Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 From the Children's Hospital in san Diego, CA .... Research Involving Rheumatology Principal Investigator: Wutzke IRB Reference Number: 0638 Project Title: An Examination of the Factors Associated with Resiliency in Siblings of Children with Juvenile Rheumatoid Arthritis: A Family Systems Perspective. Description: An interview study to try to understand what helps some brothers and sisters (siblings) of children with arthritis adjust well to the illness. Eligibility Criteria: Gender: Male: Female: Both: X Age Range: From 8 to 11 years old Normal Volunteers: Yes Disease Name(s): Must have a brother or sister with systemic or polyarticular arthritis. Eligibility also includes a two parent household, a brother or sister that has had JRA for one or more years, and only two children in family is perferable, but may not be required. Exclusion Criteria: None listed Location: Children's Hospital and Health Center, 3020 Children's Way, San Diego, CA 92123 Requires Inpatient Stay: Yes No X Facility where the study is being done: Children's Hospital Rheumatology Department Compensation:Two movie passes Contact Name: Wutzke Contact Phone:(858) 536-8989 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Do you know of a research project like this one being done in Columbus Ohio? Cheryl JRA Siblings Research > From the Children's Hospital in san Diego, CA .... > > Research Involving Rheumatology > Principal Investigator: Wutzke > IRB Reference Number: 0638 > > Project Title: An Examination of the Factors Associated with Resiliency > in Siblings of Children with Juvenile Rheumatoid Arthritis: A Family > Systems Perspective. > > Description: An interview study to try to understand what helps some > brothers and sisters (siblings) of children with arthritis adjust well > to the illness. > > Eligibility Criteria: > Gender: Male: Female: Both: X > Age Range: From 8 to 11 years old > Normal Volunteers: Yes > Disease Name(s): Must have a brother or sister with systemic or > polyarticular arthritis. > Eligibility also includes a two parent household, a brother or sister > that has had JRA for one or more years, and only two children in family > is perferable, but may not be required. > Exclusion Criteria: None listed > Location: Children's Hospital and Health Center, 3020 Children's Way, > San Diego, CA 92123 > Requires Inpatient Stay: Yes No X > Facility where the study is being done: Children's Hospital Rheumatology > Department > Compensation:Two movie passes > Contact Name: Wutzke > Contact Phone:(858) 536-8989 > > ------------------------------------------------------------------------ > Now the best and coolest websites come right to you based on your > unique interests. eTour.com is surfing without searching. > And, it's FREE! > 1/3013/1/_/524922/_/956719395/ > ------------------------------------------------------------------------ > > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 whats this sibling research? please let me know Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Cheryl, I would ask your ped rheumatologist about any research projects that moght be ongoing in your area. Alot of times they don't bring up these projects unless you begin the conversation. Hope this helps ...kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 If you find out more about any sibling research, please let me know. Thank you. Cheryl Re: JRA Siblings Research > Hi Cheryl, > > Nope. This one the only one listed. > > ~Georgina > > sensha wrote: > > > > Do you know of a research project like this one being done in Columbus Ohio? > > > > Cheryl > > ------------------------------------------------------------------------ > You have a voice mail message waiting for you at iHello.com: > 1/3555/1/_/524922/_/956799462/ > ------------------------------------------------------------------------ > > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Hi Cheryl, I found out about this study at the ZAA website, at: http://www.formpro.net/zaa/ There's another site that deals only with clinical trials, called Clinical Trials, I think. You can sign up for news of any upcoming research in different categories of health concerns. Most studies recruit only adults 18 or over. Occassionally, there are listings for children. Let me see if I can find that site address for you. http://clinicaltrials.gov/ct/gui You can type in Juvenile Rheumatoid Arthritis, or maybe just arthritis, into the search feature and see what sort of research is currently going on. Hope this helps Aloha, Georgina sensha wrote: > > If you find out more about any sibling research, please let me know. Thank > you. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2000 Report Share Posted April 29, 2000 Thank you so much Georgina, I'm not an expert yet on this internet stuff. So these websites you provided me are a God Send. Again Thank you.....Cheryl Re: JRA Siblings Research Hi Cheryl, I found out about this study at the ZAA website, at: http://www.formpro.net/zaa/ There's another site that deals only with clinical trials, called Clinical Trials, I think. You can sign up for news of any upcoming research in different categories of health concerns. Most studies recruit only adults 18 or over. Occassionally, there are listings for children. Let me see if I can find that site address for you. http://clinicaltrials.gov/ct/gui You can type in Juvenile Rheumatoid Arthritis, or maybe just arthritis, into the search feature and see what sort of research is currently going on. Hope this helps Aloha, Georgina sensha wrote: > > If you find out more about any sibling research, please let me know. Thank > you. Cheryl ------------------------------------------------------------------------ Get paid for the stuff you know! Get answers for the stuff you don't. And get $10 to spend on the site! 1/2200/1/_/524922/_/956952009/ ------------------------------------------------------------------------ For links to websites with JRA info visit: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2000 Report Share Posted April 29, 2000 Georgina, Please keep me abreast on the this study if you can I couldn't find it on the web. Cheryl JRA Siblings Research > From the Children's Hospital in san Diego, CA .... > > Research Involving Rheumatology > Principal Investigator: Wutzke > IRB Reference Number: 0638 > > Project Title: An Examination of the Factors Associated with Resiliency > in Siblings of Children with Juvenile Rheumatoid Arthritis: A Family > Systems Perspective. > > Description: An interview study to try to understand what helps some > brothers and sisters (siblings) of children with arthritis adjust well > to the illness. > > Eligibility Criteria: > Gender: Male: Female: Both: X > Age Range: From 8 to 11 years old > Normal Volunteers: Yes > Disease Name(s): Must have a brother or sister with systemic or > polyarticular arthritis. > Eligibility also includes a two parent household, a brother or sister > that has had JRA for one or more years, and only two children in family > is perferable, but may not be required. > Exclusion Criteria: None listed > Location: Children's Hospital and Health Center, 3020 Children's Way, > San Diego, CA 92123 > Requires Inpatient Stay: Yes No X > Facility where the study is being done: Children's Hospital Rheumatology > Department > Compensation:Two movie passes > Contact Name: Wutzke > Contact Phone:(858) 536-8989 > > ------------------------------------------------------------------------ > Now the best and coolest websites come right to you based on your > unique interests. eTour.com is surfing without searching. > And, it's FREE! > 1/3013/1/_/524922/_/956719395/ > ------------------------------------------------------------------------ > > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
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