Dorothy

[Guest guest]

Owy! What'd ya go and do that for?? lol That's funny. ;-)

I hope you'll log on and share your experience about the first go round

with tx and I hope it's not too awful for you!

I didn't feel a thing from it the first time until 5 hours had passed

and by then I was ready for bed anyway. ;-)

It's kind of creepy waiting to feel something from it, or at least it

was for me. lol

Well I'll cut this one short and try to get back to sleep. (I really

have to train the dogs to sleep in their own beds!)

Regardless of how things went I'm sure Pearl was a big comfort to

you.

Animals are my favorite people.

Take care,

Gayle

>

> Hi, yes - plans did not change and I just did the first shot about 5

minutes ago. It was comical. As soon as I took the cap off the

needle, I stuck myself in the finger!! I really had to laugh

>

> So now I'm waiting........for whatever may happen. And I am all set

to relax with Pearl, my sweet cat.

>

> Thanks so much for thinking of me, Gayle. It's so nice to know that

there are people who understand.

>

> Dorothy

> 1 down, 23 to go

>

>

>

>

[Guest guest]

Just wanted to report that my first couple of days have been truly a delightful

surprise. I did the first injection this past Sunday night and started on the

ribavirin Monday morning.

I was tired yesterday and slept later than usual. I had a few aches, but

nothing terrible.

And today, I felt better than I have in weeks. Both physically and mentally. I

hope that this will continue through the next six months.

Thanks for all the support!! Dorothy

Re: Dorothy

Owy! What'd ya go and do that for?? lol That's funny. ;-)

I hope you'll log on and share your experience about the first go round

with tx and I hope it's not too awful for you!

I didn't feel a thing from it the first time until 5 hours had passed

and by then I was ready for bed anyway. ;-)

It's kind of creepy waiting to feel something from it, or at least it

was for me. lol

Well I'll cut this one short and try to get back to sleep. (I really

have to train the dogs to sleep in their own beds!)

Regardless of how things went I'm sure Pearl was a big comfort to

you.

Animals are my favorite people.

Take care,

Gayle

>

> Hi, yes - plans did not change and I just did the first shot about 5

minutes ago. It was comical. As soon as I took the cap off the

needle, I stuck myself in the finger!! I really had to laugh

>

> So now I'm waiting........for whatever may happen. And I am all set

to relax with Pearl, my sweet cat.

>

> Thanks so much for thinking of me, Gayle. It's so nice to know that

there are people who understand.

>

> Dorothy

> 1 down, 23 to go

>

>

>

>

[Guest guest]

Just wanted to report that my first couple of days have been truly a delightful

surprise. I did the first injection this past Sunday night and started on the

ribavirin Monday morning.

I was tired yesterday and slept later than usual. I had a few aches, but

nothing terrible.

And today, I felt better than I have in weeks. Both physically and mentally. I

hope that this will continue through the next six months.

Thanks for all the support!! Dorothy

Re: Dorothy

Owy! What'd ya go and do that for?? lol That's funny. ;-)

I hope you'll log on and share your experience about the first go round

with tx and I hope it's not too awful for you!

I didn't feel a thing from it the first time until 5 hours had passed

and by then I was ready for bed anyway. ;-)

It's kind of creepy waiting to feel something from it, or at least it

was for me. lol

Well I'll cut this one short and try to get back to sleep. (I really

have to train the dogs to sleep in their own beds!)

Regardless of how things went I'm sure Pearl was a big comfort to

you.

Animals are my favorite people.

Take care,

Gayle

>

> Hi, yes - plans did not change and I just did the first shot about 5

minutes ago. It was comical. As soon as I took the cap off the

needle, I stuck myself in the finger!! I really had to laugh

>

> So now I'm waiting........for whatever may happen. And I am all set

to relax with Pearl, my sweet cat.

>

> Thanks so much for thinking of me, Gayle. It's so nice to know that

there are people who understand.

>

> Dorothy

> 1 down, 23 to go

>

>

>

>

[Guest guest]

Excellent news! I'm glad to hear it because I know not everyone is as

fortunate.

Personally I think a lot of that wellness feeling is relief from the

stress of worrying about how bad it's going to be. We all hear the

horror stories concerning tx before we even begin and it really works

on you mentally, which as you know in the end can effect you

physically!

