Guest guest Posted October 4, 2003 Report Share Posted October 4, 2003 Trish, on my Medic Alert bracelet, it begins with Immunosuppresed, on prednisone (even though I am not on it, I have left it on and not gotten another bracelet. ) Then it says NO MORPHINE, and CALL IMMEDIATELY and gives the number. I feel very safe with it! Personally, I would not put AIH because the medical field would have NO clue what that was….even Autoimmune Hepatitis….but talk with the nurses when you sign up. They will really help you know what to put that will be appropriate for your daughter Debby [ ] Medic alert medallion I have decided to purchase one for Kelsey so she can wear it on a chain around her neck. I am going to have " AUTOIMMUNE HEPATITIS " engraved on the back. Do U all think this will be acceptable enough in the medical field as a warning to her condition? Should I have something else engraved on it instead that might be more benefical? Thanks Trish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 Where do I sign up? Why no morphine? What number would they call? This is all new to me...I didnt realize I had to register anything. Clue me in please! Trish > Trish, on my Medic Alert bracelet, it begins with Immunosuppresed, on > prednisone (even though I am not on it, I have left it on and not gotten > another bracelet. ) Then it says NO MORPHINE, and CALL IMMEDIATELY and > gives the number. I feel very safe with it! > > > > Personally, I would not put AIH because the medical field would have NO > clue what that was..even Autoimmune Hepatitis..but talk with the nurses > when you sign up. They will really help you know what to put that will > be appropriate for your daughter > > Debby > > > > [ ] Medic alert medallion > > > > I have decided to purchase one for Kelsey so she can wear it on a > chain around her neck. I am going to have " AUTOIMMUNE HEPATITIS " > engraved on the back. Do U all think this will be acceptable enough > in the medical field as a warning to her condition? Should I have > something else engraved on it instead that might be more benefical? > Thanks > Trish > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 I feel like such a dunce! I found the website to what U were both referring to and its Canadain even. http://www.medicalert.ca I had no idea I could actually register her health information in data base. All I was thinking of doing was purchasing a medic medallion from the jewellers and stating her condition on the back of it, with a contact phone number. What do U all think about this?? Should I register her or just go thru the jewellers? I can cancel the medaliion at the jewllers up until tomorrow morning. Maybe actually registering her would be better? So I would need to purchase one of their " products " , have them engrave it, and also pay a yearly membership? Is this what U all can gather from this site? So Im looking at about $85.00 Cdn plus shipping and taxes to get this rolling. A small price to pay dont U all think? How many of U do use the medic alert for ur conidtion besides Debby and Jan? Thanks everyone! Trish > > Trish, on my Medic Alert bracelet, it begins with Immunosuppresed, > on > > prednisone (even though I am not on it, I have left it on and not > gotten > > another bracelet. ) Then it says NO MORPHINE, and CALL IMMEDIATELY > and > > gives the number. I feel very safe with it! > > > > > > > > Personally, I would not put AIH because the medical field would > have NO > > clue what that was..even Autoimmune Hepatitis..but talk with the > nurses > > when you sign up. They will really help you know what to put that > will > > be appropriate for your daughter > > > > Debby > > > > > > > > [ ] Medic alert medallion > > > > > > > > I have decided to purchase one for Kelsey so she can wear it on a > > chain around her neck. I am going to have " AUTOIMMUNE HEPATITIS " > > engraved on the back. Do U all think this will be acceptable enough > > in the medical field as a warning to her condition? Should I have > > something else engraved on it instead that might be more benefical? > > Thanks > > Trish > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 Trish, Personally, I would recommend a bracelet rather than a necklace. My bracelet has a clasp on it that is very secure. There is no way for the bracelet to just slip off my wrist. I have my medical alert bracelet with a company that stores all of my info. Since I have systemic lupus, AIH, chronic pancreatitis, type II diabetes, and a clotting disorder, there is no way to fit everything on a bracelet. This company stores all info including my doctors names and phone numbers, all medications and the dosage, all allergies, all medical conditions, emergency contacts - my husband and then one or two other people who do not live with me. They put the most pertenint info on the bracelet and then it simply says 'call for VITAL medical info.' It has a toll free phone number and then a number that is assigned to me. It cost $30 for the first year and then $20 for each year after that. I went with a surgical steel bracelet that is silver and gold. It was free, but they have nicer bracelets you can pay for. My bracelet is through the Medic Alert Foundation. They provide service all over the world, I think. If you can't get to it from the link below, just do a search on Medic Alert Foundation and you should find it. https://www.medicalert.org/(sqajktztrheleq45xyf2wsjj)/home/homegradient.aspx W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 Trish, with the medic alert foundation, you get the first bracelet free if you just