post transplant

[Guest guest]

Clear Dayoh my, post " TX " ( tx stands for ? )...so long ago..it's part of

everyday for me too. We get up because we can, thanks to our new livers. Around

the 5ish year, I was diagnosed with Aseptic Necrosis in both hips. The right hip

was fractured so we did that one first, the left to follow. Then I rejected. The

symptons were apparent, Amonia Level high enough to make me confused, forgetful;

but never enough to be accused of not taking my anti rejection meds! ( that's a

story in itself ) I was diagnosed with Sub-Massive Necrosis of my Liver. The

medication regiment, the same, works well, for now. It's still " cyclosporine,

sandimune, old school med, immuran, predisone, thyroid medication for my

physical needs. Then I'm currently on Prozac, Wellbutrin daily. I also have

cronic joint/bone pain, back pain, so I take Norco daily as needed, I go to Pain

Mgmt thru Kaiser, cuz the problamatic tylenol/liver damage control. My left hip

redone, kept dislocating 7x. Each time was intense pain, abulance, morphine,

sedated completely in order to manipulate the femur head in the socket. Last

September '05, I was diagnosed with necrosis, infarction of my knee, so I had

that replaced last November. Now it's " tennis elbow " and chronic back pain.

I was in coma for over 2 weeks, hepatic coma, liver failure, priority status,

fit UCLA criteria, evaluation..so I had lost muscle mass, and reguired lots of

physical/occupational therapy. Of course my memory was off a bit, but I caught

on, to the severity of my circumstance quickly. my scenario happened quickly,

but my recovery lasted more than usual back then too.

After all that, I'm just fine. I'm jealous, maybe envious of your physical

mobility. Run? Never did before! But pain is a deterent, sudden acute pain?

happens. It's been 10 years since my right hip was replaced, the new ones are

lots better. The recent x-ray shows enough wear to warrant attention, common

after the 10th year. I've always been overly cautious, cuz once it's dislocated,

it's over! LOL

I have my one and only Grandaughter! She is my best friend. I am so pleased for

having lived long enough to know what a " Grandma " is. I make every precious

day matter. That moment is all we have. I'm into making memories, lasting Kodac

Moments without a camera, those memories are the best!

Thank so much for getting back to me, I appreciate your effort, I hope I didn't

offend you in anyway. Fibromyalsia and a Liver Transplant? My bones, joints hurt

without Fibro, what an awful conditon. Have you always had it? Oh my goodness,

I honestly remember feeling like my bones, knuckles were crackly from the start,

all that prednisone. I discribed my sensation like a " walking ruffle potato

chip " I found articles archive material that has evident correlation between

joint pain, and transplants that were using cyclosporine, predisnone, necrosis

for a % of us. " I'm okay with the pay off, it is what it is. I'm going to have

a complete top set of dentures put in on Wednesday, Imation that, I'm old enough

for dentures, 50. Bad teeth due to gum problems. A bigger brighter smile, I have

so much to be grateful for.

Yolanda

[Guest guest]

Thanks, June 9th was my 9th anniversary.

I won't lie and tell you my life is perfect. I have GVHD, but I'm taking Gellvec and it's working. My life is pretty normal, I do more physically than most people I know who haven't had Leukemia. I still take care of my 4 horses, my ferrier said I'm the only cancer patient he knows who bucks 125 lb bales of hay. I'm very active in German Shepherd Rescue and I can pickup a 75 lb reluctant dog to put him in my truck. I refuse to be a victim of this disease. January 2000 when Dr Coutre confirmed that I had about 3 to 6 months I told him "That's not acceptable". I started the Campath Clinical Trial a month later after fighting a nasty infection and the insurance company.

I'm pretty sure the 200+ dogs that have come through my hands in the last 7 1/2 years are happy that I'm still up and going ;-) I just pulled a beautiful young dog from a high kill shelter who has Epilepsy. It took a bit of convincing the management of our group but they have learned once I set my teeth into something it is going to happen. Ultimately they understand my feeling that all life is precious and if this sweet dog can be helped with a couple inexpensive pills a day then he doesn't need to die. If any of you need someone to be your advocate let me know, I'm real good at fighting for life.

Sue Bunte

From: Russ Randolph <randolrn@...>Subject: Post Transplant Date: Wednesday, June 24, 2009, 4:25 AM

Sue Bunte,

9 yrs. post transplant and doing well, this makes my day and brings me joy! Congratulations and live well.

C. Randolph

Adks NY

[Guest guest]

Thanks, Sue, for your inspiring and encouraging

words. I always would want you on my side!

Bonnie

From: [mailto: ] On Behalf Of Sue Bunte

Sent: Wednesday, June 24, 2009

7:49 AM

Subject: Re: Post

Transplant

Thanks, June 9th was my 9th anniversary.

I won't lie and tell you my life is perfect. I

have GVHD, but I'm taking Gellvec and it's working. My life is pretty

normal, I do more physically than most people I know who haven't had

Leukemia. I still take care of my 4 horses, my ferrier said I'm the

only cancer patient he knows who bucks 125 lb bales of hay. I'm very active

in German Shepherd Rescue and I can pickup a 75 lb reluctant dog to put him

in my truck. I refuse to be a victim of this disease. January 2000 when Dr

Coutre confirmed that I had about 3 to 6 months I told him " That's not

acceptable " . I started the Campath Clinical Trial a month later after

fighting a nasty infection and the insurance company.

I'm pretty sure the 200+ dogs that have come through

my hands in the last 7 1/2 years are happy that I'm still up and going

;-) I just pulled a beautiful young dog from a high kill shelter who

has Epilepsy. It took a bit of convincing the management of our group

but they have learned once I set my teeth into something it is going to

happen. Ultimately they understand my feeling that all life is

precious and if this sweet dog can be helped with a couple inexpensive

pills a day then he doesn't need to die. If any of you need someone to

be your advocate let me know, I'm real good at fighting for life.

Sue Bunte

From: Russ Randolph <randolrnroadrunner>

Subject: Post Transplant

Date: Wednesday, June 24, 2009, 4:25 AM

Sue Bunte,

9 yrs. post transplant and doing well, this makes my day

and brings me joy! Congratulations and live well.

C. Randolph

Adks NY