Debi

[Guest guest]

> Do they reduce the strength of the shot with it being done everyday

and it is new that they don't count the 48wks until you have no viral

load.I think this is better because treatment has a better chance of

killing the virus.I am learning lots tonight.

> Gail

I have learned so much in the last few weeks and can't thank everyone

enough.

Debi

[Guest guest]

Gail

when Rich did his first treatment, he was on pegasis,

this time around he is on infergon

i think the dosage is a little bit stronger, I can't remember

his first treatment came in the premixed needles, where as the

second treatment you have to draw the infergon out of a bottle and

get the exact dosage, the doc said that he wanted to use the infergon

instead of the pegasis because it was stronger, and had a better chance

to get all of the virus,

yes the waiting till VL is at 0 before starting the 48 week count is

new, we were having problems with our insurance on that, they kept

trying to say, its 3 times a week, not once a day, but then the

doc would call them and they finely did send the right amount, lol

insurance companys are sooooo crazy to work with, they

think they know better than the doctors

Bonnie

Do they reduce the strength of the shot with it being done everyday and it is new that they don't count the 48wks until you have no viral load.I think this is better because treatment has a better chance of killing the virus.I am learning lots tonight.

Gail

Debi

it depends on what treatment you are on, the first time around for my husband

was 1 shot a week with 6 pills once a day for 48 weeks

the second time around ( he is a responding relapser) is one shot a day, instead of 1 a week, with

6 pills once a day, but you go for 48 weeks after you are 0 on your viral

load,, that is he doesn't start to count the 48 weeks till he is at zero on his

viral load which he finely got to after 10 weeks which means he will be on the

treatment for 58 weeks, just over a year

Bonnie

..

[Guest guest]

That is half the problem with insurance companies,they think they know more then doctors,they are going by old standards instead of getting updated.The treatment of 3x a wks did the trick for me,thank god,I have been undetectable since March of 99.Each treatment has to be different cause the virus mutates with each treatment.It is a smart bug.I wish you the best of luck with this treatment and I bet it works,but is hard on the body.Hard on the red and white blood count.Hope the insurance covers the drugs needed when his red and white count get low.Thanks for the information.

Gail

Re: Re: Debi

Gail

when Rich did his first treatment, he was on pegasis,

this time around he is on infergon

i think the dosage is a little bit stronger, I can't remember

his first treatment came in the premixed needles, where as the

second treatment you have to draw the infergon out of a bottle and

get the exact dosage, the doc said that he wanted to use the infergon

instead of the pegasis because it was stronger, and had a better chance

to get all of the virus,

yes the waiting till VL is at 0 before starting the 48 week count is

new, we were having problems with our insurance on that, they kept

trying to say, its 3 times a week, not once a day, but then the

doc would call them and they finely did send the right amount, lol

insurance companys are sooooo crazy to work with, they

think they know better than the doctors

Bonnie

Do they reduce the strength of the shot with it being done everyday and it is new that they don't count the 48wks until you have no viral load.I think this is better because treatment has a better chance of killing the virus.I am learning lots tonight.

Gail

Debi

it depends on what treatment you are on, the first time around for my husband

was 1 shot a week with 6 pills once a day for 48 weeks

the second time around ( he is a responding relapser) is one shot a day, instead of 1 a week, with

6 pills once a day, but you go for 48 weeks after you are 0 on your viral

load,, that is he doesn't start to count the 48 weeks till he is at zero on his

viral load which he finely got to after 10 weeks which means he will be on the

treatment for 58 weeks, just over a year

Bonnie

..

[Guest guest]

Hey Debi how are you?? How is your daughter? You have both been on my mind. I have been so tied up with dr visits , tests and physical therapy. I feel like I ran off and left ya. I am around, I read all messages, Just little time to reply. love ya dThe art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch

Sponsored Link

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[Guest guest]

r u up?? deldannegrl <dannegrl2003@...> wrote: Hey Debi how are you?? How is your daughter? You have both been on my mind. I have been so tied up with dr visits , tests and physical therapy. I feel like I ran off and left ya. I am around, I read all messages, Just little time to reply. love ya d The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch Sponsored LinkTry Netflix today! With plans starting at only $5.99 a month what are you waiting for?

