Re: Update on repositioning Frazier

[Guest guest]

Horray for Fergus (and all the other repositioning babes!), he is doing all

the same daily activities as our son Frazier who is now 6 months old and was

diagnosed with Plagio at 4 months, though we saw signs of it as early as 2

months. Frazier is not getting banded, though we had him casted about a month

ago, but changed our minds before his StarBand was completed. We are very

happy with this decision and have noticed some improvement in Fraziers head

already. His flat spot was moderate on the right side. We have been

repositioning like crazy. I am lucky enough to be a stay at home mom to

Frazier and his sister so I can devote my day to it. Tummy time is working

well in the Boppy we have (shaped like a big U) and he can also sit up better

with that around him. A lot of daily time is spent in his Excersaucer

(stayput walker), his ny Jumper and of course, my lap! I just can't wait

until he can sit up on his own for the sake of his head!!! Though we do have

the same troubles at night; before repositioning Frazier slept great through

the night, but now with going in to fix him and move him, he wakes a lot, he

just wants to sleep on that flat spot!! Fraz has been to a PT several times

for mild Tort which is basically gone! We have one more appointment and he's

done. I have done a lot of research on non-banding in the past month and have

read and heard first hand from several doctors that there is no evidence of

noticable differences by the age of 3 between banded and non-banded babes.

For us this is the right decision and I hope the other parents who are

repositioning and not banding continue to share their success stories! We all

need support as well! Everyone on this site is doing what they feel is best

for their baby and that is all that matters!!

Eileen and Frazier

[Guest guest]

Eileen,

Great news on the success you have had with repositioning Frazier. It

has been great to hear the success stories on repositioning!

In regards to the research about no difference between banding/non-

banding, I would say that this is not true in all cases. My stepson

is home for the summer and he is 5 1/2 years old. I've known him all

his life, but have only been his stepmom for about 3 years. This year

I have noticed that his ears are misaligned and that his facial

features are not symmetrical. I've never noticed this before, but of

coures my awareness of these things are much more heightened now. He

has slight flatness on one side of his head as well. The flatness and

asymmetry is subtle, but it is there without a doubt! He had no

intervention of any kind as a baby and I wonder if he had been

repositioned or banded if the symmetry and/or flatness would be there

today. I know this is just one case, but it still offers question as

to whether or not flatness and asymmetry truly " corrects itself " over

time. I believe that intervention of some kind, be it repositioning,

PT, banding, etc, is definatley something to consider when flatness

and asymmetry is present. What I think is great is that there are so

many options to consider in helping our babes! The success stories

regarding repositioning have been inspiring - so have all the

announcements regarding " graduating " band/helmet wearers! This is a

great group of moms and dads doing all they can for their children -

after all - that's what it's all about!!!

Marci (Mom to )

Oklahoma

> Horray for Fergus (and all the other repositioning babes!), he is

doing all

> the same daily activities as our son Frazier who is now 6 months

old and was

> diagnosed with Plagio at 4 months, though we saw signs of it as

early as 2

> months. Frazier is not getting banded, though we had him casted

about a month

> ago, but changed our minds before his StarBand was completed. We

are very

> happy with this decision and have noticed some improvement in

Fraziers head

> already. His flat spot was moderate on the right side. We have been

> repositioning like crazy. I am lucky enough to be a stay at home

mom to

> Frazier and his sister so I can devote my day to it. Tummy time is

working

> well in the Boppy we have (shaped like a big U) and he can also sit

up better

> with that around him. A lot of daily time is spent in his

Excersaucer

> (stayput walker), his ny Jumper and of course, my lap! I just

can't wait

> until he can sit up on his own for the sake of his head!!! Though

we do have

> the same troubles at night; before repositioning Frazier slept

great through

> the night, but now with going in to fix him and move him, he wakes

a lot, he

> just wants to sleep on that flat spot!! Fraz has been to a PT

several times

> for mild Tort which is basically gone! We have one more

appointment and he's

> done. I have done a lot of research on non-banding in the past

month and have

> read and heard first hand from several doctors that there is no

evidence of

> noticable differences by the age of 3 between banded and non-banded

babes.

> For us this is the right decision and I hope the other parents who

are

> repositioning and not banding continue to share their success

stories! We all

> need support as well! Everyone on this site is doing what they feel

is best

> for their baby and that is all that matters!!

> Eileen and Frazier

[Guest guest]

,

Have you checked out the torticolliskids group? If you haven't you might

give them a look. If no one here has heard of the TOT brace then I'm sure

someone there will have!