I take injection #5 today and things are going well still except I'm

VERY tired a lot of the time. My last labs showed a decrease in the

white blood cell count (I think. lol) which may have something to do

with that. It's a common side effect from the Ribavirin so expect it

sooner or later and rest when you need to. ;-)

It's so hard to hear what Dr. Yummy tells me when I'm there because I

can't get past his looks and cologne, and he may have said my brows

needed plucking for all I know. lol

His name isn't really Dr. Yummy but it fits and his real name is hard

to pronounce for my Mom, so that's what we call him.

I'm glad to hear you're taking tx well and I hope it stays that

way.

Gayle

>

> Just wanted to report that my first couple of days have been truly

a delightful surprise. I did the first injection this past Sunday

night and started on the ribavirin Monday morning.

>

> I was tired yesterday and slept later than usual. I had a few

aches, but nothing terrible.

>

> And today, I felt better than I have in weeks. Both physically and

mentally. I hope that this will continue through the next six months.

>

> Thanks for all the support!! Dorothy

>

[Guest guest]

Excellent news! I'm glad to hear it because I know not everyone is as

fortunate.

Personally I think a lot of that wellness feeling is relief from the

stress of worrying about how bad it's going to be. We all hear the

horror stories concerning tx before we even begin and it really works

on you mentally, which as you know in the end can effect you

physically!

I take injection #5 today and things are going well still except I'm

VERY tired a lot of the time. My last labs showed a decrease in the

white blood cell count (I think. lol) which may have something to do

with that. It's a common side effect from the Ribavirin so expect it

sooner or later and rest when you need to. ;-)

It's so hard to hear what Dr. Yummy tells me when I'm there because I

can't get past his looks and cologne, and he may have said my brows

needed plucking for all I know. lol

His name isn't really Dr. Yummy but it fits and his real name is hard

to pronounce for my Mom, so that's what we call him.

I'm glad to hear you're taking tx well and I hope it stays that

way.

Gayle

>

> Just wanted to report that my first couple of days have been truly

a delightful surprise. I did the first injection this past Sunday

night and started on the ribavirin Monday morning.

>

> I was tired yesterday and slept later than usual. I had a few

aches, but nothing terrible.

>

> And today, I felt better than I have in weeks. Both physically and

mentally. I hope that this will continue through the next six months.

>

> Thanks for all the support!! Dorothy

>

[Guest guest]

Thanks, I've heard other's speak of procrit and wondered what it was.

My last 3 labs show a steady drop in white cell counts and platelets.

Doc says sooner or later I'll probably have to be treated for anemia

also, so I'll be bugging you about what to expect. lol

I cut my thumb yesterday drying a knife (I'd just sharpened...duh.

lol) and couldn't believe all the blood! Holy cow I thought it'd

never stop!

So I'm wondering, has your doc warned you about dangers of bleeding

out from serious injuries or anything, because it seems you might

actually be in danger of something like that. I'm not trying to scare

you, I'm just wondering if it's something you've considered?

Gayle *is glad to be found* ;-)

> > >

> > > I take 4 Ribavirin a day. Two in the morning and two at dinner

> time.

> > >

> > > Well, I thought I was taking a pain pill a little while ago and

> it

> > was a

> > > Ribavirin. So I took my 2 earlier and then 4 hours later, took

> > another in

> > > error.

> > >

> > > I'm wondering now if I should just take one in the morning

> instead of

> > the

> > > two - any thoughts??

> > >

> > > Thanks!!

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

Sorry can't spell hahaaa...pat should be yup lol

patricia <pandas2@...> wrote: Start pumping that water

sweetie lol. Yuo propel and crystal light as well as some of the other water

count. Coffee, tea, etc. actually dehydrates your cells. That's my story and I

am sticking to it hahaaa. Actually doc told me that cause I was a poor water

drinker and drank lots of coffee. Reg. doc told me same thing and read it on

internet and library books on hep c. I never believe doctors so always read

other sites and if everyone agress good chance it's true lol. I can feel a BIG

diference if I don't get the amt. in they said. Still bad at it but only

sometimes now, most of the time the water bottle is my traveling companion lol.

hugs pat

Dorothy <dorv@...> wrote: I am terrible when it comes to drinking

enough water. Actually, I seem to

be drinking less since I started tx. But I’m wondering why wouldn’t coffee,

tea or soda count? I know that under normal conditions (those not on tx),

doctors have said that any fluid intake counts.

Are you saying that Propel and Crystal Light do count??