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Del I Am up for a few mins. Are you ok? Danne (d)ton <go_deliman@...> wrote: r u up?? deldannegrl <dannegrl2003 > wrote: Hey Debi how are you?? How is your daughter? You have both been on my mind. I have been so tied up with dr visits , tests and physical therapy. I feel like I ran off and left

ya. I am around, I read all messages, Just little time to reply. love ya d The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch Sponsored LinkTry Netflix today! With plans starting at only $5.99 a month what are you waiting for? Cheap Talk? Check out Messenger's low PC-to-Phone call rates. The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch

Check out the all-new - Fire up a more powerful email and get things done faster.

[Guest guest]

I'm fine,hon... Just no sleepy I was gonna' send you a coupla songs, but I think Deb put them on Blog or something.. If you haven't recv'd any.. I could send you some., or maybe go to this place... BLOG.. How do I get there? Del dannegrl <dannegrl2003@...> wrote: Del I Am up for a few mins. Are you ok? Danne (d)ton <go_deliman > wrote: r u up?? deldannegrl <dannegrl2003 > wrote: Hey Debi how are you?? How is your daughter? You have both been on my mind. I have been so tied up with dr visits , tests and physical therapy. I feel like I ran off and left ya. I am around, I read all messages, Just little time to reply. love ya d The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch Sponsored LinkTry Netflix today! With plans starting at only $5.99 a month what are you waiting for? Cheap Talk? Check out Messenger's low PC-to-Phone call rates. The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch Check out the all-new - Fire up a more powerful email and get things done faster.

Access over 1 million songs - Music Unlimited.

[Guest guest]

d and Del.. sorry I wasn't on much yesterday. Last week she had was

taken to the hospital via ambulance. Very weak and extremly

incoherent. Hallucinating and talking about things from years past.

The doctors checked her for drugs or alcohol and she was fine. All

meds within normal ranges and she hadn't been drinking. No one had

answers for us other than her blood count was very, very low. Since

I'm not there and she wasn't aware enough who knew what questions to

ask? I was wondering if it could have been the amonia levels or

something like that. Any thougnts? The doctor didn't want her to

stop treatment and I feel this is good. Gotta keep making progress.

Anyway, she's home now, back to her old self and into tx week number

5 (maybe 6, I've lost track) and even though she feels pretty lousy

at times and her blood count is low, she's tolerating it fairly

well.

I read the posts every night and all the information is so great abd

I've made a file and just pull it up and read thru past emails to

absorb it all.

Everyone... you're awesome!

As you say.. hug!

Debi in Austin

[Guest guest]

Gail, My daughter's blood count is very, very low. They did say that

could be part of the problem but other than that just sort of blew her

off. I'm beginning to think that's done more often than I thought.

Anyway, the doctor didn't take her off treatment so she came home and

took her shot. She's made it thru the weekend without incident so

that's good.

Thanks for all the information...

smiles.. debi in austin

[Guest guest]

Debi,

Make sure she's well hydrated. She should be drinking at least a gallon of water per day. If she doesn't like her water straight, try Crystal Light or something similar. Also, make sure she's eating properly, you get so tired you just don't feel like cooking - get her some Ensure or the like so she's getting at least something nutritious. I don't know for sure but I believe dehydration can cause hallucinations.

SuZie

Next time I'm coming back as a cat

d and Del.. sorry I wasn't on much yesterday. Last week she had was taken to the hospital via ambulance. Very weak and extremly incoherent. Hallucinating and talking about things from years past. The doctors checked her for drugs or alcohol and she was fine. All meds within normal ranges and she hadn't been drinking. No one had answers for us other than her blood count was very, very low. Since I'm not there and she wasn't aware enough who knew what questions to ask? I was wondering if it could have been the amonia levels or something like that. Any thougnts? The doctor didn't want her to stop treatment and I feel this is good. Gotta keep making progress. Anyway, she's home now, back to her old self and into tx week number 5 (maybe 6, I've lost track) and even though she feels pretty lousy at times and her blood count is low, she's tolerating it fairly well. I read the posts every night and all the

information is so great abd I've made a file and just pull it up and read thru past emails to absorb it all. Everyone... you're awesome!As you say.. hug!Debi in Austin

[Guest guest]

Thanks for the advice Suzi.. I talk to her twice a day and will remind

her. I have stressed the importance of the water and nutrition. I hope

she's listening.

