Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 << Fevers do not ultimately end in seizures for most children. We have heard the story of one mom here with her child who did have them.>> I am another mom with a child who had seizures with fever...it had nothing to do with how high it was, it was how quickly it spiked. For years we had to watch him like a hawk, and alternate Motrin and Tylenol every two hours to keep any fever from spiking. It always happened suddenly, usually after he'd been sleeping. He has outgrown it now; his fever rarely spikes, seems more even like his brother's. He is the child I suspect was vaccine-damaged, by the way...and all this was before I knew anything about homeopathy. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Quick answer (must leave house in a moment): First, your Prednisone dose will soon be reduced. Typically, the dose drops sharply at first, then tapers down very, very slowly at lower doses. You MUST be monitored with blood tests with each taper. Don't agree to a pre-set plan of reduction that doesn't involve monitoring. Each of us is different, and our reactions differ. You will feel much more normal as the Prednisone dosage is reduced -- partly from the lower dosage and partly because you will be healing. Make it clear to your family that any emotionality, any mood and energy swings, are due to the drug and illness, and that those symptoms will abate. If the symptoms are extreme, and they may be, your doctor may be able to provide anti-depressants that will help. Many people find that taking naps, even very short ones, during the daytime stabilizes their moods and energy. Are you taking Imuran or similar in addition to the Prednisone? These "steroid sparing" drugs allow lower Prednisone doses. Best wishes. Harper In a message dated 12/30/2003 7:07:00 AM Pacific Standard Time, writes: Hi,I was just diagnosed with AIH in the last week and amfeeling very overwhelmed. It is great to know thatthere are others who know how I feel. I will keep myeyes to the screen. How long does this feeling ofbeing in overdrive last with the prednisone. Do youget used to it????Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Dear Kathy from Canada, Welcome! I haven't posted much these past few weeks because of fatigue but I always read and try to keep up. I taught 1st grade until November 2001. I had been diagnosed with AIH in 1998? after and emergency gall bladder surgery showed that I had advanced cirrohisis. I maintained fairly well until I had a major lupus flare which was treated with immuran. I didn't respond well to immuran and ended up very ill and I've not been back to work since. Actually I tried for a week and I was absent one day! Your body and your doctors will guide you on what to do but use good sense if you aren't desperate to be working full time. Teaching gives a lot of personal fullfillment but is physically exhausting! Take care of yourself and you'll get back to it sooner or can go longer now depending on what's going on. Listen to your body and take good care of it and you'll carry on for a long, long time! Best wishes, Amy (I live in WA state) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 In a message dated 12/30/2003 7:07:07 AM Pacific Standard Time, writes: Message: 8 Date: Mon, 29 Dec 2003 16:17:26 -0800 From: "Larry Brown" <lsbrown@...> Subject: Re: Harper Hi Harper, Yes!! I will be very cautious regarding any Holistic treatment for AIH Dear Shirley, I know that once you get on the transplant list, which would be nice to avoid, they do not allow you to take anything that they don't approve of or you're out of the program, just like alcohol and illegal drugs (even the medicinal one you can smoke ) I know that Joanne went for massages and Reiki (?) treatments which she said really helped her and those are certainly holistic. Explore, question and weigh your options carefully, it's you who is going through this. Take care! Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Happy New Year to all of my dear Liver Support Friends! I wish you comfort and joy in the coming year. Well, I've been off a bit - guess I'm making up for it today! I had quite a run (literally) for several weeks of a GI bug which finally settled down but now my fatigue is even worse - I've been sleeping 11-12 hours at night and it's an effort not to nap in the afternoon. and then any extra activity wipes me out for the whole next day. Hopefully I'll build a little more stamina up. Christmas week was hard. I had two days of tests and appts with the transplant team then it was Christmas Eve and I hadn't done anything exept a little shopping. My wonderful husband and daughter just stepped in and took care of everything. Dave's family came over on Christmas and my son wouldn't let me enter the kitchen to do anything! It was weird but probably necessary. We had a lovely day and then I proceeding to sleep and sleep and sleep. We couldn't figure out why I was sleeping more each day instead of less until - duh- it finally dawned on us that I was eating leftover Swedish meatballs everyday without thinking- it's tradition, you know! Well I cut that beef out of my diet and it's amazing that within a few days I feel much better. I just consider myself lucky that I didn't go into a coma! Oh the exciting things we face when we rarely leave that house Enjoy your New Year - watch out for meatballs, pickled salmon isn't so bad for you, and I'll be thinking of you all. