Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Dear All: Thnaks so much for your continued support of me through private emails and good thoughts. I have especially been touched be the lighting of candles around the world, and I am now have a 24-hour vigil candle burning in my home (safely) for all of us--our bodies, our minds, our healing, our hopes, our love, and our understanding spirit. This light means a lot to me, and when I wake up in tne middle of the night becuase of insomia and the medication wears off, and I look over to the warm light in the darkness, it sends out comfort, love, and " you are not alone. " I think of all of you every day, and especially , I wait with you. I have a fine-needle aspiration lesion biospsy of the my left lobe of the liver on Tuesday morning at 8am at town to test for cancer. I ask everybody to think, pray, visualize, hope, anything which rises up from your good intentions, to the possibility that is not cancer. I feel like I am buried on about the fifth rung of hell at this point--potentially cancerous liver lesions, brain tumor, liver surgeons won't operate because of the brain tumor, etc.......and if I can just make it through one exam at a time. If this just a tumor and not cancer, it would be a first step up. So let's cuddle up to the benign tumerous liver lesions and tell them how much we prefer them to cancer, and maybe they will grace my left lobe against the odds. I have appointment with three top neurosurgeons in the next couple of weeks, so I will begin the serious examination of the brain tumor. I want to thank everyone, especially Fonda, for the neurosureogy references. There is a big difference in brain specialists in this country--far more varied than in liver disease--and there are only about 25 top neuro specialists that you can really trust with your life and brain, based on the number of times they operate per year, technology, etc. So I feel compelled to seek out the top neuro doctors as a chance to treat the brain disorder. The left arm and hand is somewhat numb today, some there is something going on up there on an active way. I hope that I can make it out of this; I hope we all can. I share with you one last somewhat incredible event. (I swear I am not making me this up.) After my friends brought me home Christmas Eve and I recovered for a few days from the trauma of all of the medical news, I was in bed Thursday evening in the lower level of the townhouse that I rent, and my landlord-friend upstairs has stepped out for a moment. I started to hear water running, and soon there were tens of gallons of water gushing form the ceiling everywhere, the vents, and the electrical sockets that started to explode. Here pipe under her kitchen sink her burst upstairs, and there were hundreds of gallons of water flooding her main floor and of course my basement. It was so unbelievable, espceailly with partial brain impairment becuase of the tumor, I felt like I was trapped in some bad made-for-tv movie. I wasn't even supposed to be moving from bed, but there I was lifting my new mattress, which was directly under the gushing exploding light fixture, and moving in to the other side the room, trying to gather my medical papers for flood, calling 911 to get fire fighters, trying to find the cats of the house in case of fire. The fire fighters came and stayed fro about an hour with some neighbors after we got the water main turned off and mopped up, I was wandering around in the cold darkness in the woods in my flannel nightgown with a flashlight trying to find my beloved Cat who had bolted the first few minutes of the flood. I went up and downstairs about 10 ten times, and I can say I'm glad I'm on steroids and anti-seizure meds, becaause I could have had a stroke or just plain died; my left side started shaking from foot and to arm, but since has subsided, but slightly numb. Cat finally came back after about three hours, with a very wet tail and dry elsewhere, and with some volunteer help for a wonderful hospice home-care organization I just discovered this week, we have finally got my apartment put back together with a lot of water spots on the ceiling and burn out lights, but the building inspector says we are not going to cave in. I not much of an institutional religious person and not particularly Judeo-Christian, but I feel like God is taking me through the Old Testament chapter by chapter--Job, the flood, the plague, etc. I keep waiting for the New Testamant to begin! Holding fast to any threads of hope, my freinds brought me a Chinese fortune cookie to me the other night and it says, once agin I am not making this up, " Serious trouble will bypass you. " I don't know who the guys are that write fortune cookies, but I sure hope they talk to the Old Testament God and my doctors, and get everybody on the same page! I am trying to have a sense of humor about this, and the whole flood scene was so outrageous and so unbelievable, you didn't to laugh and cry. Well, I wish you each and all a Happy New Year of any creed and calendar, and faith or hope. I keep the light burning for all of us, and keep your healing my heart and thoughts. Love, hugs, and hope, in DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 It is truly great that you have a sense of humore with all your troubles, Others maybe even me, would have been in the looney bin by now. Good luck with your preceedure tomorrow, and I hope they will find