Re: To Band Or Not To Band- That is the Question

[Guest guest]

that was well written. We are all in this together like you said,

though every situation and baby head is different! I must admit it can be

overwhelming to join this group if your plan is to not band. It is easy to

feel swayed by all the posts. My husband thought I was nuts when I first

joined the group. After reading a few posts one day, I'd decide to get the

helmet, after reading a few more the next I didn't want it. It was a crazy

experience. Finally after getting Frazier casted, I realized I made a

decision about banding based on other peoples situations and not my own. We

all want the same thing - our babies to have round heads!! The way we get

there is different for EVERYONE! I am very glad I found the group, I have

learned a lot from it and not just about Plagio. I am happy for everyone

whose babies graduate from their bands and for everyone that has success with

repositioning! We all must remember (me included) that what we experience

isn't fact and there is no evidence it will or won't work for the next

family. Though we so want our successes to work for everyone. Let's hear it

for all of our babies, if they only knew all the time, effort, thought, worry

and love that went into everything we are doing for them at this time all of

our stories would end the same, successfully.

Eileen and Frazier

[Guest guest]

I agree, .

I hope this puts an end to the tension around the whole topic. We're all here to be friends, and to share our experiences. I hope that the "non-head gear people" will continue to come out of the woodwork, as your stories count too! How are we supposed to tell other parents that repositioning can work if none (or few) of you speak up?

For me, 5 months worth of aggressive repositioning didn't work - at all. That is my story, and I will continue to tell it. I hope that those who have SUCCESSFUL repositioning stories will continue to tell their stories too.

Big hugs to ALL of you! This is a plagio group, not a head-gear group. ;o)

Kendra in Canadafor information on positional plagiocephaly, visitwww.plagiocephaly.org/support..

----- Original Message -----

From: rella1234@...

Plagiocephaly

Sent: Tuesday, July 10, 2001 2:26 PM

Subject: To Band Or Not To Band- That is the Question

I couldn't find the post that I wanted to respond to after searching and searching....but I just wanted to say that I don't think the "banding" moms are trying to encourage banding, I feel they (and I am now one of them- only a month into it) are simply restating their position. Someone said that they felt discouraged with repositioning because they would receive so many posts saying it didn't work for them. I think this is the very reason that Doctors scoff at the internet, because they feel we are just the blind leading the blind, and that we will absorb all this input and not think rationally because someone else told us to do something a certain way. I feel that all info is important. It is our job as moms and dads as members, to decipher all the facts put forth, and whether or not to apply them to our own situation. We are all very different, but similar in some regard. The moms that share banding stories only want those out their to know their situation....the non-banding moms just the same. It is a personal choice based on what is best for you and your family. I don't think any of the members discourage non-banding, they only emphasize their own situations. As rational people, we can either take that info and hype it up to the point that we become irrational, or take that info and decide what can and cannot be applied to our own circumstances. My doc everytime I say I joined a group online, their like, oh, no, they overdo it! Well, its my job to figure that out and do my homework. I have learned from everyone's experience and my decision was based soley on what was best for our situation. I am not against repositioning and really banded early because my son is in daycare, and I have virtually no control over what is happening with that darn flat spot. For those that have repositioned and its worked, more power to ya! I wish I could have circumvented the whole helmet thing myself if I thought that was a viable option. I hope that everyone continues to share, both negative and positive, to take the good with the bad advice/comments....as I have learned a great deal from making my own scale of justice for my son. Just had to go there! Sorry! ' mom For more plagio info

[Guest guest]

Annick,

I totally understand what you are trying to say and I agree that you should have received some more support than you probably did. I think because time ran out for some, they stress the importance of time. But you are absolutely right that the banding moms are getting a lot more encouraging words- but I think its a matter of there are a lot more banding moms speaking up about their lives and you relate it to what's happening in your own life as well and respond to that. There are fewer moms talking of repositioning, and I now know that in part is because you feel a barrage of no, no, no responses, so why bother speaking out, but I for one will start sending more warm wishes your way and I hope others will as well. I know we all need support, and I am so happy that you are achieving success! Keep up the good work and please continue to share your techniques (thanks for the post you shared on all of your tricks, I learned a few things from your response-thanks!). I look forward to hearing more about your little one and I will continue to share my experience as well and hope for support too!

Thanks and I hope there are no hard feelings out there, only that we should all be a little more supportive to the repositioning!

' Mom

P.S. I don't know if you read my post a loooong time ago, but I am a twin and after all of this with and the high incidence of plagio with twins, I pulled out a baby picture of us, and lo and behold, my brother has a slightly higher eye and his ear is just a smidge off. No one ever saw this whatsoever! We never would have noticed this had we not started scrutinizing facial features! He looks fine and this was never even considered a problem, because no one noticed! My mom was like, I can't believe it, I never noticed this! I think sometimes when it is slight, no one ever notices except us parents anyway- and sometimes that's only if your really looking for it! Just wanted to share that! Thanks for listening!

