Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 Hello! Welcome! I don't have a teenager. I wanted to ask you a question. The disease never went into remission? The dr. told us it *might* go into remission when our daughter is 8 or 9 years old. I have a 3 year old daughter who has poly-articular. Amy At 11:07 PM 2/4/00 +0000, you wrote: >From: jonandloradavis@... > >Hi...my name is Lora and I have a teen (age 14) with JRA. She has had the >disease since she was 2. So much has happened over the past 11 yrs. I >really would like to talk to other parents who are struggling with a teen >with JRA. There are concerns that I have...Anyone out there? > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2000 Report Share Posted February 5, 2000 Dear Lora, I don't have a teenager quite yet. n is 11 with systemic JRA. She was diagnosed in November and we are working in getting it under control. If you have any questions, let me know. Teenager with JRA >From: jonandloradavis@... > >Hi...my name is Lora and I have a teen (age 14) with JRA. She has had the disease since she was 2. So much has happened over the past 11 yrs. I really would like to talk to other parents who are struggling with a teen with JRA. There are concerns that I have...Anyone out there? > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2000 Report Share Posted February 5, 2000 Lori I have a teenage son, he is 17 and has had JRA since he was 4. He has poly. He has been threw 3 surgery were he had to have reconstruction of the joints in his fingers. His next surgery will be on his wrist. He has been threw it all the teasing, he has played on the high school basketball team for 4 years and this year he quit. He doesn't like to talk about it. I will be glad to chat with you. Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Hi Lora, I have a 13 year old son who has had polyarticular JRA for 5 years. I am finding the beginning of the teen years to be difficult. What concerns do you have? Take care, Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Hi Alison, I was just wondering how old your son was, when he had his first reconstructive joint surgery? Thanks. Take care, Georgina AlisonEarly@... wrote: > > From: AlisonEarly@... > > Lori > I have a teenage son, he is 17 and has had JRA since he was 4. He has > poly. He has been threw 3 surgery were he had to have reconstruction of the > joints in his fingers. His next surgery will be on his wrist. He has been > threw it all the teasing, he has played on the high school basketball team > for 4 years and this year he quit. He doesn't like to talk about it. I will > be glad to chat with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Hi Lora, I see that you've signed on to the . Welcome I think this is a great starting point, to meeting other parents whose teen children also have JRA. Recently, a post was made about different chats specifically for teens with JRA and some for parents of JRA kids. I'll check and see if I can find the schedule for you, and resend it. Or maybe others here will have this info. If you have any specific questions or issues, feel free to ask and others here will respond. My son will be 11 in April. Not quite a teen yet but ... pretty soon. What type of JRA does your daughter have? Take care, Georgina jonandloradavis@... wrote: > > From: jonandloradavis@... > > Hi...my name is Lora and I have a teen (age 14) with JRA. She has had the disease since she was 2. So much has happened over the past 11 yrs. I really would like to talk to other parents who are struggling with a teen with JRA. There are concerns that I have...Anyone out there? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2000 Report Share Posted February 13, 2000 Georgina He was 12 years old and six month later they had to go back in and do the finger that didn't take. His 2nd surgery he was 15 years old. Now it is time to do his wrist and he is 17. Its a lot of pain that comes with these surgery. He said after the last one he wasn't going to have anymore. Right now I am trying to convice he that he need this. I know once he is 18 he won't have it. Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2000 Report Share Posted February 14, 2000 Hi , Thanks for sharing those details. It must be hard, especially when you have to go back in for more surgeries when they didn't work out the first time. After the post-op pain, did he have better movement/use of his fingers? Were the surgeries successful? There's another Mom who used to be on this list whose daughter underwent major jaw surgery, needing to have her mouth wired shut for 6 weeks. The worst part was that the end result wasn't what they had expected and try as they might, even though parents and doctors thought it was in her best interest, it's been very difficult to convince her to have it re-done. She doesn't want to repeat all the pain and inconvenience, especially if it may not work. This is one aspect of living with JRA that we have not had to deal with, at least not yet. I wish your son the very best and hope for a good outcome. Keep us updated on how it goes. Aloha, Georgina AlisonEarly@... wrote: > Georgina > > He was 12 years old and six month later they had to go back in and do the > finger that didn't take. His 2nd surgery he was 15 years old. Now it is > time to do his wrist and he is 17. > Its a lot of pain that comes with these surgery. He said after the last > one he wasn't going to have anymore. Right now I am trying to convice he that > he need this. I know once he is 18 he won't have it. > > Alison Quote Link to comment Share on other sites More sharing options...
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