Re: Prednisone withdrawal smyptoms/Marie

[Guest guest]

Hi Marie

I live in Ontario, Canada.

My daughter Kelsey has CAH.

When she was tapered off the Prednisone she had the very same side

effects. Achey joints, especially at night and in the morning. She

was tapered off during Sept-March. I dont think the cold will affect

the tapering off. Coming off the drugs its just as bad as going on

them. Kelsey used cold packs on her legs at night to help her sleep.

Hope this helps and glad to hear U get to come off the drug.

Trish

>

> Hello to all and I hope that everyone had a wonderful Christmas. I

am

> tapering off prednisone, went from 15mg every other day to 10mg on

> Dec 1 and will drop to 5mg on Jan 1 as ALT and AST remain in normal

> ranges. I will stay on 100mg of Imuran. Since the beginning of

> December I have noticed that I am getting arthritic pains and

> swelling in my hands, with pain in the arms and legs. It is like a

> burning sensation which is getting worse at night(affecting sleep

of

> course)and first thing in the morning. It is also winter in Canada

> and I wonder if the cold is a factor although I make sure to bundle

> up and wear gloves. Also the brain fog seems to be getting worse -

I

> can be in the middle of a sentence and the words I want just

> disappear. I would love to hear from others who have tapered off

> Prednisone and how it affected them. Take care one and all

> Marie

[Guest guest]

Hi Trish

I am also in Ontario. My Hep doc is Ghent in London about an hour

away from home. Hadn't thought of cold packs - we have an electric

blanket on the bed which thankfully I can turn off on my side - at

least we were smart on that one. How old is your daughter? - I

haven't read far back in the posts yet.Is she on Imuran or totally

off drugs?

Marie

>

> Hi Marie

> I live in Ontario, Canada.

> My daughter Kelsey has CAH.

> When she was tapered off the Prednisone she had the very same side

> effects. Achey joints, especially at night and in the morning. She

> was tapered off during Sept-March. I dont think the cold will

affect

> the tapering off. Coming off the drugs its just as bad as going on

> them. Kelsey used cold packs on her legs at night to help her sleep.

> Hope this helps and glad to hear U get to come off the drug.

> Trish

[Guest guest]

MARIE!!!

Kels goes to London too!!

She sees Dr and Dr Atkinson at the Childrens Hospital

I have heard many good things about Dr Ghent!!

One of Dr s staff who works at his Pediatric Unit now sees

Ghent now cause shes no longer considered to be a 'pediatric case but

an adult case now'. Her name is and we love her to bits. She

has been through hell and back since the age of 16 and is doing well

now.

Kels will be 10 in January and diagnosed in June 2002. It was a fluke

finding out she was so ill.

Here is some info on Kelseys experience:

http://groups.msn.com/MyLifeToDance

I will be changing her web page over to sympatico at some point in my

life, LOL, just running out of time it seems this week.

Kels was started on 35 mg PREDNISONE, then one wek later began IMUARN

at 50 mg. Her IMURAN got as high as 15 mg while being tapered, 125 mg

was as high as her Liver Dotors would go for her being so young. As

her PREDNISONE was tapered she began ENTOCORT, then once the ENTOCORT

kicked in was tapered to a lower dose of IMURAN. While on Prednisone

she also took ZANTAC for upset stomach.

Here is another good website:

http://www.ldoa.net/

Trish

> >

> > Hi Marie

> > I live in Ontario, Canada.

> > My daughter Kelsey has CAH.

> > When she was tapered off the Prednisone she had the very same

side

> > effects. Achey joints, especially at night and in the morning.

She

> > was tapered off during Sept-March. I dont think the cold will

> affect

> > the tapering off. Coming off the drugs its just as bad as going

on

> > them. Kelsey used cold packs on her legs at night to help her

sleep.

> > Hope this helps and glad to hear U get to come off the drug.

> > Trish