[Guest guest]

I'm the one who mention being discouraged when I post about repositioning.

I agree with you about the information. When I was making my

decision to band or not to band, I did want all the information I could

get my hands on and I was glad that everyone shared their stories about

repositioning or banding (successful or unsuccessful) with me. I also researched

plagio and the different therapies, read everything I found on the net

(and the archives of this group). I was able then to make up my own

decision based on my situation and the info. that applied to me and put

aside the info. that I received and that I didn't need or that didn't apply

to me. I definitively didn't make my decision only based on what

others told me to do.

What I was saying in my recent post was that when I posted and announce

my recent success, I was not expecting people to tell me again that it

didn't work for them and all the information... I think I was more

looking for support because repositioning is not always easy (as I'm sure

banding isn't always easy either), and I was so glad to see it's working

for me and for some others. I had been doubting my choice for 3 months,

and I was finally at peace and happy with my choice of repositioning.

In my mind, this group is about information

and support. I

have already made my decision based on the information I gathered and I'm

am doing the therapy I have chosen already, I'm mainly sharing the results

with you and looking for support I guess. I was also was hoping to encourage

others who have chosen to reposition like me. I wasn't looking

to reopen the question of should I band or not. I don't know if I'm

explaining my idea clearly here. It's when someone is posting that they

have seen improvement with their band, they are probably are not expecting

a reply in the line of: "Oh...be careful... we tried that helmet

x and my son's head didn't improve"... but more just a congrat or someone

else to share their success. Anyway, I'm not very good at explaining

in words my feelings, and maybe I shouldn't have posted (I actually wish

I didn't, and I really didn't mean to start a debate, I wanted to share

with you guys how I felt).

Annick

Mom to (27/01/01 - repositioning for the past 3 months)

Montreal, Canada

rella1234@... wrote:

I couldn't

find the post that I wanted to respond to after searching and

searching....but I just

wanted to say that I don't think the "banding" moms

are trying to encourage

banding, I feel they (and I am now one of them- only

a month into it) are simply

restating their position. Someone said that they

felt discouraged with repositioning

because they would receive so many posts

saying it didn't work for

them. I think this is the very reason that Doctors

scoff at the internet, because

they feel we are just the blind leading the

blind, and that we will

absorb all this input and not think rationally

because someone else told

us to do something a certain way. I feel that all

info is important.

It is our job as moms and dads as members, to decipher

all the facts put forth,

and whether or not to apply them to our own

situation. We are all very

different, but similar in some regard. The moms

that share banding stories

only want those out their to know their

situation....the non-banding

moms just the same. It is a personal choice

based on what is best for

you and your family. I don't think any of the

members discourage non-banding,

they only emphasize their own situations. As

rational people, we can

either take that info and hype it up to the point

that we become irrational,

or take that info and decide what can and cannot

be applied to our

own circumstances. My doc everytime I say I joined a

group online, their like,

oh, no, they overdo it! Well, its my job to figure

that out and do my homework.

I have learned from everyone's experience and

my decision was based soley

on what was best for our situation. I am not

against repositioning and

really banded early because my son is in daycare,

and I have virtually no

control over what is happening with that darn flat

spot. For those that

have repositioned and its worked, more power to ya! I

wish I could have circumvented

the whole helmet thing myself if I thought

that was a viable option.

I hope that everyone continues to share, both

negative and positive, to

take the good with the bad advice/comments....as I

have learned a great deal

from making my own scale of justice for my son.

Just had to go there!

Sorry!

' mom

For more plagio info

[Guest guest]

Just wanted to say I definitively didn't mean to start any tension or debate...

and as I told , I guess my post wasn't clear since I agree people

should share their stories to help others make informed decision...

Annick

Kendra wrote:

I

agree, .I

hope this puts an end to the tension around the whole topic. We're

all here to be friends, and to share our experiences. I hope that

the "non-head gear people" will continue to come out of the woodwork, as

your stories count too! How are we supposed to tell other parents

that repositioning can work if none (or few) of you speak up?For

me, 5 months worth of aggressive repositioning didn't work - at all.

That is my story, and I will continue to tell it. I hope that those

who have SUCCESSFUL repositioning stories will continue to tell their stories

too.Big hugs

to ALL of you! This is a plagio group, not a head-gear group. ;o)Kendra

in Canada

for information on positional plagiocephaly, visit

www.plagiocephaly.org/support

..

..