go with the basic one. Well, I say free, but it is included in the first year's membership fee. In my case, I felt I needed to have some place that doctor's could call and get all of my medications and medical info in case my family was not available. Also, in a life or death situation, my family might not be able to remember everything the doctors need to know. If you wanted to get a pretty little bracelet from the jewelers, you could simply have her medic alert number, the medic alert phone number, and the words ' CALL FOR VITAL MEDICAL INFO' engraved on the bracelet. The problem with going with a bracelet that just gives the info and doesn't link you to an organization that has all of her medical info is that even with AIH, there is too much to put on the bracelet. Doctors need to know that she has AIH and that she is on prednisone and imuran. They need to know she is immunosuppressed. They need to know any allergies she may have. They need to know the names of her doctors and family emergency contacts. There is just too much to fit on the back of a small bracelet. I also didn't really want autoimmune hepatitis on the back of my bracelet because so many ignorant people think it is contagious. If I were going to list her medical condition on the bracelet, I'd just put autoimmune liver disease. Just my opinion. W [ ] Medic alert medallion> > > > > > > > I have decided to purchase one for Kelsey so she can wear it on a > > chain around her neck. I am going to have "AUTOIMMUNE HEPATITIS" > > engraved on the back. Do U all think this will be acceptable enough > > in the medical field as a warning to her condition? Should I have > > something else engraved on it instead that might be more benefical?> > Thanks> > Trish> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 Trish, I have a bracelet for the diabetes as this was causing very varied BS readings. My Mom actually bought it for me because she was afraid I would not be able to do anything more than call 911 if I had a severe low (Which I have had many of). I really should have the type everyone else is talking about listing all conditions as the variceal bleeding and low platelet count are as big offenders as the DM. The Prednisone is also a very important thing to have on it. I agree with the others I would not put AIH on the bracelet because most people in the medical field have no clue what this means. Scary isn't it. Hope this info helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2003 Report Share Posted October 6, 2003 Hi TY for the post! I have talked with 6 people who have the medic alert bracelet and have been registered within the international medic alert system. Four of them had to actually use it, and 3 all got busy signals or were put on hold when the hospital called for information. I think what I will do is this: Get Kelsey one from the jewellers and have the following engraved on it... AUTOIMMUNE LIVER DISEASE IMMUNOSUPPRESSANT On Prednisone 519-###-####(home phone number) 519-###-####(another emerg contact number) In most cases when taken to the hospital they dont contact medic alert until they are there, so I figured they would contact her next of kin as well anyways. Also when they key in her name or her OHIP Number all her medical information will come up in the computer system. TY all for your help. I think anyone with this disease really needs to have one. Trish > Trish, > > I have a bracelet for the diabetes as this was causing very varied BS > readings. My Mom actually bought it for me because she was afraid I would not be > able to do anything more than call 911 if I had a severe low (Which I have had > many of). I really should have the type everyone else is talking about listing > all conditions as the variceal bleeding and low platelet count are as big > offenders as the DM. The Prednisone is also a very important thing to have on it. > > > I agree with the others I would not put AIH on the bracelet because most > people in the medical field have no clue what this means. Scary isn't it. > > Hope this info helps. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 I don't know about the Canadian site, but www.medicalert.org has some great bracelets designed just for kids. They have cute stretchy cloth bands. My own is a stretchy watch band type so it can't fall off and it expands/contracts as my weight varies. Most people mistake it for a bracelet with a Chinese symbol on it as it is completely gold and silver - no red. With the amount of meds I take (and the dosages varying regularly) it's much easier for me to update my record on the website for medical personnel to call. They will also notify my doctors and family. I also carry copies of my record in my purse - nurses love it when I hand them that rather than try to remember everything. The cost was US$35.00 for the first year, and $25.00 thereafter. That included the cost of the bracelet. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 > I have decided to purchase one for Kelsey so she can wear it on a > chain around her neck. I am going to have " AUTOIMMUNE HEPATITIS " > engraved on the back. Do U all think this will be acceptable enough > in the medical field as a warning to her condition? Should I have > something else engraved on it instead that might be more benefical? > Thanks > Trish >>>>>Trish, Usually you have AUTOIMMUNE HEPATITIS on bracelet but also your doctors name and phone number, so they can help you better. Joanne Quote Link to comment Share on other sites More sharing options...
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