Re:borderline positive AMA M2

[Guest guest]

Hi,

I understand your concern. When I had my first blood test my AMA was negative

but my ANA was " off the charts " . Doc said that I have " possible AIH " , but my

emzymes were not high enough to treat with medication. Nine months and three

doctors later I went to a hep doc at Duke Medical Center who tested the AMA

again and it was a very low (borderline) positive. At that point I had a biopsy

that came back " consistent with PBC " but because of the high ANA they think AIH

overlap. I take URSO for the PBC which ironically has brought down the liver

emzymes that are associated with AIH to almost normal but the PBC emzymes are

still high. Doc said there is no need for medication for the AIH at this time.

He said that these disease are very complicated and everyone has different

results from the medications.

I think that the Doctors just don't know that much about rare autoimmune

diseases and they don't like to commit to a diagnosis. It's possible that

your Doctor just doesn't know what's wrong with you.

We have to remember that Doctors, blood tests, and even biopsys can be flawed.

Good luck.

Liz

Sent from my iPhone

[Guest guest]

Thanks Liz:

I just so want to feel well and get my life back. Thanks for all your help.

>

> Hi,

> I understand your concern. When I had my first blood test my AMA was negative

but my ANA was " off the charts " . Doc said that I have " possible AIH " , but my

emzymes were not high enough to treat with medication. Nine months and three

doctors later I went to a hep doc at Duke Medical Center who tested the AMA

again and it was a very low (borderline) positive. At that point I had a biopsy

that came back " consistent with PBC " but because of the high ANA they think AIH

overlap. I take URSO for the PBC which ironically has brought down the liver

emzymes that are associated with AIH to almost normal but the PBC emzymes are

still high. Doc said there is no need for medication for the AIH at this time.

He said that these disease are very complicated and everyone has different

results from the medications.

>

> I think that the Doctors just don't know that much about rare autoimmune

diseases and they don't like to commit to a diagnosis. It's possible that

your Doctor just doesn't know what's wrong with you.

>

> We have to remember that Doctors, blood tests, and even biopsys can be flawed.

>

> Good luck.

> Liz

>

>

>

> Sent from my iPhone

>