Update

[Guest guest]

Hi all! hopes this finds you having one of those great days!  A week ago today I

returned from UWA Medical Center, and my transplant evaluation. Was a rough trip

but hubby made it as easy on me as possible. Found out that my MELD score was 20

which means I really do need a transplant, but my BMI was almost 40 so needs to

drop that about 5 points for them to be willing to attempt the procedure. Also

found out that about half of what I was being told by my local care team did not

apply to me. So, I have to be on a very low sodium diet,eat protein again,come

off pain meds, no more " tapping the tummy " unless it become difficult to

breathe, and I need more blood work (ACCKK!) and have a scope of my throat and

CT of my insides about every 6 weeks.We have to return to WA the end of August

to verify I have met all the requirements so we can go ahead with the

transplant. All this is abit overwhelming, I was prepared to die, actually

looking forward to the end of

the pain, but now there is a small glimmer at the end of the tunnel and I am

attempting to wrap my mind around that. My question is will I ever feel good

again? I know I'll never be 20 again but sure hoping that if all goes well( and

those of you who have been thru the Tx know there are no promises/garentees)

that I may someday be strong again..

Well, that was my week... how was yours?

 

Tina