Re: Don't know how to react...

September 19, 2007

Nina, I'm so sorry that you've had this encounter with a doctor you don't

like, who sounds very unsympathetic.

Can anyone come up with some practical suggestions for Nina's situation?

I'll be thinking -- but my experience, my knowledge in this area is very

limited.

Harper

**************************************

See what's new at

http://www.aol.com

September 19, 2007

do you have a primary care doctor? My liver specialist does not address my

other problems caused by my AIH or meds but I have a very caring PCP who

prescribes for my itching, pain etc. I know it is terribly upsetting to have a

doctor who doesn't seem to have any feelings for you as a person--not just a

patient! Try not to give them that power--they don't deserve it. Hang in

there and I pray that you will find relief soon.

************************************** See what's new at http://www.aol.com

September 19, 2007

It's awful, isn't it? In the Finnish list I urged her to complain

about this idiotic doctor if she feels up to it at all. In the

Scandinavian system of NHS changing doctors without a valid

reason might be a bit difficult even if there was another liver

doctor in the area. I'm not that familiar with the Swedish system

but I'm sure there are means available for complaining, the same

as here. That way it might be possible to get another doctor even

a bit further away, and national insurance compensation for the

travel expenses. And Nina, based on what you wrote here and on

the other list, I I think the doctor in question owes you a huge

apology at the very least!

Meanwhile I repeat what I said on the other list - while waiting

the outcome of a complaint, the GP is able to prescribe

medication for what it is needed, consulting a specialist if

necessary. The most important thing is that you go and seek the

help you need. If you feel too tired to go about it yourself,

maybe a family member or a friend could help?

Jaana

19.9.2007 20:51, flatcat9@... kirjoitti:

>

> Nina, I'm so sorry that you've had this encounter with a doctor you don't

> like, who sounds very unsympathetic.

>

> Can anyone come up with some practical suggestions for Nina's situation?

>

> I'll be thinking -- but my experience, my knowledge in this area is very

> limited.

>

> Harper

>

> **************************************

> See what's new at

> http://www.aol.com <http://www.aol.com>

September 19, 2007

(((((NINA))))))) My gosh, you sound like you saw a doctor similar to one that I

saw once! He was a blooming fool....next time....welll IIIIIIIFFFFF I ever see

the freak again, I will tell him in no uncertain terms what he can do and where

he can go!

Report this creep to the medical board. I will TELL you what I think it is.

And, if I am right, you can count your lucky stars that you won't be seeing him

again. Personally, it sounds like he has a substance abuse problem! Just my

own opinion, but just a guess.

I remember once when I saw an orthopedic surgeon once day. It was 10:00 am and

I smelled alcohol on his breath. I decided right then and there that NO

doctor would operate on me if he had been drinking by 10:00 am!

Debby CA

[ ] Don't know how to react...

I had an appointment with my doctor yesterday and I'm still so upset so I can

hardly write. My mind is paralyzed and my hands shake in anger....

He is a liverspecialist, and as it seems the only one at the whole hospital,

which makes it even harder for me.

The thing is that I don't really like him. He is very unsymphatetic and

doesn't seem to care at all about how his patients feel. I had another doctor

for a while. Unfortunately he moved so now I'm back with this cold person.

My lab results were a bit high so I'm back on prednisolone from being without

it for almost two years. I also have alfa-1 trypsin deficiency, and those

results were also a bit bad. I do trust him when it comes to treating my liver

but I cannot deal with his attitude.

I lots of side-effects from the medicines and he refuses to treat them?! He

says that he can only treat my liver??? I don't understand... Are the

side-effect from the medicines something that is separate from the

liverdisease??

I can understand that he wants me to go to another doctor for my anxiety and

depression, but for the itching, tiredness, joint-pain etc... ???

He told me that he didn't have time for me and told me to go to antoher

doctor. he didn't even care what medicines I took or anything. I told him that I

could as well go to another doctor and not see him at all, just go for the labs

and get the results and he could just talk to me on the phone or write. But that

wasnät possible he said, 'because this disease is really serious, und must be

taken seriously',....??? He also told me that no-one of his other patients had

these problems that I have, and he kind of looked at me like 'you are just

imagining' and that it cannot be related to AIH.. except for the joint pain he

added.

Well I can understand that this doesn't make much sense. I just had to try to

express my feelings a bit...

I have had alot of problems with tiredness, stomach-aches, shaking,

sleeplessness, itching, joint-pain... you name it, it feels like my wholy body

is braking apart.. and now this... I just want to cry...

Thank you all for listening... I'll try to pull myself together and read what

you all have posted a bit later!

Hugs to you all! Nina!

---------------------------------

Stava rätt! Stava lätt! s stavkontroll tar hand om tryckfelen och

mycket mer! Få den på http://se.mail.

September 19, 2007

I am so sorry you had to go through all this. I also have a GI who tends to be

abrupt and cold. I have to go to other doctors for any and everything except for

the imuran and prednisone. He says that he is only there for my liver the rest

of me someone else can worry about.

I thought I had the only cold fish and am so sorry you found another one.

I went to my GP and told him everything I was going through and he got me on

some meds that have helped tremendously. I would urge you to go to your GP as

soon as you can and get something for the itching,depression and anything else

you want to tell them.

