Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 After reading this letter, It made me want to go to the convention even MORE. I loved the way you said " there are some who can't or won't accept you for you, oh well, their loss (but someone else's gain too, hehe) " I'll have to remember that when I give people advice about rejection. ) I'm hoping to go next year in Canada. I have never been to a convention before. This will be a very interesting experiance! But I have to say, I am VERY nervous. I have some doubts too. But I'm still looking forward to it anyways. (then people can see who I really am...not usually a B***h) a << Dear Barry*, First, welcome:). Second, my advice? What are you waiting for? hehe Experience L.P.A.!. Where there is a bevy of nice short-statured women! What's neat is that they come in a gadzillion sizes and types too with as many hearts and personalities to match:). Third, most imortantly, be yourself. And if there are some who can't or won't accept you for you, oh well, their loss (but someone else's gain too, hehe). Fourth, bring your daughters for as much as they're a part of you they're a part of us as many of us also have average sized siblings, children, bf's/gf's, parents and spouses too. They are always welcome:). Fifth, take one step at a time, as the late Hoagy Carmichael once said, " Slow motion will get you there faster. " That quote is so true:). Sixth, Contribute, contribute, contribute! No. I'm not talking about donating money, lol. I mean, contribute yourself to LPA, because as with any group you get out of it what you put into it. So, as much as you probably want to know us, we want to know you as well:). Seventh, as with any other group too, take what you like and leave the rest. We all may be small like each other, but we're still different from one another. A good point to remember. Lastly, L.P.A. is a great support group in sharing your needs and concerns as most (if not all) of us have gone through what you have gone through too in some way or another. grady;)>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 anyone have cirrhosis of the liver? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 > > anyone have cirrhosis of the liver? > Hello my name is Terry,I was diagnosed with cirrhosis of the liver June of 2005.Is your name ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 I have primary biliary cirrhosis. There are others on this site,too. But this site is mostly people with AIH (some of them having both). Feel free to contact me if you have questions, concerns, or just to vent. Bartholomew <twistipher@...> wrote: I have a small amount. My name is italiancatzmeow_1963 <italiancatzmeow_1963@...> wrote: anyone have cirrhosis of the liver? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Is your cirrhosis secondary to AIH or PBC? As I understand it, cirrhosis of the liver is more of a manifestation, a result, of another disease rather than a disease in itself. Harper In a message dated 11/19/06 6:24:56 AM, neacko@... writes: > Hello my name is Terry,I was diagnosed with cirrhosis of the liver > June of 2005.Is your name ? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Hi Terry, My name is and I have AIH 12/04. My AIH is not under control very well and I will be on medication indefinately. At least I am alive. Missouri flatcat9@... wrote: Is your cirrhosis secondary to AIH or PBC? As I understand it, cirrhosis of the liver is more of a manifestation, a result, of another disease rather than a disease in itself. Harper In a message dated 11/19/06 6:24:56 AM, neacko@... writes: > Hello my name is Terry,I was diagnosed with cirrhosis of the liver > June of 2005.Is your name ? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 not sure yet will know nov 30 flatcat9@... wrote: Is your cirrhosis secondary to AIH or PBC? As I understand it, cirrhosis of the liver is more of a manifestation, a result, of another disease rather than a disease in itself. Harper In a message dated 11/19/06 6:24:56 AM, neacko@... writes: > Hello my name is Terry,I was diagnosed with cirrhosis of the liver > June of 2005.Is your name ? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 i have no idea what caused it yet but i have an enlarged fatty liver WOOTTEN <lindawootten@...> wrote: I have primary biliary cirrhosis. There are others on this site,too. But this site is mostly people with AIH (some of them having both). Feel free to contact me if you have questions, concerns, or just to vent. Bartholomew <twistipher@...> wrote: I have a small amount. My name is italiancatzmeow_1963 <italiancatzmeow_1963@...> wrote: anyone have cirrhosis of the liver? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 >Anyone out there? Hi, I am new to this group & still don't understand much about this liver disease. Oh, I had a liver biopsy 10/2006. I have Primary Biliary Cirrohis & Autoimmune Hepatitis (OVERLAP) - Grade 4 - Stage 2. I still don't know why there is a grade & stage; all I've ever heard is about people with cancer, & the diagnosis is never grade? always, stage whatever. When I was going through the testing, blood, ultrasound,colonoscopy,liver biopsy,etc., I remember the doctor's office calling me & as they were ruling out different illness, I was told that I tested negative for hepatitis, then after biopsy it showed autoimmune hepatitis I was a little confused. I hate to complain, but especially at this time (holidays), I don't have any support from my family which makes my stress level unbelievably high. As I've read through so many emails, it breaks my heart to see that even small children are what I would consider diagnosed with so much at such a young age. Anyway, wishing each & everyone of you a very blessed Thanksgiving, & how blessed you already are if you've been included in traditional Thanksgiving get together's with your loved ones. Sincerely, > i was just diagnoised with cirrhosis and looking for support friends > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 Hi, just a little comment... natbtran wrote: > office calling me & as they were ruling out different illness, I was > told that I tested negative for hepatitis, then after biopsy it showed > autoimmune hepatitis I was a little confused. I hate to complain, but What they probably meant was that you tested negative for the more common, contagious viral forms of hepatitis, alcoholic hepatitis etc. Autoimmune hepatitis is just what the name suggests: an autoimmune disease. That means the cause is unknown, also it is not contagious. Basically, the diagnosis autoimmune hepatitis can be given when other causes for liver inflammation have been ruled out. AIH is a rare condition, and people with AIH often have other autoimmune diseases as well (rheumatism, Crohn's disease, Sjogren's syndrome/SLE, problems with the thyroid gland etc.) so in a way AIH is more related to that type of conditions. Hope that clarifies it a bit - for more information, try searching the net for autoimmune hepatitis. Wishing you all the best, Jaana -- jfogl at saunalahti.fi ************************************* * I am a Bear of Very Little Brain, * * and long words Bother me. * * - Winnie the Pooh * ************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 , it is my understanding that the stage indicates the degree of fibrosis and the grade indicates the degree of inflammatory activity. " Staging, in the broadest sense, is the determination of the position of the patient on the continuum of disease progression between its initiation and its end stage. Grading is the assessment of the activity of a disease, which is the rate at which the disease stage is changing " per a Medscape article. Kay, TX, 57, AIH 1995 / PBC 1999 I have Primary Biliary Cirrohis & Autoimmune Hepatitis (OVERLAP) - Grade 4 - Stage 2. I still don't know why there is a grade & stage; all I've ever heard is about people with cancer, & the diagnosis is never grade? always, stage whatever. Quote Link to comment Share on other sites More sharing options...
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