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RE: Digest Number 3666

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In a message dated 5/14/2004 8:22:14 PM Eastern Standard Time, pj7@...

writes:

Would you like me to write an article for the " National Forum? " I would be

glad to.

a Jeanne Carnes

Anybody is welcome to submit anything they like. However, it must be backed

up with facts as all our articles are along with references.

If illegal and unethical or immoral were only the same, we'd have known a lot

more about this illness well over a decade ago as we've shown. I wish they

were held to the same standards but, unfortunately, are not.

Gail

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President/chair

unethical/illegal

Fine lines.

Would you like me to write an article for the " National Forum? " I would be

glad to.

a Jeanne Carnes

Subject: Re: Ampligen

In a message dated 5/14/2004 5:18:41 PM Eastern Standard Time, pj7@...

writes:

So nice to hear from you, Gail Kansky. For those who may not know, Gail is

the chair of the NCF.

That, too, is erroneous, a. We have many " chairs " of various committees

and I am not a chair of any committee currently. I am the current volunteer

president of the National CFIDS Foundation, Inc. and, like all others on the

board, have one vote at meetings. The articles in The National Forum, the

newsletter of The National CFIDS Foundation, have had many authors writing

about

Ampligen. In fact, there will be an article in the summer edition about it.

It

reports on a paper that is distributed to pharmaceutical companies. Another

wrote about a patent on Ampligen owned by the company, Hemsipherx BioPharma,

in which they admitted that the drug raised the TNF (tumor necrosis factor).

With current research already in progress, that would be one of the last

things

one should want from a drug for ME/CFIDS.

We do not censor those who submit articles for The National Forum although

we

do, often, ask for proof of what they are saying. We prefer the truth at

all

costs since we feel it will be the only way to get to a real treatment is to

find the actual cause. Unless and until actual causes are found for

illnesses, there will be problems with treatments. However, those who have

diseases

where the cause is known have the best chance of recovery. We have not

promoted

nor refused to promote any single treatment proposed thus far. We only

report the factual stories and refuse to back down from being truthful.

Gail

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