----- Original Message -----

From:

rella1234@...

Plagiocephaly

Sent: Tuesday, July 10, 2001 2:26

PM

Subject: To Band Or Not To

Band- That is the Question

I couldn't find the post

that I wanted to respond to after searching and

searching....but I just

wanted to say that I don't think the "banding" moms

are trying to encourage

banding, I feel they (and I am now one of them- only

a month into it) are simply

restating their position. Someone said that they

felt discouraged with repositioning

because they would receive so many posts

saying it didn't work for

them. I think this is the very reason that Doctors

scoff at the internet, because

they feel we are just the blind leading the

blind, and that we will

absorb all this input and not think rationally

because someone else told

us to do something a certain way. I feel that all

info is important.

It is our job as moms and dads as members, to decipher

all the facts put forth,

and whether or not to apply them to our own

situation. We are all very

different, but similar in some regard. The moms

that share banding stories

only want those out their to know their

situation....the non-banding

moms just the same. It is a personal choice

based on what is best for

you and your family. I don't think any of the

members discourage non-banding,

they only emphasize their own situations. As

rational people, we can

either take that info and hype it up to the point

that we become irrational,

or take that info and decide what can and cannot

be applied to our

own circumstances. My doc everytime I say I joined a

group online, their like,

oh, no, they overdo it! Well, its my job to figure

that out and do my homework.

I have learned from everyone's experience and

my decision was based soley

on what was best for our situation. I am not

against repositioning and

really banded early because my son is in daycare,

and I have virtually no

control over what is happening with that darn flat

spot. For those that

have repositioned and its worked, more power to ya! I

wish I could have circumvented

the whole helmet thing myself if I thought

that was a viable option.

I hope that everyone continues to share, both

negative and positive, to

take the good with the bad advice/comments....as I

have learned a great deal

from making my own scale of justice for my son.

Just had to go there!

Sorry!

' mom

For more plagio info

[Guest guest]

Annick:

I don't think that you "started anything", in fact IF anything WAS started, it is the eased minds of those parents who have also chosen to reposition, rather than band. I'm sorry that you feel that you haven't been supported in your decision, but as I recall, you got several "good job" s for your hard work....

Plagiocephaly/message/19738

Plagiocephaly/message/19744

Plagiocephaly/message/19748

Plagiocephaly/message/19760

Plagiocephaly/message/19762

etc....

I hope that you will continue to post your successes, and to support other repositioning parents. The more of you we have around, the more comfortable other parents will feel about making a decision that is right for them.

Kendra in Canadafor information on positional plagiocephaly, visitwww.plagiocephaly.org/support..

----- Original Message -----

From: Annick Vauthier

Plagiocephaly

Sent: Wednesday, July 11, 2001 7:31 AM

Subject: Re: To Band Or Not To Band- That is the Question

Just wanted to say I definitively didn't mean to start any tension or debate... and as I told , I guess my post wasn't clear since I agree people should share their stories to help others make informed decision... Annick Kendra wrote:

I agree, .I hope this puts an end to the tension around the whole topic. We're all here to be friends, and to share our experiences. I hope that the "non-head gear people" will continue to come out of the woodwork, as your stories count too! How are we supposed to tell other parents that repositioning can work if none (or few) of you speak up?For me, 5 months worth of aggressive repositioning didn't work - at all. That is my story, and I will continue to tell it. I hope that those who have SUCCESSFUL repositioning stories will continue to tell their stories too.Big hugs to ALL of you! This is a plagio group, not a head-gear group. ;o)Kendra in Canada for information on positional plagiocephaly, visit www.plagiocephaly.org/support . .

----- Original Message -----

From: rella1234@...

Plagiocephaly

Sent: Tuesday, July 10, 2001 2:26 PM

Subject: To Band Or Not To Band- That is the Question I couldn't find the post that I wanted to respond to after searching and searching....but I just wanted to say that I don't think the "banding" moms are trying to encourage banding, I feel they (and I am now one of them- only a month into it) are simply restating their position. Someone said that they felt discouraged with repositioning because they would receive so many posts saying it didn't work for them. I think this is the very reason that Doctors scoff at the internet, because they feel we are just the blind leading the blind, and that we will absorb all this input and not think rationally because someone else told us to do something a certain way. I feel that all info is important. It is our job as moms and dads as members, to decipher all the facts put forth, and whether or not to apply them to our own situation. We are all very different, but similar in some regard. The moms that share banding stories only want those out their to know their situation....the non-banding moms just the same. It is a personal choice based on what is best for you and your family. I don't think any of the members discourage non-banding, they only emphasize their own situations. As rational people, we can either take that info and hype it up to the point that we become irrational, or take that info and decide what can and cannot be applied to our own circumstances. My doc everytime I say I joined a group online, their like, oh, no, they overdo it! Well, its my job to figure that out and do my homework. I have learned from everyone's experience and my decision was based soley on what was best for our situation. I am not against repositioning and really banded early because my son is in daycare, and I have virtually no control over what is happening with that darn flat spot. For those that have repositioned and its worked, more power to ya! I wish I could have circumvented the whole helmet thing myself if I thought that was a viable option. I hope that everyone continues to share, both negative and positive, to take the good with the bad advice/comments....as I have learned a great deal from making my own scale of justice for my son. Just had to go there! Sorry! ' mom For more plagio info

