Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 "Got the worse thigh cramps imaginable. I did not get out of bed until around 2 today." Now I would like to really tell you something that I learned when I was in the rehab unit last time. I was late reporting to rehab class because I was lying in my bed unable to move with a cramp as high on my non-op leg as it could be and still be called "on the leg". The lady who came to check on me is the most knowledgeable person about massage therapy on the human body as I have ever met. This is what she told me to do, and I would love to have you tell me if it works for you! Make a fist and shove it into your abdomen. I am right handed, so I began at the bottom of the rib cage on my right side. Deep massage with that fist in a clockwise direction on the surface of your body. I kid you not, after three circles around my belly, the cramp left me. It was incredible. Marge He lives! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2005 Report Share Posted November 24, 2005 Bonnie, I think your cramps in your stomach could be lymph nodes in your abdomen that have gotten large enough to impact your stomach. I would suggest seeing your oncologist. Carolyn. Providence, Ri, age 77. dx 9/04, w & w --- BonnieGoodhart <goody.dogs@...> wrote: > In response to 's comments on cramping and CLL, > has anyone else > experienced excessive cramping in their body for > unknown reasons? I > have been cramping in my stomach area over the past > few months for no > known reason. My legs and feet are often also. > Could this be due to > CLL? What do you all think? > > Bonnie > > Don't tell God how big your storm is. > Tell the storm how big your God is! > > The Will of God will never take you to where the > Grace of God will not > protect you. > > new here with questions... > > hi all,,i'm thrilled to have found this group,and i > hope you can help figure out a way to go forward for > us. my husband > (dh) is now 63+. he was diagnosed three and a half > years ago with > cll. wbc counts have steadily increased to this > week's count of 103k, > platelets and hemoglobin have > stayed pretty stable since diagnosis. he has been > merely > inconvenienced by his cancer until eight weeks ago > when he started to > feel full all of the time. he has > since lost 35 lbs. he has also developed swollen and > painful nodes on > his neck and elsewhere. night sweats have increased > and fatigue is an > everyday thing. cat scan shows mass of enlarged > lymph nodes in his > chest and a node biopsy is scheduled for friday. doc > says he is > concerned that cells are transforming into lymphoma > and wants to > start treatment in a week. dh is determined to stay > away from big > drugs > and chemo as long as possible,and i am now looking > for a referral to > a cll specialist for a second opinion. he has been > going to sloan > kettering,but apparently cll is not a specialty of > theirs. we are > looking at dana farber,l.i. jewish hospital and > johns hopkins. > he > also has had painful hand cramps for a long > time,some days his hands > will cramp every few minutes,sometimes both at once. > at night it's > his feet that cramp. i think it must > be addressed,but doc only suggests drinking quinine. > i really wonder > if the cramps are related to his cll. > i hope to have an appointment for a second > opinion in the next > week or two.any suggestions as to what questions > to ask,what treatments to ask about,etc. will be > greatly > appreciated. p.s. he is not eligible for any > trials,as far as we > know, due to also havin recurring bladder tumors. > thank you in advance for your help.susan v. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 Dear, Chonette, , Bonnie, and SLL/CLL Education Group: I too experience cramps in my legs, feet, and toes. I'm still in treatment with only four (4) more chemotherapy infusions to go, and I will " hopefully " be done for several months. Starting tonight, I will certainly try a yogurt before I go to bed. I " thank you " for sharing the information with the group! Sincerely, Pete Fritsch Diagnosis CLL 1/15/2002 Rituxin 7/15/2003 - 6 Treatments Rituxin & Fludarabine 1/15/2004 - 10 Treatments Campath 3/20/2004 - 36 Treatments Flavopiridol 3/2/2005* - 24 Treatments Flavopiridol 5/10/2005* - 20 Treatments *Clinical Trial Ohio State University Chonette <ch@...> wrote: Dear and bonnie, There has been a lot of " cramps " discusion on the acor list recently. I have suffered with cramps all my life on my legs, but during my two treatments with steroids (Prednisolone) the cramps increased considerably, had them on my toes, hands, legs and I think everywhere. As I was taking the steroids to help bring the platelets up I joined the ITP forum to learn more about platelets, there they were reports that a yugort before going to bed helped with the cramps. I decided to try it myself, this was some 6 months ago, and since them I have eaten a lot more yogurt, often 450 gram per day near the time of going to bed, I have to admit that since starting, within a couple of days the cramps stopped and I have not experienced any cramps at all since them. I think yogurt contains Vit. K which is good for platelets, but for some reason it also helped my cramps, I would be interested to know if that works for somebody else. Regards Chonette > Message: 6 > Date: Thu, 24 Nov 2005 07:07:29 -0500 > From: " BonnieGoodhart " <goody.dogs@...