Debi in austin

>

> Debi,

> Make sure she's well hydrated. She should be drinking at least a

gallon of water per day. If she doesn't like her water straight, try

Crystal Light or something similar. Also, make sure she's eating

properly, you get so tired you just don't feel like cooking - get her

some Ensure or the like so she's getting at least something

nutritious. I don't know for sure but I believe dehydration can

cause hallucinations.

> SuZie

>

>

> Next time I'm coming back as a cat

>

>

[Guest guest]

Hi Debinaustin and SuZiEin the great white north/. Hallucinations and you: "A Guide For Your Next Trip" just kidding, but I do seem to see things that are non existent, then existant things come up and get me from behind....which is why when walking down the street, I appear to be swatting at things in the air. It's actually the existent and not the hallucinations that I'm trying to keep at bay.... Therefore.. I'm OK! Sometimes stumbling. Suz,,, in my humble opinion, one can and will hallucinate from dehydration. A true physical phenomenon, would be a MIRAGE, much like in the Desert. However, if your not there, is it? and if your there and you see it, but it doesn't exist, would that not be a hallucination? debi_inaustin <debi_inaustin@...> wrote: Thanks for the advice Suzi.. I talk to her twice a day and will remind her. I have stressed the importance of the water and nutrition. I hope she's listening.Debi in austin>> Debi,> Make sure she's well hydrated. She should be drinking at least a gallon of water per day. If she doesn't like her water straight, try Crystal Light or something similar. Also, make sure she's eating properly, you get so tired you

just don't feel like cooking - get her some Ensure or the like so she's getting at least something nutritious. I don't know for sure but I believe dehydration can cause hallucinations.> SuZie> > > Next time I'm coming back as a cat> >

Access over 1 million songs - Music Unlimited.

[Guest guest]

Yes Debi.those ARE the rules.but a little bit in this group is fine as long

as no one is upset. if people get upset then I shall have to disallow

further faith filled words. But, so far for many years we have done this and no

one has ever complained..No one goes into religion very deeply If they did then

it would become outlawed by the rules.........You wrote " Joanne, thanks so much

for the encouragement,The rules said no religion, so I was just trying to be

compliant. Thanks again. Debi "

[Guest guest]

I

didn’t know you have autoimmune hep. You’re more like us than we

knew.

/De

Re: Hi Ya Gang - Short intro and bio time

again / Jerri:)

I'm the shy, meek one in

the group that you rarely hear from. My

daughter is the one with Hep C , found out early last fall. she was a

non responder but doing pretty well. She lives about 200 miles away

from me so I am experiencing the worry of a mom. The irony here is

that I have autoimmune hepatitis so I do understand a little of what

she feels, even though I know she feels worse.

This is a beautiful group of people that are full of insight,

inspiration and love. I know I couldn't do without reading the daily

posts.

Hugs from Texas too...

Debi in Austin

[Guest guest]

>

> I didn't know you have autoimmune hep. You're more like us than we

knew.

Exactly, I don't watch viral loads but defintely all the enzymes and

share the fatigue, itching and many other fun parts of hepatitis.

another funny thing is when people hear autoimmune, most think I have

AIDS. So I understand the stigma attached as well.

Yes, we have more in common than my sweet daughter.

By the way even though she couldn't continue treatment, she's doing

really well.

debi

[Guest guest]

Hi.. just wondering what autoimmune hep is and how do they diagnose that? What I mean is how do they know I have Hep C and not autoimmune hep c. Anyone know what the assemblyman died of? Think he was assemblyman anyhow he had hep c and blood clot in leg, they said he died of infection was it from his tx? Haven't been able to find out anymore about it, he had recently started tx. sorry just getting paranoid again. I know we don't all react the same but it just hit home. I have had clots in leg and also in lung before just kinda freaked sorry. Big Baby Pat debi_inaustin <debi_inaustin@...> wrote: >> I didn't know you have autoimmune hep. You're more like us than we knew.Exactly, I don't watch viral loads but defintely all the enzymes and share the fatigue, itching and many other fun parts of hepatitis. another funny thing is when people hear autoimmune, most think I have AIDS. So I understand the stigma attached as well.Yes, we have more in common than my sweet daughter. By the way even though she couldn't continue treatment, she's doing really well. debi

[Guest guest]

That’s

great news on your daughter. I hope she continues to do well and you stay with

us.