Marci (Mom to )

Oklahoma

[Guest guest]

Eileen great news about the improvement Frazier is making with

repositioning. Hope you continue to update us on the progress he is

making. You are a wonderful support for all the non bandings as well

as the banding moms. Thanks for sharing your story.

Kathy

> Horray for Fergus (and all the other repositioning babes!), he is

doing all

> the same daily activities as our son Frazier who is now 6 months

old and was

> diagnosed with Plagio at 4 months, though we saw signs of it as

early as 2

> months. Frazier is not getting banded, though we had him casted

about a month

> ago, but changed our minds before his StarBand was completed. We

are very

> happy with this decision and have noticed some improvement in

Fraziers head

> already. His flat spot was moderate on the right side. We have been

> repositioning like crazy. I am lucky enough to be a stay at home

mom to

> Frazier and his sister so I can devote my day to it. Tummy time is

working

> well in the Boppy we have (shaped like a big U) and he can also sit

up better

> with that around him. A lot of daily time is spent in his

Excersaucer

> (stayput walker), his ny Jumper and of course, my lap! I just

can't wait

> until he can sit up on his own for the sake of his head!!! Though

we do have

> the same troubles at night; before repositioning Frazier slept

great through

> the night, but now with going in to fix him and move him, he wakes

a lot, he

> just wants to sleep on that flat spot!! Fraz has been to a PT

several times

> for mild Tort which is basically gone! We have one more

appointment and he's

> done. I have done a lot of research on non-banding in the past

month and have

> read and heard first hand from several doctors that there is no

evidence of

> noticable differences by the age of 3 between banded and non-banded

babes.

> For us this is the right decision and I hope the other parents who

are

> repositioning and not banding continue to share their success

stories! We all

> need support as well! Everyone on this site is doing what they feel

is best

> for their baby and that is all that matters!!

> Eileen and Frazier

[Guest guest]

Glad that you are having success repositioning

Frazier. I wish that we would have been that lucky.

We tried from 4 to 6 months without very much

improvement. One thing I wanted to mention to you is

that we were told to limit 's time in the

exersaucer. I think it was because of her mild tort.

You may want to ask your physical therapist. Was

anyone else told this? I was also told that tort may

keep showing up when the little ones hit milestones so

don't be shocked if it shows up again.

B, Charlotte

--- frazleen@... wrote:

> Horray for Fergus (and all the other repositioning

> babes!), he is doing all

> the same daily activities as our son Frazier who is

> now 6 months old and was

> diagnosed with Plagio at 4 months, though we saw

> signs of it as early as 2

> months. Frazier is not getting banded, though we had

> him casted about a month

> ago, but changed our minds before his StarBand was

> completed. We are very

> happy with this decision and have noticed some

> improvement in Fraziers head

> already. His flat spot was moderate on the right

> side. We have been

> repositioning like crazy. I am lucky enough to be a

> stay at home mom to

> Frazier and his sister so I can devote my day to it.

> Tummy time is working

> well in the Boppy we have (shaped like a big U) and

> he can also sit up better

> with that around him. A lot of daily time is spent

> in his Excersaucer

> (stayput walker), his ny Jumper and of course,

> my lap! I just can't wait

> until he can sit up on his own for the sake of his

> head!!! Though we do have

> the same troubles at night; before repositioning

> Frazier slept great through

> the night, but now with going in to fix him and move

> him, he wakes a lot, he

> just wants to sleep on that flat spot!! Fraz has

> been to a PT several times

> for mild Tort which is basically gone! We have one

> more appointment and he's

> done. I have done a lot of research on non-banding

> in the past month and have

> read and heard first hand from several doctors that

> there is no evidence of

> noticable differences by the age of 3 between banded

> and non-banded babes.

> For us this is the right decision and I hope the

> other parents who are

> repositioning and not banding continue to share

> their success stories! We all

> need support as well! Everyone on this site is doing

> what they feel is best

> for their baby and that is all that matters!!

> Eileen and Frazier

>

__________________________________________________

[Guest guest]

Hi Eileen!

I have to agree with Marci in regards to research about no difference

between banding/non-banding. My nephew is now 2 1/2 years old. He

had/has a moderate case of plagiocephaly in the same spot as my 8

month old Jack. My brother and his wife were told by their

pediatrician that " it would round out on its own " and suggested

repositioning. They believed them (we all did!) and tried

repositioning. It didn't work. While it is definitely less noticeable

now that he has hair, his head is still flattened on the right side.

