Re: Harper and Kay

[Guest guest]

Hi Harper and Kay,

I tried the Cellcept and it made me sick...I just dont tolerate any drugs that

well..So I discused it with my DR and we just decided to stay with the Pred..I

Know how Im going to react with it...The main thing that I like about the

Pred(did I say like????..LOL)is that my lungs no longer hurt and I can breath

better...that is a big plus!!!!the DRS didnt want to put me on steroids when I

was younger..I had surgery on my eyes for the Glaucoma and that is going

well...See an Endo for the diabetes..use insulin ...that is going well,but he

says even if I go off the Pred I will probably still be diabetic...but that is

no suprise...most of my family is diabetic..I had trouble with my sugar years

ago and kept it controlled with diet and exercise...Take Fosamax for my bones

and that is doing well...I got down to 71/2 mgs of Pred, but my numbers went up

so Im back to 10mgs...Not to bad!!!!I can honestly say ,I really dont mind the

Pred anymore.My body has gotten used to it...Iknow what the side effects are and

how to deal with them..My husband calls me the Chubby Little Chipmunk..thats Ok,

I call him the One Legged Pirate,hes an amputee and blind in one eye...

I will be 62 in April and I never thought I would live this long...I dont have

the energy I used to have,my house is a mess most of the time..Life is too short

to clean house all the time...I take time for myself and do the things I want to

do...I used to tell people that my body hated me and I would never see 65 and

retirement ,and now there are days I think I will not see 65,but I am

retired...LOL... One out of two isnt too bad....so you live one day at a time...

If people dont like the way I look or how I keep house,I will gladly trade

places with them for awhile and see how they do---I dont change myself for

anyone ...and that is how you stay strong ....

Dont get me wrong ,I still have days when I give into the the feeling s that I

just cant do it anymore,but I hear my mother saying when I was a child.... " Take

your medicine and shut up and here is a Chocolate Covered Cherry to make it

taste better " ... My Mother died from colon cancer,but every time I eat a

Chocolate Covered Cherry , I remember what she said...

So anyone facing any of lifes struggles that think they would be better off

dead...THERE IS ALLWAYS HOPE!!!!DONT GIVE UP!!!Life is good,no matter what is

thrown at you!!!!

Im snowed in today, here in Bloomington...The dishes need to be done...Tooooo

bad,Im going to sew today!!!!!

Best Wishes to all..

Carol in Snowy Bloomington Indiana In , Kay

<kuerston@...> wrote:

>

> Carol, having read your story, I agree with everything Harper wrote.  Your

life has been an amazing journey.  You are an inspiration to all to fight.  You

have an indomitable spirit.  After all you have been through, tackling AIH will

be relatively easy.  Your family must be very proud of you.  I know I am.  I

hope your lft's return to normal very soon, if they aren't already, and that you

find a steroid-sparing immunosuppressant you can tolerate.  You deserve the best

and that's what I wish for you.

>

> Kay_TX, AIH/PBC

>

>

>         > Carol, I admire your determination and courage. I wish life were

easier for you -- and for all us humans, I guess.  You are blessed with great

inherent gifts, or perhaps I should say that you've created those gifts for

yourself. You're better off than many people with flawless health!  Are you

taking anything in place of the Imuran? There are other steroid-sparing drugs,

such as 6MP or CellCept, that might help. How long have you been taking

Prednisone? 

>  -Register to be an organ donor

>

>