/De

Re: Debi

Exactly, I don't watch viral loads but defintely all the enzymes and

share the fatigue, itching and many other fun parts of hepatitis.

another funny thing is when people hear autoimmune, most think I have

AIDS. So I understand the stigma attached as well.

Yes, we have more in common than my sweet daughter.

By the way even though she couldn't continue treatment, she's doing

really well.

debi

[Guest guest]

>

> Hi.. just wondering what autoimmune hep is and how do they

diagnose that? What I mean is how do they know I have Hep C and not

autoimmune hep c. Anyone know what the assemblyman died of? Think

he was assemblyman anyhow he had hep c and blood clot in leg, they

said he died of infection was it from his tx? Haven't been able to

find out anymore about it, he had recently started tx. sorry just

getting paranoid again. I know we don't all react the same but it

just hit home. I have had clots in leg and also in lung before just

kinda freaked sorry. Big Baby Pat

>

About three years I got really sick.. really so exhausted I could

barely work let alone clean house. I am blessed to have a job that I

can do from anywhere so every morning I'd get my coffe and my laptop

and go sit in bed and work. I truly thought I was dying. Blood test

revealed a high ANA level. Still don't know what that stands for but

it sent me on my way to a rhuematologist (I can't spell). Tests

showed high liver enzymes and possible liver damage and they thought

I was an alcoholic but I " m not. tests later it was discovered that I

had autoimmune hepatitis. Basicaly, my body attacks my liver. I take

an immune system surpressant and cortisone, don't drink or challenge

my liver, gained 50 LBS!!! BUT I do really well except fatigue very

easily. It has changed my lifestyle but it's a change I can live

with.

debi in austin

[Guest guest]

I

already deleted it, but I think the article said complications of hep c –

kidney & liver failure. Pat that means he had it a long, long time

and nothing else got the chance to kill him first. Hep C doesn’t

kill anyone quickly – it takes a while to destroy your liver. Look

how long most of us have had it. Since the 60’s, 70’s &

80’s.

/De

Re:

Re: Debi

If he had a blood clot

that is what probably killed him not the hep.The rest

of the group can probably fill you in better on the rest of your questions.

Gail

[Guest guest]

Hey Honey How Are Ya? How Is Your Daughter? I Hope To

Catch Up With You Some Time When You Are Up Towards

Tyler. Thanks For The Support. Love Ya

--- Hepatitis CSupportGroupForDummies

<debi_inaustin@...> wrote:

> d aka danne aka dj aka Dannella

>

>

> I'm very excited for you and you'll be in my

thoughts and prayers,

> Debi in Austin

>

>

d aka danne aka dj aka Dannella

ALL ARE ME!!!!!

__________________________________________________

[Guest guest]

Trust me all of my transactions were safe and secure. I had the same thoughts especially abpout the po box for the down payment. I had my surgery on the 15th of march. I had no problem paying my credit card. I think the address has something to do with his location being in mexicodebil7777 <debil7777@...> wrote: Has anyone paid for their surgery with a credit card? I am going to put my surgery on a credit card. I got a very low interest rate thru my Credit Union. Nina said I need to use Pay Pal which

sounded fine, but my daughter is concerned that Dr. A's pay pal acct address is hotmail.com rather than a regular ISP address. Has anyone used this payment recently? Debi>> > Hi , the only thing I know of is financing, Have you tried that at all? THat is what I am going to have to do also, I have the web sites if you need them... > Joy> > Surgery> > I would like to know who to talk to about getting help to pay for the >

surgery. I really want to get this surgery done, but I don't have 8,000 > thousand. Can someone give me some options on how to get help to pay > for this surgery? I am really unhappy with the way I look and I do > believe doing this surgery will bring me my life back. I hope someone > out there can help me. Thank you > > > > > > ________________________________________________________________________> Never miss a thing. Make your home page. > http://www./r/hs>

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

Thanks for your reply. I just had to smile when I read your email

name. I guess now it should be Muchless.... How have the

last 10 days gone for you? I'm not telling anyone at work and just

pray I don't drop something on the floor my first day back knowing I

won't be able to bend over and pick it up. I have my surgery on the

Thurs the 17th and plan to be back to work (office manager)on Wed the

23rd. Does that sound reasonable to you?