[Guest guest]

I never said I didn't receive any congrats, I was happy with those I got...

and I even thank some of those who replied (sorry if I missed anyone in

my thanks, I was on the digest and sometimes loses some of my replies)

What I was trying to say was that I didn't like receiving the "It didn't

work for me" replies... I have tried many time to explain it, but

I guess I just do not have the way with words...

Annick

Kendra wrote:

Annick:I

don't think that you "started anything", in fact IF anything WAS started,

it is the eased minds of those parents who have also chosen to reposition,

rather than band. I'm sorry that you feel that you haven't been supported

in your decision, but as I recall, you got several "good job" s for your

hard work....Plagiocephaly/message/19738Plagiocephaly/message/19744Plagiocephaly/message/19748Plagiocephaly/message/19760Plagiocephaly/message/19762etc....I

hope that you will continue to post your successes, and to support other

repositioning parents. The more of you we have around, the more comfortable

other parents will feel about making a decision that is right for them.Kendra

in Canada

for information on positional plagiocephaly, visit

www.plagiocephaly.org/support

..

..

----- Original Message -----

From:

Annick

Vauthier

Plagiocephaly

Sent: Wednesday, July 11, 2001 7:31

AM

Subject: Re: To Band Or Not

To Band- That is the Question

Just wanted to say I definitively didn't mean to start any tension

or debate... and as I told , I guess my post wasn't clear since

I agree people should share their stories to help others make informed

decision...

Annick

Kendra wrote:

I

agree, .I hope this puts an end to the tension around the whole topic.

We're all here to be friends, and to share our experiences. I hope

that the "non-head gear people" will continue to come out of the woodwork,

as your stories count too! How are we supposed to tell other parents

that repositioning can work if none (or few) of you speak up?For me, 5

months worth of aggressive repositioning didn't work - at all. That

is my story, and I will continue to tell it. I hope that those who

have SUCCESSFUL repositioning stories will continue to tell their stories

too.Big hugs to ALL of you! This is a plagio group, not a head-gear

group. ;o)Kendra in Canada

for information on positional plagiocephaly, visit

www.plagiocephaly.org/support

..

..

----- Original Message -----

From:

rella1234@...

Plagiocephaly

Sent: Tuesday, July 10, 2001 2:26

PM

Subject: To Band Or Not To

Band- That is the Question

I couldn't find the post

that I wanted to respond to after searching and

searching....but I just

wanted to say that I don't think the "banding" moms

are trying to encourage

banding, I feel they (and I am now one of them- only

a month into it) are simply

restating their position. Someone said that they

felt discouraged with repositioning

because they would receive so many posts

saying it didn't work for

them. I think this is the very reason that Doctors

scoff at the internet, because

they feel we are just the blind leading the

blind, and that we will

absorb all this input and not think rationally

because someone else told

us to do something a certain way. I feel that all

info is important.

It is our job as moms and dads as members, to decipher

all the facts put forth,

and whether or not to apply them to our own

situation. We are all very

different, but similar in some regard. The moms

that share banding stories

only want those out their to know their

situation....the non-banding

moms just the same. It is a personal choice

based on what is best for

you and your family. I don't think any of the

members discourage non-banding,

they only emphasize their own situations. As

rational people, we can

either take that info and hype it up to the point

that we become irrational,

or take that info and decide what can and cannot

be applied to our

own circumstances. My doc everytime I say I joined a

group online, their like,

oh, no, they overdo it! Well, its my job to figure

that out and do my homework.

I have learned from everyone's experience and

my decision was based soley

on what was best for our situation. I am not

against repositioning and

really banded early because my son is in daycare,

and I have virtually no

control over what is happening with that darn flat

spot. For those that

have repositioned and its worked, more power to ya! I

wish I could have circumvented

the whole helmet thing myself if I thought

that was a viable option.

I hope that everyone continues to share, both

negative and positive, to

take the good with the bad advice/comments....as I

have learned a great deal

from making my own scale of justice for my son.

Just had to go there!

Sorry!

' mom

For more plagio info