This was a huge motivating factor for my husband and I to pursue

banding therapy for Jack. Now granted, my brother and his wife did

not have half of the knowledge that we all have about plagiocephaly

and certainly now knowing what my husband and I have learned and have

been through with Jack, they wish that they had been more proactive,

in one way or the other. I think it's terrific that you are having

such success with repositioning and certainly banding is not for

everyone, however, and I think I am speaking for many other parents,

not all doctors are well-versed on this subject. I do wish you

continued you success on your road to a rounder head for Frazier!

, mommy to Jack (DOCbanded 5/16/01)

Cheshire, CT

> > Horray for Fergus (and all the other repositioning babes!), he is

> doing all

> > the same daily activities as our son Frazier who is now 6 months

> old and was

> > diagnosed with Plagio at 4 months, though we saw signs of it as

> early as 2

> > months. Frazier is not getting banded, though we had him casted

> about a month

> > ago, but changed our minds before his StarBand was completed. We

> are very

> > happy with this decision and have noticed some improvement in

> Fraziers head

> > already. His flat spot was moderate on the right side. We have

been

> > repositioning like crazy. I am lucky enough to be a stay at home

> mom to

> > Frazier and his sister so I can devote my day to it. Tummy time is

> working

> > well in the Boppy we have (shaped like a big U) and he can also

sit

> up better

> > with that around him. A lot of daily time is spent in his

> Excersaucer

> > (stayput walker), his ny Jumper and of course, my lap! I just

> can't wait

> > until he can sit up on his own for the sake of his head!!! Though

> we do have

> > the same troubles at night; before repositioning Frazier slept

> great through

> > the night, but now with going in to fix him and move him, he wakes

> a lot, he

> > just wants to sleep on that flat spot!! Fraz has been to a PT

> several times

> > for mild Tort which is basically gone! We have one more

> appointment and he's

> > done. I have done a lot of research on non-banding in the past

> month and have

> > read and heard first hand from several doctors that there is no

> evidence of

> > noticable differences by the age of 3 between banded and

non-banded

> babes.

> > For us this is the right decision and I hope the other parents who

> are

> > repositioning and not banding continue to share their success

> stories! We all

> > need support as well! Everyone on this site is doing what they

feel

> is best

> > for their baby and that is all that matters!!

> > Eileen and Frazier

[Guest guest]

-

We were not told by the PT to limit exersaucer time-but

it makes sense.After having such a good week with Kenna

and her tort-it has taken a negative turn.Her head is

back to tilting.We were on vacation last week and Kenna

spent lots of time in her car seat.The PT said this

could have contributed-and she also may have had a

growth spurt which tightened everything up again.Has

anyone heard of a TOT brace?It's a plastic contraption

that the child wears 4 hours a day to stop the tilting?

Our PT recommended it.

-Kenna's Mom

> Glad that you are having success repositioning

> Frazier. I wish that we would have been that lucky.

> We tried from 4 to 6 months without very much

> improvement. One thing I wanted to mention to you is

> that we were told to limit 's time in the

> exersaucer. I think it was because of her mild tort.

> You may want to ask your physical therapist. Was

> anyone else told this? I was also told that tort may

> keep showing up when the little ones hit milestones so

>

> don't be shocked if it shows up again.

>

> B, Charlotte

>

>

> --- frazleen@... wrote:

> > Horray for Fergus (and all the other repositioning

> > babes!), he is doing all

> > the same daily activities as our son Frazier who is

> > now 6 months old and was

> > diagnosed with Plagio at 4 months, though we saw

> > signs of it as early as 2

> > months. Frazier is not getting banded, though we had

> > him casted about a month

> > ago, but changed our minds before his StarBand was

> > completed. We are very

> > happy with this decision and have noticed some

> > improvement in Fraziers head

> > already. His flat spot was moderate on the right

> > side. We have been

> > repositioning like crazy. I am lucky enough to be a

> > stay at home mom to

> > Frazier and his sister so I can devote my day to it.

> > Tummy time is working

> > well in the Boppy we have (shaped like a big U) and

> > he can also sit up better

> > with that around him. A lot of daily time is spent

> > in his Excersaucer

> > (stayput walker), his ny Jumper and of course,

> > my lap! I just can't wait

> > until he can sit up on his own for the sake of his

> > head!!! Though we do have

> > the same troubles at night; before repositioning

> > Frazier slept great through

> > the night, but now with going in to fix him and move

> > him, he wakes a lot, he

> > just wants to sleep on that flat spot!! Fraz has

> > been to a PT several times

> > for mild Tort which is basically gone! We have one

> > more appointment and he's

> > done. I have done a lot of research on non-banding

> > in the past month and have

> > read and heard first hand from several doctors that

> > there is no evidence of

> > noticable differences by the age of 3 between banded

> > and non-banded babes.

