Florida Residents

[Guest guest]

My beloved Friends !

As Francis continues to approach your beautiful state of Florida. My constant prayer is that the strong hand of Our Precious Lord be a strong barrier to keep you out of harms way. I have a niece that lives in Ocala and honestly was no able to rest well. I offered for her to drive up to Atlanta with her three children but no success. I ill be here all day praying for her safety as well as all of you. my special angel please be safe. As soon as you are able please call me and anyone else can call me at (404) 294-1109 to let me know that you are okay. I just love you all so much.

tony nunez

[Guest guest]

In a message dated 2/7/2006 9:10:17 AM Eastern Standard Time,

justus88@... writes:

How do People do it here in Florida?

Dear Michele --

I also live in FL and found that there are very few doctors with experience

with dwarfism here. However, I happened to luck upon the great family doctor in

the world and he is the one who helped me. He fought my insurance company

into letting me have s Hopkins as in network care. He " lectured " me into

making sure I didn't let anyone but them touch me. Granted, I still had the

responsibility of getting to Baltimore but that was minor compared to having

someone

know what they're doing. (I had a local neurosurgeon who refused to take care

of my pain management correctly because I wouldn't let him operate on me. He

kept saying " You're foolish for waiting 2 months when I can do it NOW! " Of

course, he had only worked on 4 or 5 dwarfs in his lifetime while Ain &

Rigamonti

work on 4 or 5 dwarfs a day.)

Where in FL are you? I'm in Orlando area so I know what is here -- nada.

However, I think Jax might be better since they have the Mayo up there and I've

heard Tampa has folks. Also, don't hesitate in contacting Dee at Hopkins

for references. Good luck and please keep up posted with your progress.

Rose

[Guest guest]

Good Morning Members: I have been for the past 6 years trying to locate

a Orthopedic Specialist & Neurologist and a Anesthesiology in the State

Of Florida that I can build a rep ore with and monitor my developing

situation as times goes by. Let me mention my form of dwarfism is SED

and I am 38 year female.

But after numerous callings all over the place for the last 6 years. I

have come to the the conclusion at this point (a very scary conclusion I

might add) that there is NO specialist that I mentioned above that have

dealt with dwarfism within the State of Florida?

I know there is alot of us that reside in Florida I need to ask for all

of your assistance and tell me how you personally established a

Specialist here in Florida? I really need all your assistants ideas all

that can help will be much appreciated.

To be quite honest I am kinda freaking out about all this within myself.

And I truly need all our members that can assist me and alleviate my

anxiety about this and finally find a solid solution. I only have Blue

Cross/Blue Shield HMO. How do People do it here in Florida?

Please email me privately w/ your solution or suggestions.

Many Thanks

Michele

[Guest guest]

My father moved to Florida a few years ago and he has SED also and

recently had knee replacement surgery down there.

But I will inform you that my family and I do not always work with

with specialists who are familar with dwarfism, because it is rare.

Instead we look for specialists who are able to work with the

individual and their particular needs. Also we look for specialists

that have a good sucess rates for orthopedic issues.

Let me contact him to see what he suggests!

a

>

> Good Morning Members: I have been for the past 6 years trying to

locate

> a Orthopedic Specialist & Neurologist and a Anesthesiology in the

State

> Of Florida that I can build a rep ore with and monitor my

developing

> situation as times goes by. Let me mention my form of dwarfism is

SED

> and I am 38 year female.

>

> But after numerous callings all over the place for the last 6

years. I

> have come to the the conclusion at this point (a very scary

conclusion I

> might add) that there is NO specialist that I mentioned above that

have

> dealt with dwarfism within the State of Florida?

>

> I know there is alot of us that reside in Florida I need to ask

for all

> of your assistance and tell me how you personally established a

> Specialist here in Florida? I really need all your assistants

ideas all

> that can help will be much appreciated.

>

> To be quite honest I am kinda freaking out about all this within

myself.

> And I truly need all our members that can assist me and alleviate

my

> anxiety about this and finally find a solid solution. I only have

Blue

> Cross/Blue Shield HMO. How do People do it here in Florida?

>

> Please email me privately w/ your solution or suggestions.

>

> Many Thanks

> Michele

>

>

>

>

>

>

>

[Guest guest]

Here in Florida it is hard to find a good doctor but if you can get on Staywell

and/or Medicaid you can usually find decent doctors.

RMBJustice@... wrote:

In a message dated 2/7/2006 9:10:17 AM Eastern Standard Time,

justus88@... writes:

How do People do it here in Florida?

Dear Michele --

I also live in FL and found that there are very few doctors with experience

with dwarfism here. However, I happened to luck upon the great family doctor in

the world and he is the one who helped me. He fought my insurance company

into letting me have s Hopkins as in network care. He " lectured " me into

making sure I didn't let anyone but them touch me. Granted, I still had the

responsibility of getting to Baltimore but that was minor compared to having

someone

know what they're doing. (I had a local neurosurgeon who refused to take care

of my pain management correctly because I wouldn't let him operate on me. He

kept saying " You're foolish for waiting 2 months when I can do it NOW! " Of

course, he had only worked on 4 or 5 dwarfs in his lifetime while Ain &

Rigamonti

work on 4 or 5 dwarfs a day.)

Where in FL are you? I'm in Orlando area so I know what is here -- nada.

However, I think Jax might be better since they have the Mayo up there and I've

heard Tampa has folks. Also, don't hesitate in contacting Dee at Hopkins

for references. Good luck and please keep up posted with your progress.

Rose