Weight gain, and attitude.

[Guest guest]

Thanks Trish.

I have a very moody ten year old boy I feel for you having a

daughter going through this. Bless you all. And as for positive

changes, I am definately feeling some attitude adjustments. I

definately want to be a better parent, and make sure that we focus

on the important things of life.

As for the weight gain thing, I will do everything I can to make

better diet choices, and work out with my husband in the mornings,

which I can start doing now that I am feeling better, and if I am

eating healthy, and exercising, and still put on weight, then so

be it. I will at least know that I am taking the best care of my

body possible.

Have a great day,

Kelli

>

> Hi Kelli

> Glad to hear U no longer have a death sentence!

>

> And U are having another good day, enjoy it, relish in. When Kels

is

> having a good day and we have no where we need to be, we go nutts!

> Nothing in our home is ever taken for granted anymore, the disease

> has actually made some positive changes in us as a family, Kelsey

> always tries to see some good in even the most terrible

situations.

> Her positive attitude is keeping her well.

> AS far as weight gain with Prednisone, Kelsey was upset with this,

> she hungry all the time during the first 4 weeks of meds. She was

> moody, downright nasty, and angry. We thought we lost our caring,

> compassionate daughter forever, hubby had to leave the house at

times

> to have a break from her and this is SOOOOOOOOOOOOOOOOO not

Kelsey.

> Once the meds stabilized, about 4-6 weeks she was feeling better.

The

> weight is going to happen, U can eat only carrot sticks all day

and U

> will still gain the weight. Kels' doctors in London all told her

> without the meds she would die. One day she proclaimed she was no

> longer going to take the meds due to the weight gain....my reply

was

> take the meds or I will have U admitted to the hospital and they

will

> give you your meds. She didnt like that. Our next visit to London

> she spoke with her liver team about this and she went into

> counselling for about 6 months. Kids at school were harassing her,

> making fun of her, it was VERY rough. I have been told that once

U

> have been on Prednisone for a period of 3 months and longer it

will

> stay in your system/your body for up to 3 years once after U stop

> taking it. Since Dec/04 Kels has been off Imuran and in Nov/03

she

> stopped the Prednisone. Within 2 weeks her puffy face, swollen

feet,

> began to shrink. Alot of it is water, her belly is still quite

> rounded but not near as much as it was. You really dont have a

> choice in not taking the medications...if you dont, eventually U

will

> die...and your children would be without you along with your

> husband. If getting well for you isnt enough, and I am not saying

U

> have this attitude, then U need to get well for them.

> Hope ur day is still going well.

> Trish

> PS Loved the frog story!!

>

>

> > Last thought, does everyone gain when taking predisone? or can

you

> > somewhat control it if you make careful choices, I have managed

to

> > drop 20 of the 60 pounds gained in the past three years, in the

> past

> > two months, even lost a ring today for a little while because

it

> > fell right off my finger without me noticing it. Hate to see it

> all

> > come back on, but I guess if it does, I will be glad that I

lost

> 20

> > previously so that I had it to spare so to speak to put back on

for

> > my life saving treatment.

> >

> > Kelli