Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 And low and behold, I do NOT have PBC! I am thrilled. She didn't do any more testing, but she said I was really doing well on the whole. The liver enzymes are still elevated, but they fluctuate only like 10 points each time. This time, though, she thinks the problems I have with stiffness, etc are not from the liver, but rather from the other autoimmune problems I have. This is good! Now, I am able to relize that the problems are not liver related. I have had a hard time realizing that, but and each time I had problems, it seems to be my liver that hurts...the big stomach, the pain...but the labs don't lie. So, I think I am going to make it! Hey, we all need some good news once in a while! Debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 That's great Debby. YOur right, good news is always nice once in a while, especially for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 i understand your concerns about surgery. I am 2 years exactly since my Myotomy. The actual surgery and hospital stay went well. There were so many things i was afraid of before it happend, but after i laughed at myself, casue it wasn't that bad. When i have to have it done again I won't be afraid, but i'll know what to ask for. I'd ask for a shot of pain meds as they are brining me around, i'd go for the cathiter, i didn't the first time, but gee no way i'd use a bed pan, and i couldn't get up and all that fluid they pump into you made me need to pee every hour, and boy did the moving hurt. I'd ask for no visitors, they just bugged me. I'd get a TV in my room, distraction is good. and the most important thing, i'd want them to make it so all pain meds when though an IV, and not into my butt, it hurt so much to roll so they could shoot me up, and my poor rear end looked like someone had beat me. I didn't have any sort of tubes in me when my doctor was finished. I went in on a friday at 6:30 am and was out by Saturday at 11 am. it took 3 weeks to recover, and another 3 weeks to feel decent. You can't see my scars. I will never fear surgery again. I do have spasims, sometimes not for months, but then you have bad weeks. The Myomoty isn't a cure, its just a helping hand. I wish that 7 years ago when my doctor started discussing surgery that i had gone for it. My waiting casued my gallbladder to go to pot and i had to have that out. It wasn't that bad, I think its sort of like giving birth, when its all over you don't remember, and they do keep you all drugged up. Go for it, be prepared not afraid. Saw the doctor today I saw my surgeon today. Since my experience with botox was a failure, the next best step is the myotomy. To me he was very good. His name is Dr. Walsh from Beaumont in Michigan. I took the list of questions from the file and he answered all of them before I could even ask him. He said that he performs at least 15 heller's a year. I knew it was coming but I think reality clicked in when our discussion was over. The scary part for me is hearing that I will have a tube down my throat for a couple days. He then told me that the surgery may not get rid of the spasims which was not really what I wanted to hear. I still have my secound opinion at U of M on April 24th. After talking to my fiance, I think this is the best way for me to go. Im thinking of scheduling it in May.Michigan The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 , I have heard that Dr. Walsh (Welsh?) is an excellent thoracic surgeon, but I didn't know if he had done many myotomies. I'm glad to hear he answered all of your questions. I know the feeling of reality hitting after a consult. I had that feeling before a jaw surgery years ago (also done at Royal Oak Beaumont). It sounds like surgery is the way to go, though. Good luck at U of M next month! in Michigan > > I saw my surgeon today. Since my experience with botox was a failure, > the next best step is the myotomy. To me he was very good. His name is > Dr. Walsh from Beaumont in Michigan. I took the list of questions from > the file and he answered all of them before I could even ask him. He > said that he performs at least 15 heller's a year. I knew it was coming > but I think reality clicked in when our discussion was over. The scary > part for me is hearing that I will have a tube down my throat for a > couple days. He then told me that the surgery may not get rid of the > spasims which was not really what I wanted to hear. I still have my > secound opinion at U of M on April 24th. After talking to my fiance, I > think this is the best way for me to go. Im thinking of scheduling it > in May. > > > Michigan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi, , Don't worry too much about the tube down your throat, really! It isn't all that bad, and, besides, you'll undoubtedly be less than fully functional (you'll probably be on some sort of meds intravenously) and it won't be such a bother. And when the tube is out and you can eat ice cream, well, things get better. When I got home and after two weeks of a soft diet (and I enjoyed the mashed potatoes and butter, ice cream, applesauce, soft, twice-ground turkey and broth....) I discovered the joy of being able to swallow and not be sitting there, waiting for something to jump up and fly out my nostrils! Boy! Was THAT ever attractive! NOT! I'll be thinking of you...and I'll be sending my best vibes, too! Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 , Getting a 2nd opinion is always a good idea. I would find out why you would have a tube in your throat at all after the surgery is over. Is the surgery being done laparoscopically (sp)? If not then definitely get a 2nd opinion. I had lap HM done on 11 Jan, was home on 12 Jan, was walking 2 miles a day after 5 days, was back at work on 18 Jan, went to France and England the week of 2 Feb, and so forth. And I'm an old fart at 48. So you will bounce back very quickly. And I did not have a tube down my throat after the surgery. Rich in Albuquerque Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 Get second opinions, you wont regret it! Once they have done a surgery everything changes so you want it done right the 1st time, I will be having it done for the 3rd time in 2 years but am now traveling from FL to MD to a good doctor. > > I saw my surgeon today. Since my experience with botox was a failure, > the next best step is the myotomy. To me he was very good. His name is > Dr. Walsh from Beaumont in Michigan. I took the list of questions from > the file and he answered all of them before I could even ask him. He > said that he performs at least 15 heller's a year. I knew it was coming > but I think reality clicked in when our discussion was over. The scary > part for me is hearing that I will have a tube down my throat for a > couple days. He then told me that the surgery may not get rid of the > spasims which was not really what I wanted to hear. I still have my > secound opinion at U of M on April 24th. After talking to my fiance, I > think this is the best way for me to go. Im thinking of scheduling it > in May. > > > Michigan > Quote Link to comment Share on other sites More sharing options...
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