Re: Re: Nina: post-transplant questions

[Guest guest]

hi harper.....happy new year to u and your family...yes i am very close to my

doctors...they xplain everything to me...but i still fear a lil, only because i

have small children...i just turned 34 and im doing well...considering im

rejecting....but ive looked into pbcers.org...dr.eric lawitz,is part of my team

of drs. but they gave me this liver to save my life....and give them more time

to prepare me.....thank u for the words of wisdom.....lots of love....ill

k.i.t.bye

Re: [ ] Re: Nina: post-transplant questions

Nina, I wish you a Happy New Year.

Over the years, several people in the group have had one transplant. I hope one

of them will see your message.

I personally know someone with AIH who had two liver transplants, both in 2000.

Last Christmas her mother told me she was doing well.

Do you know about our parent group, PBCers.org? It has several people with

crossover AIH/PBC; we have some, but not as many. You might want to be a member

of both groups. Do you have doctors you can talk with?

I once saw a youtube lecture by Dr. Bass of UCSF that discussed

variations in liver transplants -- the pros and cons of a patient accepting a

less than perfect liver in order to get one quickly, for example. It also talked

about different states having better or worse odds on getting transplants. If

you're interested, I'll track it down.

I'd like to know how you're doing. I'll be thinking of you. You are NOT in a

hopeless situation.

Best wishes

Harper

AIH dx 2000

-----Origin

[Guest guest]

Nina, I wish you a Happy New Year.

Over the years, several people in the group have had one transplant. I hope one

of them will see your message.

I personally know someone with AIH who had two liver transplants, both in 2000.

Last Christmas her mother told me she was doing well.

Do you know about our parent group, PBCers.org? It has several people with

crossover AIH/PBC; we have some, but not as many. You might want to be a member

of both groups. Do you have doctors you can talk with?

I once saw a youtube lecture by Dr. Bass of UCSF that discussed

variations in liver transplants -- the pros and cons of a patient accepting a

less than perfect liver in order to get one quickly, for example. It also talked

about different states having better or worse odds on getting transplants. If

you're interested, I'll track it down.

I'd like to know how you're doing. I'll be thinking of you. You are NOT in a

hopeless situation.

Best wishes

Harper

AIH dx 2000

[ ] Re: A lil sad

Hi Nina,

I'm so sorry for you. I hope the meds will help you feel better and that you

will get a new liver, so you can start again.

I have no idea how many times you can have a transplant. I hope for you, that

they can help you and the new year will bring you lots of luck

Kind regards

Michele

(from the Netherlands - AIH since 2009)

>

> Hi...im from san antonio,texas and ive been blessed with a liver

transplant...this past march.....i am so sad because ive been in and out of

hospital stays since then...i am being reevaluated to be placed on the

list...well my meld score is 18 but i have pbc and aih...ive been given

thymoglobulin and high doses of pred. And i am on all the original meds i was on

when i first received my transplant......i have a great team behind me....but

how many times can a patient be transplanted and when i was pretransplant i

weighed 268....post txplant i weighed130 and now with all the steroids i weigh

169...am i gonna lose weight all overs again

>