> > For us this is the right decision and I hope the

> > other parents who are

> > repositioning and not banding continue to share

> > their success stories! We all

> > need support as well! Everyone on this site is doing

> > what they feel is best

> > for their baby and that is all that matters!!

> > Eileen and Frazier

> >

>

>

> __________________________________________________

>

[Guest guest]

Eileen,

I'm not beating you down but the Dr that did the research dident

see my kids head. Mackenzie is still very mishaped for my liking. I

do hope by the time she's 3 next May she will be right. We havent

seen hardly any improvement since we took the band off last Nov.

Mackenzie had severe Tort and is resolved on and off. That means

sometimes I think the tort is gone then she's tired sick or prefers

that position laying down because the flat spot feels good to lay on.

After our e cloi exsperience and the kidney problems I am happy

thats she with us any shape. I do hope Frazier rounds out, just like

I hope kenzie will too some more.

The pic of frazier is so adorable, the camera likes him, his

flat spot now is very simular to Mackenzies.

Lorraine.

> Horray for Fergus (and all the other repositioning babes!), he is

doing all

> the same daily activities as our son Frazier who is now 6 months

old and was

> diagnosed with Plagio at 4 months, though we saw signs of it as

early as 2

> months. Frazier is not getting banded, though we had him casted

about a month

> ago, but changed our minds before his StarBand was completed. We

are very

> happy with this decision and have noticed some improvement in

Fraziers head

> already. His flat spot was moderate on the right side. We have been

> repositioning like crazy. I am lucky enough to be a stay at home

mom to

> Frazier and his sister so I can devote my day to it. Tummy time is

working

> well in the Boppy we have (shaped like a big U) and he can also sit

up better

> with that around him. A lot of daily time is spent in his

Excersaucer

> (stayput walker), his ny Jumper and of course, my lap! I just

can't wait

> until he can sit up on his own for the sake of his head!!! Though

we do have

> the same troubles at night; before repositioning Frazier slept

great through

> the night, but now with going in to fix him and move him, he wakes

a lot, he

> just wants to sleep on that flat spot!! Fraz has been to a PT

several times

> for mild Tort which is basically gone! We have one more

appointment and he's

> done. I have done a lot of research on non-banding in the past

month and have

> read and heard first hand from several doctors that there is no

evidence of

> noticable differences by the age of 3 between banded and non-banded

babes.

> For us this is the right decision and I hope the other parents who

are

> repositioning and not banding continue to share their success

stories! We all

> need support as well! Everyone on this site is doing what they feel

is best

> for their baby and that is all that matters!!

> Eileen and Frazier

[Guest guest]

KAREN, ITS CALLED THE TOT COLLOR. In torticolliskids there are

alot of kids who used them. They say they work best for kids who are

walking.

Lorraine.

> > > Horray for Fergus (and all the other repositioning

> > > babes!), he is doing all

> > > the same daily activities as our son Frazier who is

> > > now 6 months old and was

> > > diagnosed with Plagio at 4 months, though we saw

> > > signs of it as early as 2

> > > months. Frazier is not getting banded, though we had

> > > him casted about a month

> > > ago, but changed our minds before his StarBand was

> > > completed. We are very

> > > happy with this decision and have noticed some

> > > improvement in Fraziers head

> > > already. His flat spot was moderate on the right

> > > side. We have been

> > > repositioning like crazy. I am lucky enough to be a

> > > stay at home mom to

> > > Frazier and his sister so I can devote my day to it.

> > > Tummy time is working

> > > well in the Boppy we have (shaped like a big U) and

> > > he can also sit up better

> > > with that around him. A lot of daily time is spent

> > > in his Excersaucer

> > > (stayput walker), his ny Jumper and of course,

> > > my lap! I just can't wait

> > > until he can sit up on his own for the sake of his

> > > head!!! Though we do have

> > > the same troubles at night; before repositioning

> > > Frazier slept great through

> > > the night, but now with going in to fix him and move

> > > him, he wakes a lot, he

> > > just wants to sleep on that flat spot!! Fraz has

> > > been to a PT several times

> > > for mild Tort which is basically gone! We have one

> > > more appointment and he's

> > > done. I have done a lot of research on non-banding

> > > in the past month and have

> > > read and heard first hand from several doctors that

> > > there is no evidence of

> > > noticable differences by the age of 3 between banded

> > > and non-banded babes.

