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Trish/Kelsey

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Tony…you are totally a wonderful and caring person! God bless you!

and I continue to pray for you!

Debby

-----Original

Message-----

From: Nunez

[mailto:nunez_866@...]

Sent: Monday, August 09, 2004

11:49 AM

Liver Group

Subject: [ ]

Trish/Kelsey

Hello !

I just sent a card for

Kelsey. Would you let her see it !!!

blessings,

tony nunez

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Hi Tony

Kels loved the card! TY so much, brought a HUGE smile to her face.

Kels has a very STRONG faith in her religon and always has beleived

in prayer. Ty so much!

Trish and Kelsey

> BlankHello !

>

> I just sent a card for Kelsey. Would you let her see it !!!

>

> blessings,

> tony nunez

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  • 1 month later...

Hi Trish and Kelsey,

Been a long time since I have been to the site..Read your post about

when Kelsey gets sick she really gets sick from things at school.

Have you ever considered keeping her home from school and letting her

participate in *limited* school activities? Zachary (diagnosed 11/02

at age 9) has been out of school since last February. He couldnt

fend off the crap you pick up at school. Although he is not

attending school physically....he uses a webacm at home on a laptop

and there is one in each class room where he loggs into that class

for the time it is running...the children in the class and the

teachers and other staff interact with him that way...he is learning

the lessons in *real time* and not missing out....he also is allowed

to physically attend 1 class a week if he is feeling up to it.

Although at times it is hard for him....he knows it is the best

choice for him....and one i might add..he made himself...as opposed

to being sick all the time because too many other children go to

school sick. He is due to have a liver biopsy november 15th and they

will be removing him from his 6MP at that time and hope that all goes

well.. he has been prednisone free since last February....which is

why he started doing internet webcam classes....he was put in the

hospital with in 5 days for pneumonia...This seems to be working

though..he has not been sick one day.....being home....and all he is

on for meds right now is 1000 mg chelated calcuim/magnesium, 250 mg

milk thistle and 25 mg 6MP a day...... I hope all goes well after the

biopsy....can anyone give me an idea of what to expect from this

biopsy? it is the first one he will be having after being diagnosed 2

years ago...

Thanks and hope all is well!

Jayne in New Hampshire

Mother to Zach; age 11 (dx AIH 2002, UC, 2002)

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