Thanks, Dorothy

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of patricia

Sent: Saturday, November 03, 2007 3:40 PM

Hepatitis C

Subject: [sPAM]Re: Re: I had my first shot

monday

Well girls everyone is different lol. I didn't have sides until week 12 but

even now they aren't that bad, it's the Procrit that is giving me fits. Been

on tx 29 or 30 weeks can't remember hahaaa. Stay positive and drink that

water it helps flush the stuff out. When I forget to do my daily amount I do

suffer from it, coffee, tea, soda doesn't count toward fluid intake. I also

drink propel and crystal light as I have never been a water drinker but boy

I learned pretty fast. Good luck girls on tx. hugs..pat

krstnburton <krstnburton@ <mailto:krstnburton%40> > wrote:

>

> Hi everyone

> Well I had my first shot monday and I was really stressing about it.

> I didn't get sick or feel bad. I work nights so I went right after I

> got off work. I did feel alittle achy and tired but thats normal for

> me. I work six nights a week and sleep in the day time and take care

> of my 5 year old granddaughter. So I was expecting worse---!!!!!.

Does

> this mean I may be lucky and not have too many sides or should I be

> expecting it to get worse as I go along.

> Marde

>Hi my name is a, This last wensday was shot 8 for me. Like u I

have been very fortunate not to have severe side effects. For me

everyweek is different. Some time I feel okay and sometimes I feel like

I've been ran over by a bus. I deal with my 3 boys but my side effects

havent got any worse so i dont think they get worse

[Guest guest]

Well, darn, wish you had, too, though the cost of living is now OUT of sight and it's SOooo overpopulated that we stay home as much as possible! Grass isn't always greener.. Where did you go? Hugs, SheenaDorothy <dorv@...> wrote: Sheena…..I lived in Orange County about 15 years ago……wish I’d stayed there!! Dorothy From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of SheenaSent: Monday, November 05, 2007 10:32 AMHepatitis C Subject: [sPAM]Re: Hi everyone...Rob here Hi Rob, I encountered this problem and am sure many have. The mind ever telling the body to go full steam ahead, then suddenly someone put the brakes on...hard... This may account for much of the

depression seen with this disease.. Are you getting regular blood work and keeping in constant touch with your doctor? There are things they can give you that will help some..It's good to get copies of your blood work, then you will have your ducks in a row when you speak with your doctor. No, you are not copping out, and all you can really do is the best that you can until it's over.. Hang in, you're not alone.. Blessings, Sheena Orange County, California USA <robert.d.lovettstudent (DOT) uts.edu.au> wrote: It is now my 6th week of tx with interferon/ribavirin . I got to saythat the first couple of weeks were pretty good in that I felt betterthan I had ever before but since then the inevitable reduction in redblood cells means I get much less oxygen around my body and so I tirea hell of a lot faster than was usual. For the first time in my life Iam confronted with the idea that nothing done today is progressforward. I do almost nothing on a physical, concrete level and yet mymind still asks if I am copping out or just accepting the obvious. Ireally need the imput of more experiened persons about this...thanksRobSydney Australia __________________________________________________

[Guest guest]

Thanks Dorothy. I've been praying. My daughters and grandson are my lifeand I've been away from them now since Thanksgiving and I just feel like I havethis gapping whole in my chest. I've been selling like crazy on eBay and that's aboutto do me in. It's hard work when you're disabled. But I've had a little break because Isold some Local pick up furniture and that all gets picked up tomorrow. I didn't want to get anything else out to make it difficult to get the furniture out of my place. So, Friday, it's back to work!!!! I need to take back as little as possible. I spent a fortune shipping everything up here 2 years ago, then didn't actually move until this last November. Now with gas prices, I'm afraid it might

cost me the same to get what little I'm taking back. If that's what they quote, I won't be able to move. So I'm praying things work out. Take Care, B. in ILLINOIS Re: etteI'm glad one daughter called, and I can understand why the other can't speak at this time. It must be dreadful for her to be going through this.