> > > For us this is the right decision and I hope the

> > > other parents who are

> > > repositioning and not banding continue to share

> > > their success stories! We all

> > > need support as well! Everyone on this site is doing

> > > what they feel is best

> > > for their baby and that is all that matters!!

> > > Eileen and Frazier

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi guys,

My neighbor's son is 1 1/2 and his head is still flat on the back right and

very broad across the back. He was in NICU for 2 weeks after he was born and

the nurses always kept him on his right side. Even though he has been

repositioned at home from then on, there hasn't been any improvement in

" rounding out " . That's partially what helped me decide to band Corey. I was

wondering what she would say when she saw him in his new accessory but

apparently he pediatrician mentioned it to her and they declined immediately

because they figured his hair, which he has a lot of, would cover it. But I

have to tell you, everyone notices it - even my mother-in-law and she isn't

observant like that! And I know a boy in the neighborhood who was in an

orphanage until he was 7 and of course, received no repositioning. From the

front I don't notice anything (I couldn't look for longer than a hello to him

though, he already felt on display) but from the back it is really obvious.

I actually didn't know the boy until his mother stopped me on the street a

while back to ask about Corey's band; she said they are finding it difficult

to fit him with hats and safety equipment, i.e. bike helmets.

Eileen, I am SO glad you are seeing results with Frazier, I wish that would

have worked for us. It just didn't seem like it was going to or maybe we

weren't aggressive enough with the repositioning. We weren't really getting

any feedback or suggestions from our ped so by the time Corey was 9 months

old I felt I had no choice but to talk to CT.

Take care,

jsswsmom@... wrote:

> Hi Eileen!

> I have to agree with Marci in regards to research about no difference

> between banding/non-banding. My nephew is now 2 1/2 years old. He

> had/has a moderate case of plagiocephaly in the same spot as my 8

> month old Jack. My brother and his wife were told by their

> pediatrician that " it would round out on its own " and suggested

> repositioning. They believed them (we all did!) and tried

> repositioning. It didn't work. While it is definitely less noticeable

> now that he has hair, his head is still flattened on the right side.

> This was a huge motivating factor for my husband and I to pursue

> banding therapy for Jack. Now granted, my brother and his wife did

> not have half of the knowledge that we all have about plagiocephaly

> and certainly now knowing what my husband and I have learned and have

> been through with Jack, they wish that they had been more proactive,

> in one way or the other. I think it's terrific that you are having

> such success with repositioning and certainly banding is not for

> everyone, however, and I think I am speaking for many other parents,

> not all doctors are well-versed on this subject. I do wish you

> continued you success on your road to a rounder head for Frazier!

> , mommy to Jack (DOCbanded 5/16/01)

> Cheshire, CT

>

>

> > > Horray for Fergus (and all the other repositioning babes!), he is

> > doing all

> > > the same daily activities as our son Frazier who is now 6 months

> > old and was

> > > diagnosed with Plagio at 4 months, though we saw signs of it as

> > early as 2

> > > months. Frazier is not getting banded, though we had him casted

> > about a month

> > > ago, but changed our minds before his StarBand was completed. We

> > are very

> > > happy with this decision and have noticed some improvement in

> > Fraziers head

> > > already. His flat spot was moderate on the right side. We have

> been

> > > repositioning like crazy. I am lucky enough to be a stay at home

> > mom to

> > > Frazier and his sister so I can devote my day to it. Tummy time is

> > working

> > > well in the Boppy we have (shaped like a big U) and he can also

> sit

> > up better

> > > with that around him. A lot of daily time is spent in his

> > Excersaucer

> > > (stayput walker), his ny Jumper and of course, my lap! I just

> > can't wait

> > > until he can sit up on his own for the sake of his head!!! Though

> > we do have

> > > the same troubles at night; before repositioning Frazier slept

> > great through

> > > the night, but now with going in to fix him and move him, he wakes

> > a lot, he

> > > just wants to sleep on that flat spot!! Fraz has been to a PT

> > several times

> > > for mild Tort which is basically gone! We have one more

> > appointment and he's

> > > done. I have done a lot of research on non-banding in the past

> > month and have

> > > read and heard first hand from several doctors that there is no

> > evidence of

> > > noticable differences by the age of 3 between banded and

> non-banded

> > babes.

> > > For us this is the right decision and I hope the other parents who

> > are

> > > repositioning and not banding continue to share their success

> > stories! We all

> > > need support as well! Everyone on this site is doing what they

> feel

> > is best

> > > for their baby and that is all that matters!!

> > > Eileen and Frazier

>

> For more plagio info