Re: Itching & other concerns

[Guest guest]

I have pbc/aih.... And i get cramps in toes, ankles, knees, calves,

hips,feet are constantly freezing cold and the topof my feet are

always sore....But I also hurt and ache all the time, so i end up

putting lotion on and rubbing it all in from my toes to my

hips.....it helps, and also if i am able to soak in the tub at night

before bedtime that helps the aching, but i then still have to rub

down everything.

>

> I did respond to the e-mails regarding itching but neglected to

mention that I have PBC but not AIH overlap. I also wanted to bring

up a subject that some of you talked about quite a

> while back-the cramps in the feet at night. I've had this occur

at times, but haven't tried the bar of soap thing. I had a weird

thing happen a coule of times this week - my left hand has cramped up

& my middle finger crosses over the index finger and I can't move it

until the cramping stops. I may last a minute to minute & a half.

Have any of you ever done this or heard of this?

>

>

>

>

[Guest guest]

I use to cramp in my hands, legs, and generally ached all over. Noni

juice helped me tremendeously. I have been told that any supplement

high in anti oxidants will help with cramping and body aches. Noni has

worked for me. Other types of supplements are Gogi Juice, Ashitaba Tea,

Barley Grass supplements or Green Tea.

>

> I did respond to the e-mails regarding itching but neglected to

mention that I have PBC but not AIH overlap. I also wanted to bring up a

subject that some of you talked about quite a

> while back-the cramps in the feet at night. I've had this occur at

times, but haven't tried the bar of soap thing. I had a weird thing

happen a coule of times this week - my left hand has cramped up & my

middle finger crosses over the index finger and I can't move it until

the cramping stops. I may last a minute to minute & a half. Have any of

you ever done this or heard of this?

>

>

>

>

[Guest guest]

>

> Just be sure to clear absolutely anything you take with your liver

doc.

> Items to check out include prescriptions from another doctor, all

OTC

> medications, including vitamins, and herbal teas. Many seemingly

harmless things have

> proved to cause severe liver damage even in healthy people. Those

of us who

> are dealing with existing liver damage are even more vulnerable.

This is

> really, really important.

> Harper

>

> In a message dated 1/8/07 8:40:08 PM, rabram1@... writes:

>

>

> > I use to cramp in my hands, legs, and generally ached all over.

Noni

> > juice helped me tremendeously. I have been told that any

supplement

> > high in anti oxidants will help with cramping and body aches.

Noni has

> > worked for me. Other types of supplements are Gogi Juice,

Ashitaba Tea,

> > Barley Grass supplements or Green Tea

> >

>

>

>

>

[Guest guest]

In a message dated 1/9/07 4:50:41 PM, lindawootten@... writes:

> the cramps in the feet at night. I've had this occur at times, but haven't

> tried the bar of soap thing. I had a weird thing happen a coule of times this

> week - my left hand has cramped up & my middle finger crosses over the index

> finger and I can't move it until the cramping stops. I may last a minute to

> minute & a half. Have any of you ever done this or heard of this?

>

1) what bar of soap thing? I guess I missed this post.

2) Yes, my hand, particularly the left hand, often becomes " distorted " in

this way. The pattern started about the time I was diagnosed with AIH, but it

may have been a coincidence. Sometimes hot water seems to loosen it up more

quickly, Sometimes repeatedly pulling the fingers back into place helps. It's

more weird-feeling (and weird-looking) than truly painful, but I really,

really don't like it. Sometimes the hand seems to just do this for no reason;

however, I've learned to avoid getting it into positions that may lead to the

finger cross-over. My thumb is very much involved in the odd positioning, too.

Harper

[Guest guest]

> >

> > I did respond to the e-mails regarding itching but neglected to

> mention that I have PBC but not AIH overlap. I also wanted to bring

> up a subject that some of you talked about quite a

> > while back-the cramps in the feet at night. I've had this occur

> at times, but haven't tried the bar of soap thing. I had a weird

> thing happen a coule of times this week - my left hand has cramped

up

> & my middle finger crosses over the index finger and I can't move

it

> until the cramping stops. I may last a minute to minute & a half.

> Have any of you ever done this or heard of this?

> >

> >

> >

> >

[Guest guest]

>

> I did respond to the e-mails regarding itching but neglected to

mention that I have PBC but not AIH overlap. I also wanted to bring

up

a subject that some of you talked about quite a

> while back-the cramps in the feet at night. I've had this occur

at

times, but haven't tried the bar of soap thing. I had a weird thing

happen a coule of times this week - my left hand has cramped up & my

middle finger crosses over the index finger and I can't move it

until

the cramping stops. I may last a minute to minute & a half. Have any

of

you ever done this or heard of this?

