Re: Level of Scarring

[Guest guest]

Thanks again members of this group.

Someone mentioned level of scarring which made me look back to what my doctor

wrote me....

There is evidence of chronic inflammation of the liver (grade 3 inflammation

(out of 4, 4 being the most severe)) as well as scarring of the liver (stage 3

bridging fibrosis (out of 4, 4 being the most severe or cirrhosis).

What levels do you all have?

As a point of info...

I have to say my health plan offers email access to my doctors which has been

just fantastic. Everything is in writing and email cuts out the personality and

emotional issues that can cloud info during an office visit. I used to bring

someone with me to take notes because I could never remember what the doctor

said.

And a question...

what do these stand for NAFLD/PBC?

> >

> >

> > , I'm sorry you're running into such a complex situation.

> >

> > I wish I had some useful information for you, but I don't. I've been taking

Prednisone for 10 years, trying constantly to get off it.

> >

> ........... I learned from an unexpected biopsy that my AIH is in remission.

>

>

>

> ,

> The above is Harper's comments. I have been reading his comments for a long

time, and he has had his share of being scared and chasing after doctors.

Don't loose faith, keep plugging along, and hopefully, unexpectedly you too

may have a " remision " or at least a reduction of the very useful but awful

Prednisone. All I can say, is that a lot of us have gone through bad and worse

days, but a majority of us manage to hang in there somehow. In my old age I

seem to be getting better, or at least not getting worse with my liver. I have

just received a pacemaker, so that has become the focus of my attention.

>

> Clara from OR

> dx'99 NAFLD/PBC stage 4 in '99, and numerous other problems

> now we don't know what stage!!!

>