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi Amy sorry to hear about you being more fatigued. Hope your new year is better. Why does the beef interfere that way? I never really asked about that before and perhaps I need to watch what I eat even more closely. travis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Boy Amy, you are SOOO right! I am going back January 14th and am sort of nervous. If I cannot make it, I don’t know what to do…I suppose I can try for disability, but time will tell. I am just going to assume that I can make it! Say a prayer for me! Debby Re: [ ] Digest Number 3450 Dear Kathy from Canada, Welcome! I haven't posted much these past few weeks because of fatigue but I always read and try to keep up. I taught 1st grade until November 2001. I had been diagnosed with AIH in 1998? after and emergency gall bladder surgery showed that I had advanced cirrohisis. I maintained fairly well until I had a major lupus flare which was treated with immuran. I didn't respond well to immuran and ended up very ill and I've not been back to work since. Actually I tried for a week and I was absent one day! Your body and your doctors will guide you on what to do but use good sense if you aren't desperate to be working full time. Teaching gives a lot of personal fullfillment but is physically exhausting! Take care of yourself and you'll get back to it sooner or can go longer now depending on what's going on. Listen to your body and take good care of it and you'll carry on for a long, long time! Best wishes, Amy (I live in WA state) Group Rules 1. Please no religious, political, race or sexual preference discussions. 2. NO slamming of other members, advertising or vulgarity. Thank you! To UNsubscribe send a blank e-mail to -unsubscribeegroups Groups Links · To visit your group on the web, go to: / · Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Dear Amy, Thanks for the input. I feel very blessed to have connected to such a caring group of people who understand. I go back to my class on the 5th of January and I am trying to think of a good way to ask the parents to keep their kids at home when they are sick. The week before Christmas was brutal with illness in the classroom. I am a year and half away from retirement but I guess my body will be my guide in all of this. Being so new to the game so to speak, I find the future to be rather scary with all the drugs, reactions, complications etc.!! I start the Imuran at the end of Jan. if the prednisone does its work. It is all about taking it one day at a time isn't it. It sounds like you have wonderful family support. My husband and daughter are beginning to accept the long term of AIH even though they would still like to have super mom/wife on call 24/7! Not happening anymore! Take care and God bless! Kathy from Canada ______________________________________________________________________ Post your free ad now! http://personals..ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi Kathy from Canada, This is Kathy from Michigan. I read your note to Amy, and I just want to know, that you can live a productive life with AIH. I was diagnosed 11 years ago, and at the time my daughters were 3, 6 and 8. My husband, who in now my ex, was not very supportive. You are lucky to have one that is. I went through the uncertainty of drugs, reactions and complications just like you are doing. I started out on high doses of prednisone, 40 mg/day and slowly tapered over the next year. I was highly allergic to Imuran, so I could not take it, and still can't. My liver enzymes were almost normal for the first time in 11 years last summer. I take a drug called Ursodial, along with 10 mg every other day, of prednisone. Fortunately, I don't have any side effects from the the meds and I feel great. I am telling you all this so you know it can be done. You are right, take it one day at a time and trust your dr. and God. I have been up and down on the meds over the last 11 years, but at the present time I am doing well. Be positive and patient and you will get there! My girls are now 14, 17 and 19 and I have been a single mom for the past 6 years. I work as a dental hygienist in a pediatric dental office, so I can relate to catching everything the kids bring in. I do pretty well with that. Try to get enough rest, exercise, eat right and wash your hands alot! I wish you luck and would like to hear how you are doing. Kathy from Michigan <kjheyes@...> wrote: Dear Amy,Thanks for the input. I feel very blessed to haveconnected to such a caring group of people whounderstand. I go back to my class on the 5th ofJanuary and I am trying to think of a good way to askthe parents to keep their kids at home when they aresick. The week before Christmas was brutal withillness in the classroom. I am a year and half awayfrom retirement but I guess my body will be my guidein all of this. Being so new to the game so to speak,I find the future to be rather scary with all thedrugs, reactions, complications etc.!! I start theImuran at the end of Jan. if the prednisone does itswork. It is all about taking it one day at a timeisn't it. It sounds like you have wonderful familysupport. My husband and daughter are beginning toaccept the long term of AIH even though they wouldstill like to have super mom/wife on call 24/7! Nothappening anymore! Take care and God bless!Kathy from Canada______________________________________________________________________ Post your free ad now! http://personals..ca Quote Link to comment Share on other sites More sharing options...
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