Debi

> >

> >

> > Hi , the only thing I know of is financing, Have you tried

> that at all? THat is what I am going to have to do also, I have the

> web sites if you need them...

> > Joy

> >

> > Surgery

> >

> > I would like to know who to talk to about getting help to pay for

> the

> > surgery. I really want to get this surgery done, but I don't have

> 8,000

> > thousand. Can someone give me some options on how to get help to

> pay

> > for this surgery? I am really unhappy with the way I look and I

do

> > believe doing this surgery will bring me my life back. I hope

> someone

> > out there can help me. Thank you

> >

> >

> >

> >

> >

> >

> __________________________________________________________

> ______________

> > Never miss a thing. Make your home page.

> > http://www./r/hs

> >

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

[Guest guest]

Debi, That is really funny, but it actually is my last name and I'm a teacher! So being Mrs Muchless is a welcome thought. I went in on Saturday, March 15 and had my band surgery. I went back to work on Thursday. I did have to sit a lot more and was really tired at the end of the day. You really can't pick anything up and it is hard to sit and be comfy. I didn't tell andyone either at first, but they knew something was up when I lost 15 pounds in a week. I know I was afraid of people thinking I had taken the easy way out, but I know this is not the easy way out. We are saving our lives, but at the same time I still believe it is nobody's business. I've just moved into full liquids and I've lost 20lbs. If I were going to give advice I'd say...take the protein seriously and get liquid vitamins. I bought my vitamins at wal mart. They are centrum and

don't taste that great. I took the people's form advice on the protein. I like the unflavored, so I can mix it with other things. I would have to say the hardest thing is being around others while they eat. I'm not hungry, but I had a deadly friendship with food and I miss it. I know I was nervous, but I can tell you now that I do not regret it. I finally feel like I'm in charge of my life. debil7777 <debil7777@...> wrote: Thanks for your reply. I just had to smile

when I read your email name. I guess now it should be Muchless.... How have the last 10 days gone for you? I'm not telling anyone at work and just pray I don't drop something on the floor my first day back knowing I won't be able to bend over and pick it up. I have my surgery on the Thurs the 17th and plan to be back to work (office manager)on Wed the 23rd. Does that sound reasonable to you?Debi> >> > > > Hi , the only thing I know of is financing, Have you tried > that at all? THat is what I am going to have to do also, I have the > web sites if you need them... > > Joy> > > > Surgery> > > > I would like to know who to talk to about getting help to pay for > the > > surgery. I really want to get this surgery done, but I don't have > 8,000 > > thousand. Can someone give me some options on how to get help to > pay > > for this surgery? I am really unhappy with the way I look and I do > > believe doing this surgery will bring me my life back. I hope > someone > > out there can help me. Thank you > > > > > > > > > > > > > __________________________________________________________> ______________> > Never miss a thing. Make

your home page. > > http://www./r/hs> >> > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.>

Never miss a thing. Make your homepage.

[Guest guest]

Debi,

the book is " Conquering Your Child's Chronic Pain "   by Lonnie Zeltzer.  She is a

pain specialist at UCLA, but actually spends more time traveling and speaking

now.

From: Debi <debiannp@...>

Subject: Re: nancy

Date: Thursday, August 7, 2008, 1:02 PM

>

>

> thank you so much for sending me the book. I received it today

> and plan on getting comfortable in my favority recliner and learning

> more about children who live with chronic pain and what we can do to

> help them.

>

>

Hello ;

I am back on the board after staying away for way too long. leigh

is 15 with JRA.

What book are you referring to?

Thank you

Debi

Norman, OK

[Guest guest]

hi Debi,

Nice to have you back on the board. My visits are often hit and miss

these days but I did notice your post.

The book that I was referring to is called " Conquering your childs

chronic pain " by Dr. Lonnie Zeltzer. I have found it to be a good

read and offers some good options both with pharmaceutical treatment

as well as alternative forms of treatment.

(Aundrea 13 fibromyalgia, GERD, IBS)

> >

>

> >

> > thank you so much for sending me the book. I received it today

> > and plan on getting comfortable in my favority recliner and

learning

> > more about children who live with chronic pain and what we can do

to

> > help them.

> >

> >

> Hello ;

>

> I am back on the board after staying away for way too long.

leigh

> is 15 with JRA.

> What book are you referring to?

>

> Thank you

> Debi

> Norman, OK

>