visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

my daughter hana's first flare up was dicovered the day we took her for her

first birthday pictures! went into remission for 6 years and them came back

was initially poly is no pauci...again in remission.

[Guest guest]

Hi Angie,

What type of JRA does your son have? I think girls and boys, in about

equal numbers, get the systemic type. You're right, though. They say

pauci and poly occurs more often in girls. You've probably seen the

other messages here already, about MTX. Hope they helped a little.

Take care,

Georgina

theg1111@... wrote:

>

> hello

>

> my son zachary has jra we found out when he was three he is now 5 yrs old the

> doctors want to try a new drug on him because he is having so many flair ups

> mtx is the drug and they are also putting a port in his chest because he has

> so many problems with getting ivs in him we are also trying to get some info

> since it is rare that boys have jra and i want more info on this methotrexate

>

>

> good luck

> angie