>

>

>

>

[Guest guest]

>PLEASE tell me about the bar of soap thing. I have no idea what your

talking about but I sure am interested to know. What does a bar of

soap have to do with anything, very curious; I'll try anything

Thanks,

> I did respond to the e-mails regarding itching but neglected to

mention that I have PBC but not AIH overlap. I also wanted to bring

up a subject that some of you talked about quite a

> while back-the cramps in the feet at night. I've had this occur

at times, but haven't tried the bar of soap thing. I had a weird

thing happen a coule of times this week - my left hand has cramped up

& my middle finger crosses over the index finger and I can't move it

until the cramping stops. I may last a minute to minute & a half.

Have any of you ever done this or heard of this?

>

>

>

>

[Guest guest]

> >

> > I did respond to the e-mails regarding itching but neglected to

> mention that I have PBC but not AIH overlap. I also wanted to bring

> up

> a subject that some of you talked about quite a

> > while back-the cramps in the feet at night. I've had this occur

> at

> times, but haven't tried the bar of soap thing. I had a weird thing

> happen a coule of times this week - my left hand has cramped up &

my

> middle finger crosses over the index finger and I can't move it

> until

> the cramping stops. I may last a minute to minute & a half. Have

any

> of

> you ever done this or heard of this?

> >

> >

> >

> >

[Guest guest]

> > >

> > > I did respond to the e-mails regarding itching but neglected

to

> > mention that I have PBC but not AIH overlap. I also wanted to

bring

> > up

> > a subject that some of you talked about quite a

> > > while back-the cramps in the feet at night. I've had this

occur

> > at

> > times, but haven't tried the bar of soap thing. I had a weird

thing

> > happen a coule of times this week - my left hand has cramped up

&

> my

> > middle finger crosses over the index finger and I can't move it

> > until

> > the cramping stops. I may last a minute to minute & a half. Have

> any

> > of

> > you ever done this or heard of this?

> > >

> > >

> > >

> > >

[Guest guest]

Hi there... I am not sure on my grade or stage... But i have just

been going through about 6 months worth of bloody noses, and so i

ended up going to a ear,nose, throat doctor and he wasn't surprised

because of the PBC... I had a leaky vessel, so he cauturized it and

next week we will see how things are. So this was a new symptom for

me and was told i was settleing into a new stage and also i am

developing Allergies and was also told not to be surprised since the

immunity issues can cause everything to screw up.

I had a very bad night last night with the hurting and aching so bad

from my toes all the way up and including my hips. My husband ended

up massaging and using lotion from toe to hips also. It hurt so bad

to try to lay down that the only thing i could do is try to stretch

my body to make it stop for a second, but then i ended up walking

around for a bit and i took TWO TYLENOL.... I also have the itching,

and the time i really get it is at night when i am trying to settle

down, and i have found lotion has helped that a bit also.

And yes to the dentist... i am 38 and i had all my top teeth removed

and half on bottom a year and a half ago. I do have dentures but i

HATE them... And all the glue and wafer stuff makes me sick so i

don't use them. Was a very disappointing experience....

Unfortuneately being mad, sad, depressed, anxious,and getting panic

attacks are apart of my daily routine. And it does get to be toooo

much at times.... But i have now been concentrateing on becoming more

spiritual... and it is helping a bit... i am a novice, but if i can

get my mental health back on track, then that means i will be able to

build strength back to help myself and do more research and learn

more things.

I am also on the urso forte i take 1000mg.... but i have been on the

predisone a few years back... but my numbers do not come down so far

on either medicine... so i wonder why i am even taking it. I go again

in march to the specialist... to go over the numbers again... but it

all seems a big waste to me....

The thing about the soap... i have no idea.....I read the emails, but

if it isn't specific to what i am going through sometimes i don't pay

attention, so sorry i can't comment on that, try to write linda

again, i'm sure she will comment on it again.

I don't know if anything i have said will help you, but just know you

are not alone.... and you can always e-mail me direct at

my03bugs@.... Okay.... Blessings and love and light..

> > >

> > > I did respond to the e-mails regarding itching but neglected to

> > mention that I have PBC but not AIH overlap. I also wanted to

bring

> > up a subject that some of you talked about quite a

> > > while back-the cramps in the feet at night. I've had this

occur

> > at times, but haven't tried the bar of soap thing. I had a weird

> > thing happen a coule of times this week - my left hand has

cramped

> up

> > & my middle finger crosses over the index finger and I can't move

> it

> > until the cramping stops. I may last a minute to minute & a half.

> > Have any of you ever done this or heard of this?

> > >

> > >

> > >

> > >