> > Subject: Cramps > > In response to 's comments on cramping and CLL, has anyone else > experienced excessive cramping in their body for unknown reasons? I > have been cramping in my stomach area over the past few months for no > known reason. My legs and feet are often also. Could this be due to > CLL? What do you all think? > > Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi everyone I have been away for a while and just caught up with the posts. good to see you posting. Like most of us I have the leg cramp problem. My Hep told me to take a glass of tonic water at night. It contains the quinnine but also it is cheaper than getting a prescription. I mix it with Cranberry juice to keep from getting urinary infections. I figure if I have to have tonic may as well take care of two things at once. Take care of yourselves Hugs Marie > > http://www.ikp.unibe.ch/lab2/cramps.html Hope this helps those of you with this problem. I had bad leg cramps too before transplant but mine turned out to DYSTONIA. so the antispasmodics worked for me. They are very painful and I feel for any of you who have them. So read where it says no quinine! So please check with your doctor before you try this. Joanne C. Muscle cramps in chronic liver disease > Prof. J. Reichen > Muscle cramps are frequent - 52 % - in patients with cirrhosis as compared to patients with chronic hepatitis (7.5 %) or congestive heart failure (20 %) on similar dose of diuretics (1). > Associated with liver function, being more frequent in patients with low albumin (1, 2); diuretic use did not predict muscle cramps in one study (1). Best predictors were the presence of ascites and plasma renin activity (2). Associated with low plasma taurine levels in one study (9). > Treatment: Quinidine sulfate is normally said to be contraindicated in patients with liver disease (8); however, in a placebo-controlled trial, the number of cramps decreased from 14 to 4 (vs. 12 to 12 in the placebo group) in patients treated with quinidine sulfate 400 mg/d; relief from cramps was associated with serum quinidine levels (7). Main side effect was diarrhea in ~ 35 % which subsided spontaneously or was treated symptomatically. Albumin substitution was found to decrease muscle cramps (2). In an uncontrolled study, zinc sulfate 220 mg/d improved cramps in 10/12 patients; in 7 they disappeared completely (6). Vitamin E has been used (5) as well as antispasmodics (4). Although used frequently, magnesium was not useful in a double-blind crossover trial in patients with nocturnal leg cramps not related to liver disease (3). > > > Jj Cathcart > jjcathcart@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 severe cramps, muscle contorting cramps off the charts?? of course, not these days, thank goodness. But everyone who is taking predisone, never mention edema, and diuretics, or the side effects of cramps that change our bodies, especially from a sound sleep. Walk it off? and then some?? besides the horrible tasting ( pottasium ) the liquid stuff, turns the tongue into blissters, swollen, mess of pain. I went to the Nurtrition Store for other sources. I was afraid of driving, cuz the cramps would come anywhere, anytime. I felt like a " Flamingo " staying in the bathroom till I bout the worstof it was over, unexpected pain..sudden excrusiating discomfort, fear, tired..sleepness nights, I would sleep sitting to avoid another bout of the stiffness soreness the day after, only to do again. I ate everything with mass quanities of pottasium. Dehydrated cranberries? Yolanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Magnesium is known to help with muscle cramps, so you can take a magnesium supplement. And take a bath with epsom salts, soak in it for 30 minutes, then get up and shower as usual so it doesn't stay on your skin. 2 cups of epsom salts dissolved in hot bath water. I've done it many times. Epsom salts is magnesium sulfate. Ellen Lon wrote: Foot, ankle, calf, hands and back are all locations where I've been experiencing muscle cramps. Especially the feet at night and the other night was a doozy. This is happening with increasing frequency over the past year and it's an almost nightly occurrence to varying degrees. Googled it and discovered (http://www.ncbi.nlm.nih.gov/pubmed/2912532) that it can be related to peripheral neuropathy. Tried drinking more water at night and using a sport drink with electrolytes. Bananas aren't doing the trick. Does anyone else get this and is it preventable? Quote Link to comment Share on other sites More sharing options...
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