Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 In a message dated 4/4/01 10:47:55 AM Pacific Daylight Time, writes: > JJ's behavior did improve with > the diet but he is still autistic. Health is better. Now , not > autistic but ADHD, has had no change with behavior since starting the diet. > , this is interesting, as my friend, who has celiac disease, is a big promoter of the diet, and has asked me to get tested for it.....btw, she told me they don't have to take tissue or do a biopsy anymore...they can just swab around the mouth??!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 At 05:03 PM 4/4/01 EDT, you wrote: >, this is interesting, as my friend, who has celiac disease, is a big >promoter of the diet, and has asked me to get tested for it.....btw, she >told me they don't have to take tissue or do a biopsy anymore...they can just >swab around the mouth??!! No. That is wrong information. YOu cannot see the villae of the intesting by swabbing skin cells off the inside of the mouth. The purpose of the biopsy is to get a few of those villae under a microscope. If they are damaged (flat, glossy, and not standing up separate from each other), then there is gluten intolerance. Read Len Leshin's essay on the subject on his website. It gives a concise descirption of the proces for diagnosing Celiac Disease. You might also want to check one of the big celiac web pages for diagnostic procedures. But I'm 99% sure that checking the skin cells inside the mouth won't do it. YOu can do some DNA type testing from there, but nothing that looks at the inside of your gut. YOu begin with a blood test, the antiendomysium (NOT the anti gliadin) and then go from there. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 At 02:14 PM 4/4/01 -0800, you wrote: >>.they can just >>>swab around the mouth??!! > >This is the newest test for CD. There is also a stool sample I heard. My >kids were dx'd by blood test. No way I would put JJ throgh a biopsy. ....really? NOt htat I don't believe you--just that I've not heard of it yet. And if that's true, I want the dsmig to put that out there as the procedure!! Do you know the name of the test or can you direct me? (learn new things every day...and here I just said no....but thinking I should look into the CD websites first...and didn't do it. Sorry . I " m eating foot sandwiches for dinner) I didn't put Andy through a biopsy. We did the wrong blood test--the less sensitive first--and it came back Positive. When his Antiendomysium came back negative, I went with that. IF there's something as simple as a skin test that we can verify as reliable, then I " ll do that to clear up the two tests differeing from each other. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 >.they can just >>swab around the mouth??!! This is the newest test for CD. There is also a stool sample I heard. My kids were dx'd by blood test. No way I would put JJ throgh a biopsy. & Garry, parents of (10 ds), (9 ds), JJ (7 ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted. -------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Joan, I'll look for this tomight. & Garry, parents of (10 ds), (9 ds), JJ (7 ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted. --------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2001 Report Share Posted April 6, 2001 My >kids were dx'd by blood test. No way I would put JJ throgh a biopsy. > Hey nancy, i read in a recent book i checked out on adolescents and ds, trying to get a head start on nathan,lol, anyways they also talk of celiac disease, and nathan had the blood test done too,(neg) but the book says it that best for establishing the diagnosis of celiac disease in children w/ds is a jejunal biopsy showing signicant villus atrophy of the jejunal mucosa. shawna >From: " Scherbert " <Scherb@...> >Reply- > >Subject: Re: Re: CD >Date: Wed, 04 Apr 2001 14:14:26 -0800 > > >.they can just > >>swab around the mouth??!! > >This is the newest test for CD. There is also a stool sample I heard. > > & Garry, parents of (10 ds), (9 ds), JJ (7 >ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All >adopted. > > >-------- _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 shawna, We went to a conference in Sept at Stanford Med Center. The biopsy is concidered the " gold standard " . I was told by Tim's GI dr. that biopsy is the only way he believes the dx. Otherwise it is " presumed CD " After a year of Gluten Free there is no way I could re-introduce gluten to JJ like Lori did for . My hat off to her, I could not do it. JJ is doing better, and his loose stools are only occasional now. PS I am still looking for the test we talked about last week. That was a stool test and the swab of the mouth. Vacation started, Garry is painting the house. So just a little busy here. & Garry, parents of (10 ds), (9 ds), JJ (7 ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Many of the AIHers and PBCers have Celiac Disease.no gluten. The ONLY treatment for Celiac Disease is to eat NO gluten. If you have a natural food store near you it is easy to find gluten free foods.........many breads and such are made from sprue in place of wheat. Also, you can't even eat food that is processed on machinery that also processes gluten foods!!! That also means you can not buy from the bulk bins in the stores. All it takes is a bit of the gluten wheat dust to cause an attack. Here is a great link for CD http://www.celiac.com/ Anyone who follows a gluten-free diet will need some or all of the following. Support Celiac.com by shopping here: a.. Gluten Free Shopping Guide b.. Celiac Disease Newsletter c.. Gluten Free Restaurant Guide d.. Gluten-Free Food & Drug Lists e.. Gluten-Free Guides f.. Gluten-Free Restaurant Cards g.. Celiac Disease Books h.. Gluten-Free Cookbooks i.. Celiac Awareness Shirts j.. Gluten-Free Vitamins k.. Gluten-Free Food Paper Newsletter: ->Subscriber Login<- Subscribe to Celiac.com's