things more hopeful than what you are fearing. My POSSITIVE thoughts are with you. Keep the candle burning even if it is just in your mind. Clara from OR [ ] Re: Light, liver biospy, and a flood Dear All: Thnaks so much for your continued support of me through private emails and good thoughts. I have especially been touched be the lighting of candles around the world, and I am now have a 24-hour vigil candle burning in my home (safely) for all of us--our bodies, our minds, our healing, our hopes, our love, and our understanding spirit. This light means a lot to me, and when I wake up in tne middle of the night becuase of insomia and the medication wears off, and I look over to the warm light in the darkness, it sends out comfort, love, and " you are not alone. " I think of all of you every day, and especially , I wait with you. I have a fine-needle aspiration lesion biospsy of the my left lobe of the liver on Tuesday morning at 8am at town to test for cancer. I ask everybody to think, pray, visualize, hope, anything which rises up from your good intentions, to the possibility that is not cancer. I feel like I am buried on about the fifth rung of hell at this point--potentially cancerous liver lesions, brain tumor, liver surgeons won't operate because of the brain tumor, etc.......and if I can just make it through one exam at a time. If this just a tumor and not cancer, it would be a first step up. So let's cuddle up to the benign tumerous liver lesions and tell them how much we prefer them to cancer, and maybe they will grace my left lobe against the odds. I have appointment with three top neurosurgeons in the next couple of weeks, so I will begin the serious examination of the brain tumor. I want to thank everyone, especially Fonda, for the neurosureogy references. There is a big difference in brain specialists in this country--far more varied than in liver disease--and there are only about 25 top neuro specialists that you can really trust with your life and brain, based on the number of times they operate per year, technology, etc. So I feel compelled to seek out the top neuro doctors as a chance to treat the brain disorder. The left arm and hand is somewhat numb today, some there is something going on up there on an active way. I hope that I can make it out of this; I hope we all can. I share with you one last somewhat incredible event. (I swear I am not making me this up.) After my friends brought me home Christmas Eve and I recovered for a few days from the trauma of all of the medical news, I was in bed Thursday evening in the lower level of the townhouse that I rent, and my landlord-friend upstairs has stepped out for a moment. I started to hear water running, and soon there were tens of gallons of water gushing form the ceiling everywhere, the vents, and the electrical sockets that started to explode. Here pipe under her kitchen sink her burst upstairs, and there were hundreds of gallons of water flooding her main floor and of course my basement. It was so unbelievable, espceailly with partial brain impairment becuase of the tumor, I felt like I was trapped in some bad made-for-tv movie. I wasn't even supposed to be moving from bed, but there I was lifting my new mattress, which was directly under the gushing exploding light fixture, and moving in to the other side the room, trying to gather my medical papers for flood, calling 911 to get fire fighters, trying to find the cats of the house in case of fire. The fire fighters came and stayed fro about an hour with some neighbors after we got the water main turned off and mopped up, I was wandering around in the cold darkness in the woods in my flannel nightgown with a flashlight trying to find my beloved Cat who had bolted the first few minutes of the flood. I went up and downstairs about 10 ten times, and I can say I'm glad I'm on steroids and anti-seizure meds, becaause I could have had a stroke or just plain died; my left side started shaking from foot and to arm, but since has subsided, but slightly numb. Cat finally came back after about three hours, with a very wet tail and dry elsewhere, and with some volunteer help for a wonderful hospice home-care organization I just discovered this week, we have finally got my apartment put back together with a lot of water spots on the ceiling and burn out lights, but the building inspector says we are not going to cave in. I not much of an institutional religious person and not particularly Judeo-Christian, but I feel like God is taking me through the Old Testament chapter by chapter--Job, the flood, the plague, etc. I keep waiting for the New Testamant to begin! Holding fast to any threads of hope, my freinds brought me a Chinese fortune cookie to me the other night and it says, once agin I am not making this up, " Serious trouble will bypass you. " I don't know who the guys are that write fortune cookies, but I sure hope they talk to the Old Testament God and my doctors, and get everybody on the same page! I am trying to have a sense of humor about this, and the whole flood scene was so outrageous and so unbelievable, you didn't to laugh and cry. Well, I wish you each and all a Happy New Year of any creed and calendar, and faith or hope. I keep the light burning for all of us, and keep your healing my heart and thoughts. Love, hugs, and hope, in DC Quote Link to comment Share on other sites More sharing options...
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