My son did call after his wife had called her mother in

Wyoming.Hugs Love & Prayersette

[Guest guest]

YES;; I PRAY & HOPE THAT IT ALL WORKS OUT FOR YOU;;HANG IN THERE HUGS DORT B <muttsmom55@...> wrote: Thanks Dorothy. I've been praying. My daughters and grandson are my lifeand I've been away from them now since Thanksgiving and I just feel like I havethis gapping whole in my chest. I've been selling like crazy on eBay and that's aboutto do me in. It's hard work

when you're disabled. But I've had a little break because Isold some Local pick up furniture and that all gets picked up tomorrow. I didn't want to get anything else out to make it difficult to get the furniture out of my place. So, Friday, it's back to work!!!! I need to take back as little as possible. I spent a fortune shipping everything up here 2 years ago, then didn't actually move until this last November. Now with gas prices, I'm afraid it might cost me the same to get what little I'm taking back. If that's what they quote, I won't be able to move. So I'm praying things work out. Take Care, B. in ILLINOIS Re: etteI'm glad one daughter called, and I can understand why the other can't speak at this time. It must be dreadful for her to be going through this. My son did call after his wife had called her

mother in Wyoming.Hugs Love & Prayersette

[Guest guest]

HEY;; CHRISTY;; I FINALLY DID GET THE CARD;; IT WAS VERY CUTE;; THANKS SO MUCH;;

HUGS

DORT

From: Christy <2zeesmommy@...>Subject: Dorothy Date: Wednesday, August 27, 2008, 5:47 PM

Can you call me collect? I really want you to get this card. Did you check your SPAM folder perchance?

Christy

E-mail me privately... 2zeesmommy@earthlin k.com

RE: Dort's Birthday! (Dorothy ), 8/27/2008, 12:00 am

[Guest guest]

HEY;; CHRISTY;; I FINALLY DID GET THE CARD;; IT WAS VERY CUTE;; THANKS SO MUCH;;

HUGS

DORT

From: Christy <2zeesmommy@...>Subject: Dorothy Date: Wednesday, August 27, 2008, 5:47 PM

Can you call me collect? I really want you to get this card. Did you check your SPAM folder perchance?

Christy

E-mail me privately... 2zeesmommy@earthlin k.com

RE: Dort's Birthday! (Dorothy ), 8/27/2008, 12:00 am

[Guest guest]

HEY;; CHRISTY;; I FINALLY DID GET THE CARD;; IT WAS VERY CUTE;; THANKS SO MUCH;;

HUGS

DORT

From: Christy <2zeesmommy@...>Subject: Dorothy Date: Wednesday, August 27, 2008, 5:47 PM

Can you call me collect? I really want you to get this card. Did you check your SPAM folder perchance?

Christy

E-mail me privately... 2zeesmommy@earthlin k.com

RE: Dort's Birthday! (Dorothy ), 8/27/2008, 12:00 am

[Guest guest]

You sound just like my mother!!! I feel like she just scolded me. OK, " mom " , I

will try very hard to have a better outlook. My outlook isn't always bad. When

I feel ok, everything IS OK. I've just been so sick for the last 2 months, and

the doctors can't figure out what is wrong. I have GERD, so I've had all the

tests again, sonograms of my gallbladder, kidneys, you name it, x-rays, CT

Scans, checking my liver, stomach, etc. and they just can't figure out what is

causing my problem. It has eased up somewhat, but for a while I couldn't eat

anything without getting violently ill.....and at the same time, if I didn't

eat, get something in my stomach, the same thing happened. It is just so

frustrating to me. On top of that, I'm having bad vision problems.....and the

eye doc can't figure that out either. I have sjogrens so my eyes are really

dry. I have my bottom tear ducts plugged. But about the same time as the other

problem started, my vision

goes so blurry, I can't read, can't even watch TV. So I'm supposed to be on

the computer a limited time per day. It's mainly my left eye. I'm so afraid

I'm going to lose my vision. Then I would have no choice but to find some type

of housing to move in to with assistance. I don't want to lose my dog....he's

my best friend and have had him for 9 years. I, too, have a list of things that

have happened to me.

I'm so sorry you too had a husband like mine who didn't honor his vows of " In

sickness and in health, for better or for worse " . I just think they are cowards

and, as for mine, he wasn't ready to " settle down " enough to want to care for

me. He was very active for our age, still played hockey, and anything else he

could find to do. He had no desire to stay home and assist me if I needed help.