paper newsletter for even more in-depth information on Celiac Disease and the Gluten-Free Diet. Edited by Dr. Ron Hoggan, author of Dangerous Grains, and co-edited by , founder of Celiac.com, -Free Newsletter is Celiac.com's quarterly celiac disease newsletter that is available on-line and in print. » Read More Celiac Disease and Gluten-free Diet Information Site a.. Published 09/20/2007 Gluten-Free Food Lists Create safe gluten-free shopping lists on your computer More Info Celiac.com 02/08/2007 - There are no signs or symptoms typical for all people with celiac disease. Signs and symptoms and can vary greatly from person to person. People with celiac disease often have general gastric complaints, such as intermittent diarrhea, abdominal pain and bloating. Some people with celiac disease, however, suffer no gastrointestinal discomfort at all. To make matters of diagnosing celiac disease even more challenging, celiac symptoms can also mimic symptoms of other conditions, such as anemia, Crohns disease, gastric ulcers, irritable bowel, parasitic infection, even various skin disorders or nervous conditions. It is not uncommon for celiac disease to present itself with symptoms that are far more vague. Such symptoms can include: dental and bone disorders (such as osteoporosis), depression, irritability, joint pain, mouth sores, muscle cramps, skin rash, stomach discomfort, and even tingling in the legs and feet (neuropathy). Celiac disease results in malabsorption of nutrients. Depending on the degree of malabsorption, the signs and symptoms of celiac disease vary among individuals, ranging from no symptoms, few or mild signs and symptoms, to many or severe signs and symptoms. There are two categories of signs and symptoms: Signs and Symptoms of Malabsorption, Malnutrition, Vitamin and/or Mineral Deficiencies Associated with Celiac Disease: a.. Abdominal cramps, gas and bloating b.. Anemia c.. Borborygmi (stomach rumbling) d.. Coetaneous bleeding e.. Diarrhea f.. Easy bruising g.. Epitasis (nose bleeding) h.. Failure to thrive i.. Fatigue or general weakness j.. Flatulence k.. Fluid retention l.. Foul-smelling or grayish stools that are often fatty or oily m.. Gastrointestinal symptoms n.. Gastrointestinal hemorrhage o.. Hematuria (red urine) p.. Hypocalcaemia/ hypomagnesaemia q.. Infertility r.. Iron deficiency anemia s.. lymphocytic gastritis t.. Muscle weakness u.. Muscle wasting v.. Nausea w.. No obvious physical symptoms (just fatigue, overall not feeling well) x.. Osteoporosis y.. Pallor (unhealthy pale appearance) z.. Panic Attacks aa.. Peripheral neuropathy (nerve damage) ab.. Stunted growth in children ac.. Vertigo ad.. Vitamin B12 deficiency ae.. Vitamin D deficiency af.. Vitamin K deficiency ag.. Vomiting ah.. Voracious appetite ai.. Weight loss aj.. Obesity Conditions and Disorders Associated with Celiac Disease: a.. 's Disease and Celiac Disease b.. Anemia and Celiac Disease c.. Arthritis and Celiac Disease d.. Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease e.. Attention Deficit Disorder and Celiac Disease f.. Autism and Celiac Disease g.. Bacterial Overgrowth and Celiac Disease h.. Cancer, Lymphoma and Celiac Disease i.. Candida Albicans and Celiac Disease j.. Casein / Cows Milk Intolerance and Celiac Disease k.. Chronic Fatigue Syndrome and Celiac Disease l.. Cognitive Impairment and Celiac Disease m.. Crohn's Disease and Celiac Disease n.. Depression and Celiac Disease o.. Diabetes and Celiac Disease p.. Down Syndrome and Celiac Disease q.. Dyspepsia, Acid Reflux and Celiac Disease r.. Epilepsy and Celiac Disease s.. Fertility, Pregnancy, Miscarriage and Celiac Disease t.. Fibromyalgia and Celiac Disease u.. Flatulence (Gas) and Celiac Disease v.. Gall Bladder Disease and Celiac Disease w.. Gastrointestinal Bleeding and Celiac Disease x.. Growth Hormone Deficiency and Celiac Disease y.. Heart Failure and Celiac Disease z.. Infertility, Impotency and Celiac Disease aa.. Inflammatory Bowel Disease and Celiac Disease ab.. Intestinal Permeability and Celiac Disease ac.. Irritable Bowel Syndrome and Celiac Disease ad.. Kidney Disease and Celiac Disease ae.. Liver Disease and Celiac Disease af.. Malnutrition, Body Mass Index and Celiac Disease ag.. Migraine Headaches and Celiac Disease ah.. Multiple Sclerosis and Celiac Disease ai.. Obesity, Overweight & Celiac Disease aj.. Osteoporosis, Osteomalacia, Bone Density and Celiac Disease ak.. Psoriasis and Celiac Disease al.. Refractory Celiac Disease & Collagenous Sprue am.. Sarcoidosis and Celiac Disease an.. Schizophrenia / Mental Problems and Celiac Disease ao.. Sepsis and Celiac Disease ap.. Sjogrens Syndrome and Celiac Disease aq.. Skin Problems and Celiac Disease ar.. Thrombocytopenic Purpura and Celiac Disease as.. Thyroid & Pancreatic Disorders and Celiac Disease at.. Tuberculosis and Celiac Disease Lastly, Dermatitis herpetiformis is an itchy, blistering skin disease that also associated with gluten intolerance. Rashes usually occurs on the elbows, knees and buttocks. dermatitis herpetiformis can also cause significant intestinal damage identical to that of celiac disease. However, people who suffer from dermatitis herpetiformis may also be entirely free of noticeable digestive symptoms. Treatment with a gluten-free diet, in addition to medication to control the rash, usually brings about significant improvement. Subscribe to free Celiac.com email alerts (1-3 email per month with the latest celiac disease research and information, gluten-free recipes, etc.). http://www.celiac.com/articles/1106/1/Celiac-Disease-Symptoms/Page1.html ____________________________________________________________ Criminal Lawyers - Click here. http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYbd6vw4YBPl3E6d68wvkebCzxXV\ V7tzcVhpjhM5D02F13HU63E3vy/ Quote Link to comment Share on other sites More sharing options...
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