Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 , When using Cellcept..what do they look for in your blood work? is it like Imuran? they have to make sure it doesn't become toxic to your liver? or is it something else? I was just wondering...being on the Prednisone and the imuran..if it ever became a problem..that could be a alternative. ...· ´¨¨)) -:¦:- ¸.·´ .·´¨¨)) Take Care, ((¸¸.·´ .·´ Kathy -:¦:- -:¦:- ((¸¸.·´* May your troubles be less, your blessings more, and nothing but happiness comes through your door! §«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§ Our loved ones never truly leave us...they live on in the kindness they showed, the love they gave, and the memories we have of them. ~~~~~~~~~~~~~~~~~~~~~~~~~ KeeslerAFBRelocationAssistance-subscribe http://kmsavelio.tripod.com/chinookwindssiberianhuskies SiberianHuskyDogBreeders-subscribe MilitaryWeatherWives-subscribe On Sat, 18 Jun 2005 19:40 , 'bursten1948' <bubblesburstin@...> sent: > > > > >I was also put on Cellcept since my genetic makeup would not allow me > >to take Imuran. I stopped it after a short time because there was a > >dispute on what my diagnosis was and still is. I then had another > >liver biopsy and still do not have a definite diagnosis. Two docs > >think I have PBC and two think I have AIH. I think that I have both. > > Anyway, I am about ready to start back on the Cellcept. I did not > >have any problems with it before. I also am on Urso and some of my > >liver tests have come down. I am seeing my liver doc in 3 weeks to > >discuss adding the cellcept to my therapy. It just seemed like and > >awfully powerful drug to be using and it scared me. I guess I am now > >resigned to the fact that I need these drugs and better get on them ASAP. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Prednisone can also cause acne. I take prednisone 10/5mg alternate at 50mg imuran. [ ] CellCept Devon I take CellCept. Have been on it for about 6 months. Dont really have any side effects from it. Except maybe acne. I also take Prednisone 25mg. It is kinda difficult to know if a drug works when taking prdnisone because it is the main drug. But I guess it is. Still trying to get my Hep. Dr.to decrease my Prednisone. Then I will know for sure. I also have a correction in my last post. I said I take CellCept 2000mg twice a day and it is 1000mg twice a day. Sorry for the miss type Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Have you discussed this decision, and its implications, with your doctor? Is Cellcept a drug that you can go on and off without problems? I've never taken Cellcept, only Prednisone and Azathioprine. However, my guess is that it's like that drug program in that you must follow it exactly as prescribed. Bear in mind that the death rate for AIH not responsive to treatment are a lot worse, a whole lot worse, than a 1% lymphoma occurrence. Harper In a message dated 1/12/07 9:56:15 AM, helsusac@... writes: > I was on Cellcept 250 mg twice a day and had no problems. As my LFT's were > still sllighlty high AST 100 ALT 65 or visa versa, my doctor upped it to 500 > mg twice a day. After the first day I developed a sore throat which is one of > the side effects listed on the brochure that comes from the pharmacy with my > medication. I decided I'll go off of it for a week and heal the throat and > then try again, as the sore throat could be caused by something else. Did > anyone else have a problem like this? Also the brochure mentioned lymphoma, which > is pretty scary--does anyone know the statistics of how often that happens. > I would feel a lot better if it was 1% or less. > > Helene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 I was on Cellcept 250 mg twice a day and had no problems. As my LFT's were still sllighlty high AST 100 ALT 65 or visa versa, my doctor upped it to 500 mg twice a day. After the first day I developed a sore throat which is one of the side effects listed on the brochure that comes from the pharmacy with my medication. I decided I'll go off of it for a week and heal the throat and then try again, as the sore throat could be caused by something else. Did anyone else have a problem like this? Also the brochure mentioned lymphoma, which is pretty scary--does anyone know the statistics of how often that happens. I would feel a lot better if it was 1% or less. Helene AZ PBC 1/AIH 2/6 Grade 5 out of 18 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Kerri, I took CellCept for a very short period about a year ago. This was due to the fact that it was ineffective for me. I don't remember any side effects, although I do remember that it had to be taken a few hours before and after eating anything else, which was difficult for me because of all the other medications I take throughout the day. I hope your son has better results. I know that others take CellCept and I hope they will respond. Sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Kerri, My daughter(16) has been on Cellcept for 2 years now. She takes 1000mg/day. She started on Imuran and after 4 months her labs went crazy. There is a blood test that can predict whether imuran can be processed in a person's body. Her results showed that her body could not process imuran and in fact her GGT numbers were so out of line they considered her toxic. So far, she has no side effects from the Cellcept and her labs have pretty much been in normal range. She currently takes 1mg of prednisone(down from 40mg last July) 1800mg of Urso(for PSC diagnosis), 1000 mg of Cellcept, muti vitamin, extra calcium and fish oil. I am so happt to say she is doing very well although I still hold my breath every 2 weeks when we go for lab work. I have no concern or the Cellcept it is the prednisone that we continue to want decreased. mom to Caity(16) AIH/PSC 1/05 --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Thank you so much for your response. I am hopeful that the cellcept will help us to wean my son off of his prednisone too. He is currently taking only 6 mg, but when we dropped it below that, his polyneuropathy returned. Luckily his liver numbers have remained good though. I am not sure what dosage he will be on, but he is only 4 years old and only weighs about 28 pounds, so he won't be on too big a dose to start. Thanks again for your response. Re: [ ] Cellcept Kerri, My daughter(16) has been on Cellcept for 2 years now. She takes 1000mg/day. She started on Imuran and after 4 months her labs went crazy. There is a blood test that can predict whether imuran can be processed in a person's body. Her results showed that her body could not process imuran and in fact her GGT numbers were so out of line they considered her toxic. So far, she has no side effects from the Cellcept and her labs have pretty much been in normal range. She currently takes 1mg of prednisone(down from 40mg last July) 1800mg of Urso(for PSC diagnosis), 1000 mg of Cellcept, muti vitamin, extra calcium and fish oil. I am so happt to say she is doing very well although I still hold my breath every 2 weeks when we go for lab work. I have no concern or the Cellcept it is the prednisone that we continue to want decreased. mom to Caity(16) AIH/PSC 1/05 --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 You sound like you have aquired the skill of living! Good for you! It sounds wonderful,you in the garden with a good book, watching the birdsand listening to their sounds. I like gardening too, or rather I like to have my garden in order and looking good. I love flowers and cutting the irises and daffodils and other flowering plants always lifts my spirit. Even in the winter I buy flowers for my table. Thanks for sharing a moment of tranquility! Clara from OR.'dx99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Liljoejoe, I was on Cellcept post transplant for years........am now off and only take the cyclosporin. But, I had no trouble with the Cellcpet after my initial start on it. After a few months I had no side effects at all.......good luck. Joanne Quote Link to comment Share on other sites More sharing options...
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