He didn't even come to the hospital when I had my hysterectomy, and left when I

came home to go visit someone for a week. Unfortunately, on my SSD, I am on a

very limited budget. I know my daughters will pay my admission to the Zoo, but

they have said they won't pay for the cart (they can't, they both have financial

problems with what is going on with the economy - one son-in-law has a

restaurant that was thriving and now he's barely making it, sinking deeper and

deeper in debt to the point he is going to have to lay off employees just to

make ends meet---and

they don't even think that will help). They have my only grandchild who has

been sick since he was born with one thing after another (5 surgeries and he

just turned 3). Most of their medical bills are in collection. But the zoo

charges $45.00 to rent the cart. If my car hadn't broken down this last week

and I had to repair that, I could maybe swing it. But it will take juggling

funds. My six month car insurance is due in May (over $400.00), plus my $80.00

car registration. It's just always something. I have an RX for new glasses I

haven't been able to buy. I used to wonder why people had money problems (when

you're in good shape financially I think it's hard to understand how people get

in bad financial situations), but now that I'm living it, I understand. Plus,

my wonderful ex-husband didn't pay what he was supposed to pay in the divorce,

and, still, 6 years later after the divorce I have creditors hounding me.

I know there are a lot of people worse off than I am, but that doesn't change

that I am in a bad way. So far, I've managed to get by. But I never know what

will pop up next,....and it's always something. I do try very hard to keep a

positive attitude, but on the days when I'm so sick, it's very, very hard to do.

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Dorothy Ratz <dotratz@...>

Stimulator

Sent: Sunday, April 26, 2009 6:34:51 PM

Subject: Re:

,

It is really the truth that a person is as old as he feels he is. I have also

had problems all of my life. At the age of 10 I suffered 2nd and 3rd degree

burns of over 35% of my body. My entire right hip is completely skin grafted.

The doctors felt that if I lived, which was doubtful that I would be

hospitalized for anywhere up to a year. I went home in a month. Then, at age 23

I was diagnosed with thyroid cancer. It had metastasied throughout the right

side of my neck and I needed a complete dissection of my right neck where they

removed 11 malignant nodes. This was before the invention of chemotherapy.

With 7 minor aged children at home my husband decided he no longer wanted to be

married to me but rather preferred the local prostitute who already had 4 ex

husbands. I then fell causing myself to develop RSD. I have had a pump for the

past 17 years now. In my early 50's I had a heart attack and then last year I

had 2 strokes.

Despite all that, I don't feel as old as you make yourself out to be. I am

coming up on 71y/o and I go to the zoo every chance I get as long as I am going

to be with some of my 18 grandchildren. Most zoos do not charge all that much

for their scooters. I was 52 when I fell and developed RSD.

You have to quit saying you can't and instead concentrated on all the things you

CAN do. I am almost old enough to be your mother and I rarely say I can't do

something. I refuse to be the wet blanket, besides I would miss out on too much

fun.

Dorothy

[Guest guest]

I'm puzzled -- can one of the moderators speak to this?

Was the message from this group or from AIHep@?

Best wishes.

Harper

I am trying to find out why I can't stay in the group, I got a letter from

Sharon saying I was not diagnosed with AIH......I was it is called AIH/PBC a

crossover diagnosis...anyhow good day Harper and I hope all is well with my

ole buddies. Thank you anyhow Sharon

GREETING'S FROM UP-UNDER.....YOUR PAL DOROTHY....XOXO

[ ] Re: What to tell people about AIH

I find that the vast majority of people do not know the definitions of the

words hepatitis and cirrhosis. (And of course, there's that 7 second

attention span but that's another issue!)

Hepatitis: inflammation

Cirrhosis: scarring

I have autoimmune liver diseases that can cause inflammation and may lead to

severe scarring of the liver.

Kay

[Guest guest]

Dorothy.I do not know who this Sharon is but she has no say whatsoever! I am

saddened to hear that any of our members may have felt it was their place to say

who and who can not be here. Dorothy you are a member for as long as YOU wish.

We are here for all people with ANY AUTOIMMUNE liver disease...........AIH, PBC.

PSC NASH.whatever...........and we even have a few people with Hep C.. We are a

support group..period. " Sharon " .please write her an apology. So

anyway.Doreothy how are you doing with the crossover? What meds do you take?

Crossover is becoming more and more common.......they don't know if it has

always been this way and they just didn't diagnose both or if is a new problem.

I have a few friends who are even Post Txers that have crossover. and some that

had PBC before transplant and now have AIH.very odd. Joanne Do you take

prednosine with your urso or another??????Please post. Joanne We have three

Moderators only...myslef, Harper and Kay aka Kitty. Joan C. has not been

around as of late......although she may jump in anytime she wishes........Joanne

PBC Post TX

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