I think you will find all of us have gone through something like this and we

are all here for you.

Always feel free to write anything to us and know that we are here to support

you.

the WV Hillbilly

Nina Eskelinen <nina_eskelinen@...> wrote:

I had an appointment with my doctor yesterday and I'm still so upset

so I can hardly write. My mind is paralyzed and my hands shake in anger....

He is a liverspecialist, and as it seems the only one at the whole hospital,

which makes it even harder for me.

The thing is that I don't really like him. He is very unsymphatetic and doesn't

seem to care at all about how his patients feel. I had another doctor for a

while. Unfortunately he moved so now I'm back with this cold person.

My lab results were a bit high so I'm back on prednisolone from being without it

for almost two years. I also have alfa-1 trypsin deficiency, and those results

were also a bit bad. I do trust him when it comes to treating my liver but I

cannot deal with his attitude.

I lots of side-effects from the medicines and he refuses to treat them?! He says

that he can only treat my liver??? I don't understand... Are the side-effect

from the medicines something that is separate from the liverdisease??

I can understand that he wants me to go to another doctor for my anxiety and

depression, but for the itching, tiredness, joint-pain etc... ???

He told me that he didn't have time for me and told me to go to antoher doctor.

he didn't even care what medicines I took or anything. I told him that I could

as well go to another doctor and not see him at all, just go for the labs and

get the results and he could just talk to me on the phone or write. But that

wasnät possible he said, 'because this disease is really serious, und must be

taken seriously',....??? He also told me that no-one of his other patients had

these problems that I have, and he kind of looked at me like 'you are just

imagining' and that it cannot be related to AIH.. except for the joint pain he

added.

Well I can understand that this doesn't make much sense. I just had to try to

express my feelings a bit...

I have had alot of problems with tiredness, stomach-aches, shaking,

sleeplessness, itching, joint-pain... you name it, it feels like my wholy body

is braking apart.. and now this... I just want to cry...

Thank you all for listening... I'll try to pull myself together and read what

you all have posted a bit later!

Hugs to you all! Nina!

---------------------------------

Stava rätt! Stava lätt! s stavkontroll tar hand om tryckfelen och

mycket mer! Få den på http://se.mail.

September 19, 2007

Actually, I've heard that false positives for Hep C aren't terribly uncommon,

especially in people with AIH. Therefore, it's just possible that your

doctor thought you had Hep C -- and, horribly, didn't bother to do the proper

testing to follow-up. That doesn't sound terribly likely, though.

For a long, long time, I tried to find a woman who told me in the greatest

secrecy that she had been a long-term blood donor. One year, the Red Cross

told her tests showed she had Hep C. She couldn't figure out anyway she

couldn't have gotten it, and she was so fearful of " gossip " that she wouldn't go

to

her small-town family doctor to discuss treatment. She cut herself off from a

normal social life for fear of passing it on, and she cut herself off from

medical care for fear of being ostracized.

Soon after the last time I saw her, I read that certain conditions lead to a

false positive. What a terrible thing to happen.

Harper

In a message dated 9/19/07 7:58:27 PM, gndmadee@... writes:

> I have just had this same experience with MY GI here. He is the only one in

> town so I am " stuck " but not for long. He wrote in my chart I have " chronic "

> Hep C and I have a " long history " of hepatitis. I have no labs to " prove "

> that statement he made more than once. When confronted he did a viral load and

> yesterday I got the results - NO HEP C !!!!!

>

**************************************

See what's new at http://www.aol.com

September 19, 2007

You poor thing ! I think every one of us can relate to your feelings and

frustrations and especially your depression. I am so glad we all have one

another. I have just had this same experience with MY GI here. He is the only

one in town so I am " stuck " but not for long. He wrote in my chart I have

" chronic " Hep C and I have a " long history " of hepatitis. I have no labs to

" prove " that statement he made more than once. When confronted he did a viral

load and yesterday I got the results - NO HEP C !!!!! I am so flippin mad.

It's not hard enough knowing we are immune compromised but then they add stuff

with no valid proof and you end up in yet another tail spin worrying and

wondering what the next thing will be to tear our body's down. I am so

disgusted with the medical profession. I was told about two months ago by a

doctor who is a GYN and " friend " that they are " taught " to not care and not get

involved and I told this doctor that it was just a matter of simple

concern for a PERSON. She understood and said we are absolutely right but she

needed to explain to me that the reason for the coldness is just a way of being

" TAUGHT " - - I always thought the whole reason doctor's became " DOCTORS " in the

FIRST place was for the CARE of a person but in today's standards it's for the

almighty buck. I'm saddened by it but more concerned about the lack of good

judgment for us and others in our care. I will be doing absolutely NOTHING for

EIGHT MONTHS before I FINALLY do to the Banner Institute (Oct 11) and get " help "

- after that long I can only 'imagine' what my poor liver is doing with only

15% left. I feel " good " or I'd be a total basket case by now. I also am

paranoid of eating - drinking - breathing even !!!!! I have no idea what I'm

doing and what's happening and each day feels like an eternity. Thank goodness

for the exhaustion or I'd be constantly up and worrying. I just hope you find

some relief and help and you feel better

soon. I'm glad we all have one another. Without this group I know I'd a been

alot worse. Thank you all for caring and letting all of us vent and share. God

Bless...

Dee